Tez

Janet, A Success Story. September 23. #TSJ

The dreaded day of Tez was upon Janet this morning but much to her relief Tez assigned his student to her and that lessened her complaining and she put in a reasonable effort. Janet’s attitude is becoming an issue however so Brian is sending an email to Dr. Miller ahead of Janet’s appointment with him next week to outline the four outstanding goals she is to achieve before coming home and asking for some strategies to help Janet through this final push at Connect.

Once again Janet didn’t nap today and therefore wasn’t that energetic this evening. Games Night was fun and Janet participated well for the most part. The best part of that was her agreeing to walk up the stairs on the way there and surprisingly back down them afterwards. I would have no problem allowing her to navigate the stairwell unsupervised now in either direction and I think Janet would do so going up but she’s still too nervous about the downhill trip. Today wasn’t filled with her best walking ever as she really seemed to be lacking confidence except that by the end of the night she willingly went cane free to get her meds.

In preparation for riding the Handydart one day I had Janet start to fill out the application form. After practicing on some scrap paper a little bit, Janet filled in her name, address and a few other basics in reasonably legible printing. There are some questions we weren’t sure how to answer so will talk to Brian before filling out the rest. I’m glad Janet is willing to try and do some printing now, it wasn’t long ago when her response was, “no, I can’t”.

Praying for an uninterrupted night of sleep and a Wednesday full of confidence.

Janet, A Success Story. April 29. #TSJ

Another busy walking day for Janet with lots of time to warm up for it though. Jess took her and Angie to a nursery to buy some plants and herbs for the patio at Connect. Janet says it wasn’t fun but I’m sure it was better than being in the gym and it was sunny outside.

Tez had agreed to meet with Janet and I late this afternoon and Janet called me to confirm that appointment. I asked her to be rested up for that and when I got to her room she actually was asleep. Our meeting with Tez was quite helpful and insightful and hopefully gave Janet some confidence to keep working at this walking thing. She demonstrated walking with the cane, using me as the cane with me leading her and walking beside her. There was also a reluctant attempt at free walking so Tez could see first hand Janet’s entire repertoire. He was impressed and lamented that the sling at the parallel bars would be the best tool for Janet to use right now but she “hates” it and I don’t think we’ll get her in it but will try. In the meantime, Janet has agreed, quite readily, to meet Tez at the pool Thursday morning to do some walking in the warm water of the kiddie pool. A big part of Janet’s challenge is fear/confidence and Tez feels that a few falls with no risk of injury could help. Should be fun.

The few times Janet has used the Tilt Table she’s complained quite vociferously that it hurts and she’s not going on it again. I suggested she ask Tez if she needs to be doing it during today’s meeting and she did. Fortunately Tez had time to respond with “lets see you in it and we’ll go from there”. Janet walked to the Den with me leading and stepped onto the table reasonably well and Tez tried a few different positions to maximize the benefit for Janet. The end result is, yes, she needs to be doing it but now in a different manner than previous. Janet will be at ninety degrees with a safety strap at chest height and no support at her legs at all. In addition to no leg support she is to do some foot raises and side stepping while standing and stay in the thing for as long as possible. Tez wants to tire her right out with everything she does now, including walking. What was going to be a short let’s see what you look like session turned into a twenty minute workout for Janet and a good learning session for me and Jess. Janet rather smugly ended the session herself by undoing the velcro strap and stepping forward right to the edge of the table before grabbing me for her step down to the floor. She then impressed us all with a nice unassisted step to and turn to sit on the couch.

A tired Janet walked out to the lobby with me leading, got in her wheelchair and went to the gym for a Shuttle workout. I agreed to shorten the session based on all the walking and standing she’d just done and focussed on the right leg. Janet did well and never complained. After a toilet break we walked down to the dining area for dinner. Janet did complain a little along the way but persevered. With the sun still shining after dinner, Janet took a well deserved break in it’s warmth.

Ahhh

Ahhh


Games Night always produces a pouting session with tonight’s being much less than previous and Janet did very well with a lot of the questions given to her. She still came away saying “it’s stupid” but she’ll be back next week “just to watch”.

I meant to have Janet walk down to get her meds but she preempted me and arrived in her wheelchair struggling to find that word, meds, in her head. There has been an increase in her inability to find key words when speaking and it may have something to do with a high level of Dilantin in her system. Jess took her for a blood test this morning and Janet’s levels are very near the top of the therapeutic range for the second week in a row. I asked her doctor to seek the opinion of Janet’s neurologist, Dr. Adams and she agreed. No change in dosage until we hear from him.

While Curtis was getting Janet’s meds I had her get ready to walk back to her room and left her standing at the door to the med room while I parked her wheelchair. On her own, loosely hanging onto some shelving, Janet walked six feet into the room to get her meds from Curtis who was as surprised as me. Maybe she’s gaining confidence? Holding my hand to turn around to come back out of the room she forgot to step once and came very close to falling. A good lesson learned I hope. The walk to her room was very good considering how tired she was. Not tired enough to miss out on some Easter chocolate, some reading then ready for bed. It all caught up to her once she was tucked in and she was sleeping minutes later.

Praying for a night of healing sleep and lots of energy tomorrow.

The Team Save Janet Report is Out! #TSJ #turningpoint

Once again Janet was in bed and wide awake when I got to Connect. This time she was awake not because she wasn’t tired but I think because she was upset. Tez had worked with her at the parallel bars this afternoon and according to Janet it had not gone well and it wasn’t the usual “it was terrible” this was legit “it was bad”. Since she clearly wasn’t going to sleep I suggested she get up and we go find Tez and see if we can help her feel better about it. She agreed and we found Tez in his office. He was really good towards Janet who was awesome in stating her feelings about the workout and it all boiled down to Janet’s lack of confidence preventing her from doing the things she needs to do in order to reach her goal. That goal remains, walking by June, and is totally realistic but Janet needs to buckle down and do lots of difficult and un-fun work. Each time Tez praised her on something she asked him “really?” or would look at me and I would affirm what Tez said. I don’t understand the self doubt, I know it was in her pre aneurysm, but why is it so prominent now and why when she has so much evidence showing her how well she’s doing does she lack confidence to such a degree that she gives a half hearted effort or worse. Tez laid it out on the table for Janet today, work hard or stay in the wheelchair. Janet says she doesn’t want to stay in the wheelchair and it remains to be seen how hard she’s willing to work. If any of you have suggestions as to how to build her confidence and or can spend some time to encourage her please let us know.

Janet felt better after talking to Tez and was able to have a good Skype chat with Heather just before dinner. I had to prompt her occasionally but it was a much better conversation than last time. Based on the Tez talk Janet agreed to a Shuttle session after dinner and did quite well. There was good effort there along with some whining which I don’t think will go away ever and that’s fine as long as the work gets done.

Chelsea invited Janet to help her make chocolate cupcakes this evening and Janet was all over that idea. It was hard and messy work with Janet doing a lot of mixing and reading instructions out loud. It took all evening, right up until bedtime, and was well worth it.

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We read some Long Walk to Freedom before Janet fell asleep. She was even asleep as she mumbled goodnight to me. Praying for a night of deep and healing sleep that allows Janet to have a productive and confidence building Friday. We are also praying for John the sing along man as we found out tonight he is in hospital and not doing “particularly well”. We pray for a speedy return to health.