I got a really nice surprise when I arrived at Connect this morning. Bridgette from Janet’s 4B days was working in Janet’s house for the day and she and Garrett had Janet up early, fed her breakfast and had her to the gym. All by 9:30. Janet was all smiles as she was heading to the bathroom with Bridgette when I got there and it was apparent that they were getting along despite Janet telling me later she didn’t remember her. Janet was able to present Bridgette with a happy face lollypop on our way out and that may have contributed to Janet’s laundry being done and put away when we got back tonight. Or maybe it was just Bridgette being the good nurse she is.
By the time we got home the Seahawks were down 10-0 so we quickly got our jerseys and as many other blue things we could find on to try and start a comeback. They did indeed come back but couldn’t close it out. I’m excited for next year as this young team learned a lot in those two playoff games. Janet watched quite a bit of the game but she needs a lot of coaching to understand whats going on. She ate a football game sized lunch of soup, grilled cheese, dill pickle, chips and a bowl of fresh fruit. I managed to give her a little leg stretch before we Skyped Leslie. Her legs seemed rather tight today but she still has good movement in both and made a decent attempt at standing from the edge of our bed. During the call with Leslie, Janet was having a little trouble being loud and expressing her own thoughts but it was a decent conversation with Janet calling it off as she was getting tired. Nice to see her recognizing that and doing something about it. Now if she would only agree to an afternoon rest time.
We played match the Sesame Street characters a couple of times with Janet struggling with anything on her right and really struggling with the game in general the second time around. I need to give her a break in between. Spelling Bee Bingo was next and although we tied both games Janet really doesn’t understand this game yet and her vision is an issue as well. Dinner was in the football theme again for Janet. Two bowls of a casserole Suzanne gave us along with a bunch of fresh veggies then banana bread followed closely by hot cinnamon bread freshly baked by our awesome neighbor Barb.
A pretty good day despite the Seahawks loss. Janet seemed content to be home and judging by the amount she ate today must be feeling pretty good. I am noticing a little more difficulty in stringing together proper words to form sentences. She seems to be using a little more Klingon these days or words that have nothing to do with what she’s talking about. When Kiko and Joel dropped by this evening Janet’s response to a question from Kiko was to repeat what Kiko had asked her. She has been like that when she is tired but I think I’m seeing it more often now. Could still be recovering from the seizures or it could be the drugs or it could be me looking for the effects of both those. Time will tell.
Praying for rest and healing and a productive day of recovery tomorrow.
Dr. Miller visited Janet first thing this morning then came into the gym to say hi when I was working with Janet there after breakfast. He said he was truly impressed with how she has improved and stated “this is the best I’ve ever seen her”. He was a little unsure of what to expect having heard about the seizures but agreed that she has bounced back really well. I asked him about the Dilatin and its’ side effects. He understands my concern and advised me to keep an eye on Janet over the next couple of weeks to see if there are any signs of excess confusion or other cognitive impairments. There are other drugs that could be used as anticonvulsants but they are not necessarily better and all drugs have side effects. He cautioned that side effects don’t appear in everyone so just watch for now and see what happens.
Our workout went quite well with Janet getting herself on her tummy this time, allowing for a decent hamstring stretch. I’m not seeing any real change in the severity of the tone in her legs but her right arm and shoulder seem to be improving. Despite her reluctance I had her use the stripper pole again and she performed her best standing yet. She got much straighter than yesterday and was able to let go of the pole and hold my shoulder so that more weight was on her legs. She still stands on her tippy toes but I’m confident that with time and more weight bearing through her legs her ankles will loosen up. The range is still there so we just need for those muscles to know when to turn off. I plan on demonstrating Janet standing to Tez as soon as possible and asking him to get her “walking” in the parallel bars soon.
With the workout done we rushed off for an appointment to view a condo downtown. I wanted to see what 1500 square feet looks and feels like to live in. It felt a little small but I think its doable with the right floor plan and the unit we saw certainly did not have the right plan at all. The realtor will keep an eye out for us.
At home it was time for a real food lunch then some NFL playoff football while we waited for two different people to stop by to look at Cam’s car he is trying to sell. I think we had success by the end of the day so come Monday there may be one less vehicle in our driveway. I used our waiting time to update Janet’s nail polish to Seahawks blue in readiness for the big game tomorrow. I figured she deserved a reward for sitting still so long while I did her nails so I offered her a pop. As soon as I mentioned we have Fresca, she smiled and rather mischievously said “that would be really nice”. Finally a cold drink she likes!. For dinner we enjoyed an unauthorized chicken dish that Suzanne had kindly dropped off for us then we rushed off to church so we can watch the Seahawks game tomorrow as it starts at the ridiculous time of 10am. Not sure if that’s the right thing to do but Janet did enjoy the service and I commented to her that unlike before her illness, she is liking the music parts of church more than the talking parts. She smiled and shrugged her shoulders.
