progress

Janet, A Success Story. October 21. #TSJ

Let’s start with the big news. Janet is coming home for good November 28th! It is becoming more and more obvious each day that Janet is losing her willingness to participate at Connect. She simply doesn’t want to be there anymore and is putting in the bare minimum of effort. After an earlier than usual phone call from Janet this morning, during which she sounded kinda down, I texted Brian and asked him if he thought that was a good date to bring her home. He concurred and Janet and I met with him and Tez this afternoon to make it official. They both had received reports from the staff that Janet was less cooperative lately and Tez says that her physical progress has slowed to the point where coming home a month “early” isn’t going to make much difference. He is confident that Janet will continue to improve, at a slow pace, and as long as we stay on top of the tone in her right hamstring she has a good chance of doing some decent walking. Janet is relieved to know there is now a firm date in place and will be counting down each day I’m sure. 37 as of Wednesday.

Nothing could overshadow that news of course but today was good for Janet in other ways too. She participated well at Games Night this evening and walked up and down the stairs in the process. I was able to convince her to do that knowing she’ll have to do similar at the preschool tomorrow. Chelsea invited Janet to read The Hallo-Wiener to her for practice and she started off great then had a really difficult time for the last half of the book. Hopefully that’s the bad read before the great one tomorrow. Janet’s dressing and undressing skills continue to improve and tonight I only had to help with her bra and lining up her PJ shorts so that she got her legs in the correct sides. The rest she did unassisted and quite quickly.

A lot is going to change over the next five weeks and I’m excited to get on with it. Janet is too and I pray she uses her remaining time at Connect to her fullest advantage.

Janet, A Success Story. July 29. #TSJ Shot on Goal

To Janet, lately, her days seem to be pretty routine and uninteresting. In the past I’ve mentioned the perceived slowness of her progress. That seems to have flipped recently as I can see improvements almost daily and Janet is having a tough time recognizing them. The first part of today was routine for Janet with the exemption of having to walk everywhere. That appears to be paying off as her first trip down the hall with me was faster than any of her walks yesterday. It then took every bit of convincing I had in me to get her to leave the sunshine and try some stairs before dinner. I insisted because I think this is the goal Janet can accomplish before all others and pretty quick. Her goal is to be able to walk up and down three steps using only a hand rail for assistance. After the long walk down the hall Janet approached the stairwell with trepidation, then, as soon as she saw the nice wide steps and the handrail she easily climbed the first two and with an extra effort made it up the third one. I then helped her turn and walk across to the other side so she could grab that handrail and try going back down. Janet admitted she’s scared about going down so I stood right in front of her and had a hand lightly on her back for reassurance. She made it but needs to overcome that fear before marking that goal as achieved. Today was a great first shot on goal!

After her morning workout Janet said she practiced her hand writing for about an hour. She’s not happy with her abilities in that area but again, I’m seeing notable improvements. Tonight was Games Night and Janet was her usual enthusiastic self. Actually she’s gotten more accepting of the event and does quite well for the first forty minutes or so then tires. To give you an idea of what Janet’s longest walk at Connect is I recorded this time lapse video of her walking back from Games Night to her room. It’s too fast to see any improvement in her technique but you can sure see how much more distance she can cover. In real time this took five and a half minutes.

Praying for a great sleep and for Janet to be confident doing all she is asked to do tomorrow.

Janet, A Success Story. July 15. #TSJ

To further prove the progress Janet is making I witnessed her make a phone call without any help at all using her iPhone. She methodically performed each step and successfully called me as I sat a few meters away from her. I haven’t been coaching her on the use of her phone much and she’s not getting many calls either so I’m not sure how she figured this out but even she was quite happy about it.

Happy was the word of the week for Games Night and the mood Janet was in all day I think. The exercises went well according to her and were completed before lunch. Jess took her for some routine blood work and Janet didn’t even complain about that, probably because it got her out of the air conditioning for awhile. Even her toileting went well today.

After her nap and setting the dinner table we sat outside and chatted for forty five minutes. Twenty minutes into that we were both sweating but Janet was determined not to go back in until she had to. She did go in for dinner then went right back out again after to warm up.

Games Night was the closest thing to unhappy for Janet today as everyone seemed a little off their game tonight. It was still good she went and the trip upstairs was a good walking workout. She asked me to help her walk to get her meds after that, I said no but I’d walk with her, and instead of refusing to go at all, Janet told me not to bother and off she went on her own. Love it!

Praying that Janet sleeps well tonight and has lots of energy for a productive Wednesday. She’s already excited about the house trip to The Asian Pear for dinner.

The Team Save Janet Report is Out! #TSJ #HomewardBound

Another day, another milestone. We had Janet’s team meeting this morning at Connect and in amongst the usual progress reports we discussed the transition home. That’s right, home. Sometime before the 24th of December Janet will be living at home full time! Exciting and scary. Exciting in so many ways, scary in that we have no idea what being at home full time looks like at this point. Janet continues to make progress and will likely do so over the next nine months or more and that makes it hard to plan for the amount and type of care she will need at home. The good part is there is a nine month window with which to work out all the details. For now, the focus is still on getting more activation from Janet’s right leg with an eye towards walking with/without a cane by June. The other goals set out in the meeting were to improve Janet’s reading and hand writing, improve her knowledge of the medications she takes and to gain independence in taking them. Janet was a full participant in today’s meeting and asserted herself well. High five!

To further demonstrate her progress Janet stood at the kitchen counter after the meeting and made herself a grilled cheese sandwich. She had minimal help from Jess in the process and even managed to turn herself around so she could grill the sandwich once she had built it.
JanetStandingGrilledCheese
As soon as lunch was done we took off to KGH to visit John. He seemed tired and not quite his positive self today but was happy to see us. Please keep him in your prayers. As is common with hospital visits Janet was in celebrity mode. First up was Jane her Occupational Therapist from 4B. Janet didn’t remember her but was excited to tell Jane how well she is doing. Jane made a very clear point to Janet how thrilled she was to see her and how far she has progressed also saying it’s important and exciting for those that work with patients like Janet to see the progress after such a long time. All good for Janet to hear. Up on 4 East we saw Emma, Janet’s first nurse in Rehab. Same sort of feedback and encouragement from her and again, Janet was proudly reporting on her progress. Love it.

That was a very busy first part of the day and Janet was out like a light as soon as we got home. I had to wake her once I had dinner ready just in time to eat and get to SheLife. It took her a while to get her energy back and I was a little concerned with how she’d manage the session. Heidi excitedly informed that Janet prayed out loud tonight for the first time and everyone at her table could hear her too. Janet said it went well but she isn’t understanding any of what the video segments are supposed to be teaching. That’s OK because the social aspect is far more important for her anyways, proven by how her ability to participate has increased. Janet agreed and added “they all really like me being there” in an almost Sally Field at the Oscars kind of way. Cute.

This marks the end of The Team Save Janet Report as we aren’t in “save” mode any longer. The “team” still exists I guess but really only figuratively. Tomorrow, I hope to have re named this blog site to something that reflects Janet’s determination, hard work, perseverance and inspirational qualities as we work our way towards coming home. If you have any suggestions, I’m all ears, or eyes.

Praying for a solid night of sleep and a productive Thursday and thanking Jesus for His many blessings.