As I drove to Connect this afternoon I was trying to analyze Janet’s progress lately. I was having trouble remembering any recent milestones or notable changes and was a little concerned. Janet proved me wrong within minutes of my arrival. She had been “sleeping” for almost an hour so I went in and of course she was wide awake and wanting to get up. In the spirit of promoting independence I stood back and let her go. Not only did she get to a sitting position quickly she motioned as if to get up and walk over to get her sandals. Confirming thats what she wanted to do I told her to go ahead. With a push from her left arm on the bed and a lean forward over her knees, she stood up without using the stripper pole! I had heard of this happening but never witnessed it until today. Janet was very happy with herself for doing that but upset she couldn’t walk to get her sandals. One thing at a time. The independence continued in the bathroom with Janet soloing in brake application, foot rest removal, standing and sitting etc. The only help she needed was in pulling down and then up her pants. Its kind of fun to observe and coach as opposed to aiding all the time and I can tell Janet is gaining confidence in doing these things.
Jess and I talked a little about Janet’s independence and she mentioned how she had caught Janet wheeled up to her desk looking at her Speech workbook all on her own. Janet had done the same today with the book we are reading saying she tried reading by herself but couldn’t make sense of it. Her “just get it done” attitude towards the gym continues and she did a great job on the Shuttle and had a good stretch with Curtis. With a few minutes to wait for dinner we read some Not a Fan and Janet continues to be intrigued by it and we had a good discussion about what we’ve read.
The dinner table was lively thanks to Kieran and Janet was cooperative in getting into the Standing Frame afterwards. I’ve noticed the last couple of days being able to get Janet really straight and her tolerance has increased. Usually as Botox wears off her tolerance diminishes too but not now it seems. Maybe we’re making some progress on those hamstrings?
We hadn’t played any iPad games for a while and since it was thunder storming outside I decided to see what she could do. Was I surprised! Janet has improved so much in naming pictures of things and in her math skills I could hardly believe it and I could see the confidence in her face as she answered question after question. She still needs a verbal clue for a lot of the pictures but she used to need every clue possible. With the math games she was almost perfect and was great at tapping and dragging on the iPad as well. Fun!
The evening ended with some YouTube laughs and Janet doing a very independent bedtime routine. I feel blessed to have hung out with her today and pray for continued progress.