Peg-Lyte

Anniversary. KGH revisited. #TSJ

Janet was at it early this morning working out with Tez doing some standing and walking at the parallel bars. Janet still says it’s difficult but she isn’t quite as emotional about it all as before. She still has not had a BM even with the Peg-Lyte so nurse Jen recommended a trip back to ER and that was suggested by Janet’s GP as well. I had hoped to delay the return until tomorrow in part because today is the one year anniversary of Janet’s aneurysm and the last place I wanted her to be was the hospital. However it was the right thing to do.

Lorne took Janet from Connect to KGH and I met them there, saving me a trip out there and back. Janet was in good spirits and seemed OK with the idea and prepared to wait. The ER wasn’t nearly as busy today so I had high hopes we’d be in and out pretty quick. Last time was five hours, today two and a half. Dr. Eppler saw Janet today and he confirmed that it was good we brought Janet back in but at the same time he wasn’t ready to bring out the dynamite yet. He consulted with Dr. Agnew, the GI, and he recommended a drug that Dr. Eppler had never heard of and the KGH pharmacy didn’t have in stock. He seemed super confident in it though and also ordered Janet to be on a slightly different formulation of the Peg-Lyte she’s been drinking and that should help Janet stay regular once she gets cleared out. He gave Janet a dose of it as we left and she drank it quickly on the way back to Connect. The plan now is to try this new drug along with the new Peg-Lyte and if there’s no result soon Janet will go back to the ER for the dynamite treatment.

It was dinner time when we got to Connect and Janet ate heartily. Not sure where all the food is going but she seems fine. Garrett negotiated a bike ride from Janet afterwards and she performed her best ever. The deal was more than twenty minutes but less than thirty. I went in to see how she was doing and she just eclipsed the twenty five minute mark. I didn’t let her know I was there and she continued until she went over twenty eight minutes. Garrett and I showered her with praise hoping it sinks in that she is improving. The praise continued as Janet took a much needed bio break and produced a very small BM. Something is better than nothing and I credit the long bike ride with moving things along a little.

Janet was quite insistent that the rest of the evening be fun and she elected to lounge while watching basketball in the living room. That was a perfect way to end another busy yet productive day for her.

I thought about a lot of different ways to acknowledge this anniversary. A video timeline or a re posting of key events along the way. A photo montage showing the very obvious progress Janet has made or having her say stuff on camera today. As I thought about it and talked about it with her it became clear that celebrating this day would be inappropriate. Janet still gets very emotional thinking about the past year and even though she doesn’t remember much it still brings tears. I don’t want to generate more tears. I also realized that the anniversary probably means more to those of us who have been alongside Janet during this journey than it does to her. So in that regard I want to thank all of Team Save Janet for your continued prayers, visits, virtual visits, care packages and words of encouragement. Janet and I would not have managed to get this far this well without all of you. Looking back at how much has changed in the last year I have nothing but optomism for what the next year holds. God continues to place the right people in our lives at the right time and through His grace all will be well.

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Waiting Game. A bit of a long day again for Janet. #TSJ

All reports this morning had Janet feeling good and not bleeding. She showered and ate breakfast and seemed ready for action. Apparently Connect has a policy whereby they cannot administer anything to a resident without a doctor’s prescription or order. The Peg-Lyte I was given at KGH yesterday did not come with any paperwork so the staff were unable to get Janet started on it this morning. Lorne volunteered to take Janet to the nearby walk in clinic to get a doctor’s note and over two hours later they returned. Successful but only after waiting a ridiculous amount of time for something as silly as that. In the last two days Janet has spent over seven hours waiting and it clearly affected her. She was hungry when she got back to Connect and devoured an apple as it was too close to dinner for anything else. Happy hour consisted of her first 480ml glass of Peg-Lyte and I have to praise her for drinking it as fast as she did. There were lots of funny faces but she was persistent and had an empty glass a half hour after starting. High five!

There was no immediate effect from the Peg-Lyte except for a boost in hydration. I don’t think Janet’s ever drank that much of anything that fast. It may have affected her head as well because she agreed to go to the gym and ride the bike before dinner. When we got there she was surprised that she was getting on “that bike”, she said her bike “is out there somewhere”, pointing outside. I got her set up and she ended up doing about twenty two minutes with a few stops along the way. Considering the day she was having I thought she did very well.

It’s Derek’s birthday today and he requested a roast beef dinner complete with Yorkshire Pudding for dinner tonight. The Yorkshire Pudding was a challenge for the staff but they pulled together and got it done. Janet enjoyed it as much as Derek did but the highlight was the cake Jess made. Yummy. I’ve been asking Janet if she wanted to try standing at the parallel bars for a while now, always getting a no. Tonight she agreed as long as I did it with her so up to the second floor we went. I demonstrated what I wanted her to do, which is pull up perpendicular to the bars, plant her feet, scoot forward in her chair and use her left arm to pull herself up to a standing position. She needed a couple of attempts and a kick start from me but on the third try she was able to stand pretty tall and with me barely touching her to keep her from falling backwards. I could really sense the effort in her legs that time and for once she didn’t cry when she accomplished something. I’m going to try and do this everyday with her now.

After all that it was time for lounging to watch some basketball. Janet’s right leg remains nice and loose but I sense an increase in the tightness of her left leg. Could just be the lack of activity the last few days so hopefully we can hot tub at home and hit the pool on Monday to get her going strong again. All the talk around Connect is about the Spring Fling tomorrow but Janet is still not sure about the whole thing. Jess promised to put her to work helping with pancakes in the morning and I know Janet will like that. Praying for a good sleep tonight and lots of energy tomorrow.