story

Janet, A Success Story. August 26. #TSJ #Storytime

Tuesdays are usually work with Tez days for Janet and she kind of dreads that. This morning she knew that AFO lady was coming to see her and that her session with Tez would be delayed. Well, AFO lady came rather late and Tez wasn’t feeling well so Janet had an easy morning. AFO lady was happy to see how much stronger Janet’s right leg has gotten and as a result has ordered some parts for Janet’s AFO so it can be modified to be more flexible. To further illustrate her increased strength Janet really impressed me with her bike ride tonight going farther and at a harder setting than ever before. She even climbed all nineteen steps very well on her way to Games Night.

Games Night was more of a story time with Janet night as she read The Hallo-Wiener to the group. Curtis couldn’t even finish introducing Janet and explaining what she was going to do before she started reading. There was no hint of nerves or anything as Janet jumped right into it. Like her previous public speeches, Janet tended to ad lib a lot instead of reading each word. That got her confused more than once and disrupted her rhythm. The good news is she knows she does it and agreed to work on stopping it. The group enjoyed the story and were very encouraging to Janet afterwards. Janet said it was OK but needs to keep practicing.

Storytime with Janet.

Storytime with Janet.


Praying for a good night of sleep that provides lots of energy for tomorrow.

Janet, A Success Story. April 6. #TSJ

Sunday started out well and ended really strong. Janet has bounced back from whatever was bothering her the last few days and by tonight was at her brightest ever it seemed.

I let her sleep in a little this morning then she got her water, meds and coffee all by herself while I showered. Usually I’m watching as she gets her breakfast but today I let her go on her own and she did fine. Our plan was to have pancakes and Janet helped me make the batter but the egg we used was from a carton that expired in February and we added too much milk so it was back to toast and peanut butter. Janet took part in the weekly Skype session with her mom and enjoyed that conversation.

The first walking attempt of the day was a good one and I continue to see improvement, especially in Janet’s ability to step with her right leg. The weather was nice enough to walk around and hangout outside for a little bit this afternoon and Janet helped me with some landscaping ideas before her nap. A half hour is better than nothing and Janet got up feeling pretty good and executed a really good walk from the bathroom to the dining table. She seems to be even gaining some speed although I’m not timing her yet.

Janet helped build a salad and we enjoyed a nice dinner with pretty amazing conversation lasting well into return to Connect time. After Janet’s surprise announcement yesterday that she wanted to share her story at SheLife I thought that would be it for amazing announcements for a while. Wrong. I helped Janet take some notes on what she wants to talk about and that lead to some very interesting comments and questions from Janet centred around what happened to her, why, how amazing it is that so many people have supported her along the way and how much she has improved. She’s finally accepting that truth and I was able to reinforce it today by showing her some old video of her 4B and Rehab days. Janet took it all in and really processed it well, asking very poignant questions without getting too emotional. A couple of hours later and Janet had a very clear picture of where she’s been and how she’s gotten to where she is today and I think it’ll stick with her now. She wants to meet Dr. Redekop and thank him for performing the surgery that gave her a chance and was intrigued by my stories of the incredible nurses at VGH ICU and would like to meet them too. I’m not sure if any of this is possible but we’ll try to make it happen. The hardest part of this journey for Janet to understand is why so many people stepped up and did so much to support her. She’s still lacking confidence but is immensely grateful to all of you for all you’ve done and I believe you’ll be hearing more about that from Janet herself soon.

Praying that Janet has a most excellent sleep and a productive Monday.