On our return to Connect I had Janet put away her stuff, she is starting to figure out where some things go and she is very good at taking her shoes off now. Once in bed we read some of Slow Dance after I reassured her we had not finished it already. Janet took about ten minutes to ask me a really important question that she “needs to know the answer now” but never made it clear and she eventually forgot the whole thing. It started out with “how do we get to Washington to…” and evolved into “what’s the difference between Strawberry one and…” I’m open to suggestions if anyone has any. By the time I said goodnight she was closing her eyes and had a smile on her face that makes it really hard for me to leave.
Praying for rest and healing, a fun day tomorrow, and a Seahawks win.
Today started off with the usual recap of the previous day. Janet remembered going to Toys R Us and house hunting but she really could only talk about the pizzas we made last night. She smiled every time she mentioned it. All dressed in blue for Seahawks game day we headed off to church. Janet really enjoyed the music and I let her have the communion bread this time.
Janet played with Nash while I made lunch once we got home then we made a quick Skype call to Heather before donning our Seahawks jerseys and Skypeing almost all the rest of the family who were gathered at Leslie and Gavin’s for Ukrainian Christmas dinner. Nice to see Rick, Mike and Karen, Karleigh and Madeline make their Skype debut.
The rest of the afternoon was pretty quiet for once. We kicked back and watched a really entertaining football game and Janet even closed her eyes for a couple of twenty minute rest sessions. It was nice to have her just chilling so I gave her the day off from stretching and let her relax. Once again that seemed to really spur her appetite as she ate a large bowl of pasta for dinner and two bowls of fresh fruit and a couple of Christmas squares for dessert. Even she knew she was eating a lot as she laughed when she ordered the second bowl of fruit and the second square.
Before getting ready to head back to Connect we looked at the homes that the realtor thought might suit us. None jump out as ones we would buy but I did request a look at one just to set a base line for future reference. Janet seems a little indifferent to the idea of moving and is enjoying looking at the various potential properties. I expected her attachment to this house to be greater than it is but I guess her memory is rather incomplete and she does find it a challenge to move around the place. As long as she is part of the moving process I think she will be happy.
Praying for a restful and healing night and an informative visit to the doctor tomorrow.
A better start to the day for Janet than yesterday. She had two eggs for breakfast and then a nice shower and was all smiles as I met her coming out of the shower.
The gym was busy so we cut our visit there short and headed out for the day. First stop was Toys R Us to see if we could find some board games to play together. Chutes and Ladders was an obvious first choice and the Dora the Explorer version made it even more exciting. We also found a memory card game with a Sesame Street theme and a Spelling Bee Bingo game that looks like fun. All these games in theory will be good brain exercise for Janet and all in different ways. I’m glad we found some to try but was disappointed with Toys R Us. Quite the dump, reminded me of Zellers.
Despite the snow we held to our plan of doing a little house hunting and went downtown to cruise by some of the potential buildings. On the way we noticed there was a realtor in at the Remax Kelowna office so we stopped in. That franchise is owned by Cliff and Barb from KGH Rehab so I felt OK going in there knowing we are just kicking tires right now. The agent on duty was very nice and has already emailed me a list of potential properties for us so I guess the game is on.
At home it was time for lunch and Janet was all excited to try her first grilled cheese sandwich. I made sure it was toasted really well as Connie has mentioned bread is a big no no. Janet really enjoyed the sandwich and accompanying dill pickle and surprisingly added some potato chips to her plate. Never would have done that before. We watched a little football before Skypeing Leslie. Janet wasn’t too loud but did OK considering it had already been a busy day and she had not had a quiet time. She did have a bit of a rest after the chat with Leslie as I gave her a little stretch.
Since we are breaking all the food rules I decided to go for broke and have Janet and I make our own pizzas tonight. It was really fun helping her build hers and she devoured it faster than she would have before. I even let her have a glass of Pepsi with the pizza but she actually did not like it and was adamant there was “booze” in it. The little of it that she did drink she handled just fine as she did all the other food she ate today. My confidence is high for her swallowing X-ray.
Janet faded pretty rapidly after dinner so I quickly shoveled a path to the car and we went back to Connect and got her into bed. Another solid day filled with firsts. Praying for a restful and healing night and a productive day tomorrow.