A Moving Monday. Janet rebounds a little. #TSJ

Hoping to get answers to Janet’s lethargy and pain I called her doctor’s office first thing this morning and got the impression I wasn’t going to be able to speak to her as she was booked solid. The lab results had arrived and were just faxed to Connect before I called so that was my next call. Jess reported Janet was OK, oddly complaining about sitting up whereas yesterday the complaints came about laying down. She was slowly drinking a smoothy and seemed relatively fine but Jess had no intention of taking her to the gym or anything like that. Nurse Jen and I talked about the lab results which indicate that Janet’s Dilantin levels are within the therapeutic range but at the low end of it. I’m surprised by that and even more concerned now about Janet’s tolerance for that drug. There are a number of things that could be affecting her though, bladder infection and dehydration primarily. Jess just missed a chance at a urine sample before I got in this afternoon and will try again in the morning and as far as the dehydration goes I don’t think Janet is but she can certainly drink more and maybe needs to do so to overcome the effects of the Dilantin.

Jess had just put Janet to bed when I arrived about 1:30 this afternoon saying the first part of the day had gone fairly well and Janet ate a decent lunch before nap time. She was awake when I went into her room and we had a brief chat before nurse Jen came in to examine her a little. Janet’s vitals are normal and there is no evidence of anything wrong other than she’s a little pale and complains of pain from time to time. The problem is she indicates the pain is in a different part of her body every time you ask her. One area that does get mentioned a little more than others is her left butt cheek. I can’t trigger a pain response there but she does touch it sometimes when asked to show where the pain is.

Jen left just after two and Janet was snoring minutes later and continued till 3:30 when Bob stuck his head in the door on his start of shift rounds. Janet fell back to sleep quickly and save for one more brief eye opening slept loudly till 4:50. It took a little while for her to get her speech going but once up in a sitting position started to come around a little quicker. By the time we were in the kitchen for dinner she was pretty bright and happily started drinking her water then ate a large dinner complete with one of Sandrine’s macaron for dessert. Thanks Kiko and Brenda!

I tried getting Janet to make her March Madness picks the way she used to, by choosing the team with the nicest uniforms, but I couldn’t find a website that made it easy to do that so I just had her pick the name of the team she liked best for each match up and she ended up picking Indiana as her winner. A pretty good choice I think. It was movie night in the neighboring house and Janet agreed to go over there with me to watch for a while. Unfortunately the movie was one of the Pirates of the Caribbean sequels which Janet found to be very uninteresting but she enjoyed being there with the other residents and hung in for about an hour. I gave her a bio break once we got to her room and she thankfully and surprisingly had a bowel movement. I was way more happy about it than she was and she says she wasn’t feeling any better because of it. Still a really good sign and hopefully Janet will realize some benefit by the morning. We read some news articles on the iPad for a while after that. I asked her to read and she would get two or three words at a time but no more and was starting to lose her speech and agreed to go to bed at 8:45. I was pleasantly surprised at how long she lasted tonight and by her increased brightness and I must credit the long nap for that. To me Janet is still showing signs of an intolerance to Dilantin and there probably is something else going on but today was much better than yesterday.

Janet’s doctor never returned my call but I’m confident she will tomorrow and I plan on taking Janet in to see her Thursday after swimming as long as she doesn’t get any worse. It certainly appears she’s getting better but we still don’t know the cause of all this. Praying for another restful night and an even brighter day tomorrow.

First Better Than Second. A day at home. #TSJ

The energy Janet had at last night’s dinner party carried over into this morning as she woke up way earlier than I expected. 7:30! I was fine with that as I was sort of up anyways in case I was able to connect with a friend who’s traveling in China right now. That didn’t work out but Janet and I got off to a good and early start.

Over a long breakfast we sorted through her massive mess of recipes in advance of our possible move. A lot of her collection were pages ripped from magazines that had never been looked at since the first time so it was easy to throw a lot of stuff out. I let her call the shots on all the books so we are keeping way more than I would have but we also found some recipes I had been looking for recently and some we had totally forgotten about. We now have a collection that can be organized and used as opposed to just taking up space. Janet was surprisingly determined to get this job done passing on a couple opportunities to take a break or do something else.

Between cookbook purging and all the usual morning tasks, noon arrived quickly and with obvious signs of a weather change I convinced Janet we should go for a walk then or we may not get a chance. It was not as nice as it was yesterday but still felt good to get some fresh air. Janet did a great job of “driving” Nash, having to reign him in on his leash a few times. Our lunchtime entertainment was some NCAA basketball then Janet was clearly ready for a nap.

Once again nap time was interrupted by the barking dog but only once and I think Janet had a good rest but as the day wore on I could see she wasn’t going to have the stamina she did yesterday. She was up in time to watch a pretty impressive hail storm outside that quickly made the pool cover white. It was fun to watch the transition and interesting to watch Janet take it all in. She was kind of groggy the rest of the evening, needing help to eat dinner and not talking very well. There was a nice burst of energy when she chose to make a play list of songs to sing with John. I was surprised she wanted to do that and as we sat at the computer with a glass of pop she smiled and sang along to quite a few songs that I will put on her iPod for John to play with her. Of course she had enough energy to eat some ice cream before bed but just barely as she was asleep before I laid her down once we had her pj’s on.

I suspect it took a while for the late night yesterday to catch up with her and I hope that is what’s behind the fast fade over the second half of the day. Praying for a solid night’s sleep that provides lots of energy for an active day tomorrow.