Once again Janet was in bed and wide awake when I got to Connect. This time she was awake not because she wasn’t tired but I think because she was upset. Tez had worked with her at the parallel bars this afternoon and according to Janet it had not gone well and it wasn’t the usual “it was terrible” this was legit “it was bad”. Since she clearly wasn’t going to sleep I suggested she get up and we go find Tez and see if we can help her feel better about it. She agreed and we found Tez in his office. He was really good towards Janet who was awesome in stating her feelings about the workout and it all boiled down to Janet’s lack of confidence preventing her from doing the things she needs to do in order to reach her goal. That goal remains, walking by June, and is totally realistic but Janet needs to buckle down and do lots of difficult and un-fun work. Each time Tez praised her on something she asked him “really?” or would look at me and I would affirm what Tez said. I don’t understand the self doubt, I know it was in her pre aneurysm, but why is it so prominent now and why when she has so much evidence showing her how well she’s doing does she lack confidence to such a degree that she gives a half hearted effort or worse. Tez laid it out on the table for Janet today, work hard or stay in the wheelchair. Janet says she doesn’t want to stay in the wheelchair and it remains to be seen how hard she’s willing to work. If any of you have suggestions as to how to build her confidence and or can spend some time to encourage her please let us know.
Janet felt better after talking to Tez and was able to have a good Skype chat with Heather just before dinner. I had to prompt her occasionally but it was a much better conversation than last time. Based on the Tez talk Janet agreed to a Shuttle session after dinner and did quite well. There was good effort there along with some whining which I don’t think will go away ever and that’s fine as long as the work gets done.
Chelsea invited Janet to help her make chocolate cupcakes this evening and Janet was all over that idea. It was hard and messy work with Janet doing a lot of mixing and reading instructions out loud. It took all evening, right up until bedtime, and was well worth it.
We read some Long Walk to Freedom before Janet fell asleep. She was even asleep as she mumbled goodnight to me. Praying for a night of deep and healing sleep that allows Janet to have a productive and confidence building Friday. We are also praying for John the sing along man as we found out tonight he is in hospital and not doing “particularly well”. We pray for a speedy return to health.
Janet’s day got off to a busy start as Tez got her into the walking sling as she stood at the parallel bars. He showed me some video of their session and I can see why Janet said it was very difficult. She was doing all the things we do in the pool but without the support of the water. The sling supports her of course but it’s a totally different sensation, much more real I think. Janet did very well and hopefully will use this as a way to realize how well she is doing.
I got to Connect this afternoon just as John was wrapping up his sing along session with Janet. They both seemed to be having fun and they gave me a little demonstration before calling it a day and Janet was certainly taking a leading role and singing well but she still needs to turn up her volume and keep her throat clear. It was nice to see her smiling as she does with John.
I convinced Janet to have a little nap after her sing along session as long as I stayed in the room with her. She didn’t sleep much and each time I tried to sneak out she opened her eyes so after an hour I just got her up. It was time for our meeting with wheelchair man anyways so off we went to meet Brian and Jared. It was a very productive meeting with Jared making what I think will be some of the last modifications to Janet’s chair before we strike a deal to buy one. The improvements were noticeable right away as Janet was able to clear some bumps she had difficulty with previously.
Next up was the weekly Skype chat with Mary/Gaga then a trip to the kitchen to see how dinner was doing. It was well under control so Garrett invited Janet to the gym for a bike ride. I think we’ve made a little progress as far as Janet’s willingness to go to the gym goes. She was quite adamant at the start that she wasn’t going but after being reminded that the bike is helping make her legs stronger she agreed to go “as long as that’s what it is”. I’m hopeful she is starting to realize what each exercise does for her and that should help her see the benefits of each more clearly. Garrett reported a successful ride with Janet’s goal being twenty minutes and she stopped on her own at 20:09. She’s smarter than we sometimes think.
Rather than put her in lounging mode after dinner Garrett brought out the standing frame and Janet was able to stand pretty nice and tall for more than twenty minutes while watching some basketball.
There is a Keek of me “walking” her where you can get a better idea of how she’s standing. @larrylatour Her habit of staying up late has not diminished at all and she was quite alert as we watched the election results with Bob and Garrett until way past her recommended bed time.
The biggest concern with Janet right now continues to be the lack of bowel movements. It’s been over a week now and the Peg-Lyte clearly isn’t having an effect at all. If nothing happens by Thursday morning I’ll take her back to the ER so they can dynamite her.
Praying for a good sleep tonight, success in the bathroom tomorrow morning and lots of energy for an active Wednesday.
All reports this morning had Janet feeling good and not bleeding. She showered and ate breakfast and seemed ready for action. Apparently Connect has a policy whereby they cannot administer anything to a resident without a doctor’s prescription or order. The Peg-Lyte I was given at KGH yesterday did not come with any paperwork so the staff were unable to get Janet started on it this morning. Lorne volunteered to take Janet to the nearby walk in clinic to get a doctor’s note and over two hours later they returned. Successful but only after waiting a ridiculous amount of time for something as silly as that. In the last two days Janet has spent over seven hours waiting and it clearly affected her. She was hungry when she got back to Connect and devoured an apple as it was too close to dinner for anything else. Happy hour consisted of her first 480ml glass of Peg-Lyte and I have to praise her for drinking it as fast as she did. There were lots of funny faces but she was persistent and had an empty glass a half hour after starting. High five!
There was no immediate effect from the Peg-Lyte except for a boost in hydration. I don’t think Janet’s ever drank that much of anything that fast. It may have affected her head as well because she agreed to go to the gym and ride the bike before dinner. When we got there she was surprised that she was getting on “that bike”, she said her bike “is out there somewhere”, pointing outside. I got her set up and she ended up doing about twenty two minutes with a few stops along the way. Considering the day she was having I thought she did very well.
It’s Derek’s birthday today and he requested a roast beef dinner complete with Yorkshire Pudding for dinner tonight. The Yorkshire Pudding was a challenge for the staff but they pulled together and got it done. Janet enjoyed it as much as Derek did but the highlight was the cake Jess made. Yummy. I’ve been asking Janet if she wanted to try standing at the parallel bars for a while now, always getting a no. Tonight she agreed as long as I did it with her so up to the second floor we went. I demonstrated what I wanted her to do, which is pull up perpendicular to the bars, plant her feet, scoot forward in her chair and use her left arm to pull herself up to a standing position. She needed a couple of attempts and a kick start from me but on the third try she was able to stand pretty tall and with me barely touching her to keep her from falling backwards. I could really sense the effort in her legs that time and for once she didn’t cry when she accomplished something. I’m going to try and do this everyday with her now.
After all that it was time for lounging to watch some basketball. Janet’s right leg remains nice and loose but I sense an increase in the tightness of her left leg. Could just be the lack of activity the last few days so hopefully we can hot tub at home and hit the pool on Monday to get her going strong again. All the talk around Connect is about the Spring Fling tomorrow but Janet is still not sure about the whole thing. Jess promised to put her to work helping with pancakes in the morning and I know Janet will like that. Praying for a good sleep tonight and lots of energy tomorrow.