These once a day blog updates are shaping up to be the norm as it appears the majority of my time with Janet will be mid afternoon through to bedtime. From what I can tell so far most of her heavy duty activities will be in the morning and early afternoon with things getting quieter by three o’clock. It’ll be a few weeks yet before the true pattern emerges but that’s what it looks like now.
Today started off busy as Sara had Janet in the shower when I arrived and it was after 9:30 by the time she was sitting at the breakfast table. Janet was offered two scrambled eggs for breakfast but chose to have only one. She gobbled it up and I know would have eaten more and I wish she would have as that’s one breakfast she enjoys. It was her call though.
Back in her room I was about to have her put away her laundry when Mary Lou hauled her away for a half hour Speech session. I declined attending as I want Janet to build a relationship with Mary Lou. Janet reported the session was boring but Mary Lou said it went well. She tried an app on her iPad that pops balloons every time you talk loud enough. She thinks this will be a good tool to get Janet’s volume raised and Janet was successful a few times. Mary Lou is concerned about the excessive saliva Janet has and I know Connie is too. We will be helping Janet become more aware of it. Not only did Janet put away her laundry, she also helped rearrange her clothes so it is easier for her to find them. That was a really good exercise to go through and she seemed to enjoy the challenge of remembering where things were and thinking about how to group them in a way that makes sense.
By the time we finished rearranging her stuff it was lunchtime. Garrett was all excited about his beef barley soup but it was a complete fail. I tried saving it by adding some carrot and broccoli and Janet ate a little of it then but I think I’ve spoiled her eating at home so much.
We made our way down to the gym after lunch with Brian and Rebecca promising to meet with Janet there a little later. I had time to give Janet a good stretch on the table mat and was finishing off a stretch of her hand when Brian and Rebecca came in. They spent over an hour with us talking wheelchair, accessible homes, Janet’s vision, the various equipment Janet can use in the gym and how daily activities will be incorporated into Janet’s workout plan. All this will come into better focus over the next couple of weeks. When asked about goals, Brian is confident Janet will become independent transferring from wheelchair to bed etc. and is hopeful she will be able to walk short distances, i.e. around the house. To gauge that possibility he had Janet sit on the edge of the table mat and hold onto a stripper’s (or fireman’s, depending on your gender) pole in front of her. On command Janet attempted to stand up and Brian acted as the muscle for her right leg. She managed to get up a fair ways both times she tried and was clearly frustrated each time that she couldn’t get all the way up. We all praised her effort and Brian was truly happy with her first attempt at that and hopeful he can get her standing relatively soon.
That was a busy day so far and being unsure of dinner I decided to take Janet home for a few hours for a change of pace and some food I knew she would eat. She played with Nash a lot, ate a good dinner followed by a bowl of fresh fruit and a relaxing conversation time. We headed back to Connect for bedtime in anticipation of a busy morning as Tez the PT has promised an early session with Janet.
Thankful for the productive day and praying for restoration of Janet’s ability to walk, use her right arm and hand, total restoration of her vision and the ability to talk loud all the time.