The Olympics has done something strange to Janet. Today was the second day in a row she watched hockey and as she told me about today’s game she had a big smile on her face. Hockey? Seriously? At least she was happy. Not as happy as she was from getting a phone call from Laurel this morning as she called to announce where her internship will be. Janet had been anticipating the call and I left her my old cell phone for that reason. She was able to answer the call herself and seems far more receptive to the idea of having a phone than an iPad.
In bed and sort of sleeping when I got to Connect I convinced her to go pants shopping on the way home. Because of the AFO, only one pair of Janet’s decent pants fit her now. In a very un woman like manner she didn’t want to go shopping and I probably should have held back as the expedition really did tire her out. So much so that when we got home at 6pm she decided all on her own to have a little nap. She wasn’t too tired to get out of the wheelchair and onto the bed all by herself though. High five!
The rest did Janet good and we ate dinner while watching our recorded version of the Women’s Figure Skating. No surprise, Janet really enjoyed it and looks forward to finishing it off tomorrow. She is soundly sleeping as I write this and I pray that continues through the night and that she has lots of energy for a productive Saturday. We continue to pray for John as well as Barb and Gary who are battling the flu. Get better kids!
Janet and I enjoyed a pretty quiet day today, her last full day here before returning to Connect tomorrow after dinner. It’s been a great sixteen days and it will be difficult to say goodnight tomorrow and leave her at Connect. I know it’s still the best place for her to keep getting better and I guess I was spoiled having her at home for such a long stretch. It’s awesome to realize she can be home with no major challenges and that bodes well for the future.
I did manage to get Janet to do a little standing and walking today. Her balance was good and she made it more than half way from the table to the fridge, about ten feet, before declaring a bathroom break. I had her carry on afterwards and she was able to retrieve an orange out of the fridge with minimal assistance from me. We had a brief but nice visit from Courtney and watched a very exciting playoff football game before going to church. Janet said that was the most exciting game she’d ever seen and she was truly into it and Seattle wasn’t even playing. Love her.
In trying to foster more independence for Janet I intentionally left her wheelchair footrest in the car at church and asked her to propel herself from the car to our seats. She needed a little help on one sloped bit in the parking lot, other than that it was all her confidently rolling along. At the end of the service she executed her first unassisted standing transfer from pew to wheelchair. No help from me at all. High five!
Dinner and a movie was the evening plan again with Janet almost bailing on the movie we watched, Won’t Back Down, but was glad she stuck it out through the end and gave a loud cheer and a fist pump. Praying for a night of deep and healing sleep that restores Janet’s energy for a productive tomorrow.
Janet is really catching onto this napping idea. I encouraged her and the staff yesterday to have her nap right after lunch today so she would be awake for the two o’clock team meeting. I arrived at 1:30, Janet was sleeping after Jess put her down a little before one. I quietly went into her room at 1:55 and she was very deeply asleep. So much so that she didn’t wake up until I came back in after the meeting at 3:20. I can remember many meetings in the past I would have loved to sleep through, not this one though but I’m glad she did. With over two hours of nap time I was expecting a very bright Janet. That’s not exactly what I got but there were some bright moments.
Heather requested a Skype chat and I thought Janet would be raring to go like she said she was. We connected with Heather about twenty minutes after Janet woke up and I think she could’ve used another twenty as she was very quiet and not focused in the conversation at all. She kept playing with the game boxes and other things on her desk and just wasn’t participating so we ended the call sooner than anticipated.
We made our way down to the kitchen to see if Janet could help with dinner. Her laundry was there for some reason so we took that back to her room and she very diligently put it all away. Strange how she enjoys that task so much.
Chris made a nice BBQ chicken dinner for everyone and we had an enjoyable time at the table. Janet wasn’t talkative at all but I could sense she was enjoying the chatter and she certainly ate well including ice cream for dessert.
Janet accepted Garrett’ s offer to go to the gym tonight and I made sure to praise her for that decision. She came back with a little more energy than when she left and Garrett was pleased with how things went, more so than Janet was. She chose to use her energy to watch some YouTube before bed and really enjoyed that and had some good comments about what we watched.
The team meeting today was a good sharing of information and planning for the next couple of months. Overall the team feels Janet is progressing as expected, slowly but surely. We talked in depth about the Dilantin overdose and all agreed they saw signs of its affect on Janet. I still think her levels are high but we won’t know until her next blood test which is next week. There is still concern about the spasticity in her legs and Tez is motivated to throw every available treatment at her to try and gain some improvement. I expect Janet to be cleared for the pool tomorrow and hopefully start some hydrotherapy next week. There may be a way to bump up her Botox appointment but I need some cooperation from CPP and the good folks at Pharmacare first. It was mentioned that Janet is transferring using the sliding board quite well and Garrett reiterated that tonight saying she did her best one from wheelchair to table mat yet. Jess agreed that Janet loves to be involved in household activities and will try and get her doing more. The other big issue of course is the afternoon nap and all agree that Janet needs one and I think finally Janet is acknowledging that as well. Brian will start to transition Janet out of the hospital bed and that might help Janet feel better about napping if its in a real bed. I’m very pleased with the people that are caring for Janet and I think she is too. Yes, she’s progressing slowly but she’s come a long way her three months at Connect.
Praying for a restful night that provides healing and lots of energy for an active day tomorrow.