Oops #TSJ

Mary Lou was quite pleased with Janet’s speech abilities and participation level in their session this morning. I was surprised as Janet seemed to be quiet and talking a lot of Klingon with me. I came back to her room just as they were wrapping up and Mary Lou had Janet sing Row Row Row Your Boat for me and she did so nice and loud and clear.

Lunch was a bowl of vegetable soup and some med laced fruit lax. I was impressed with Janet’s ability to eat after the shape she was in yesterday. We then headed back to her room to wait for a visit from Brian the OT. Garret brought Janet’s laundry in while we were waiting so I had Janet try and put it away. She was definitely more confused than normal but was very willing to try and put things in the right places. Brian arrived in the middle of all this and watched Janet finish the job. We decided it would be good to label the drawers and cupboards to help Janet remember where things are. Brian then spent about twenty minutes with Janet trying to assess what her understanding of her situation is. He found it difficult to comprehend Janet today and I attribute that to still being in recovery mode from yesterday and hoping its not the anti seizure med. One of the side effects is confusion so we’ll have to see how this plays out over the next few weeks. Brian also commented on Janet’s vision challenges. I had planned on meeting with our eye doctor yesterday but that appointment got preempted so as long as Janet remains stable I will try and meet with him next week to discuss a vision test. I actual left to do some work around the house before Brian did his thing with Janet and before I left we agreed that he would put her into nap mode when he was done. We discussed getting rid of the hospital bed and decided that we would start eliminating bed rails to see if Janet can safely be in bed without them. Brian tucked her in and left the two lower rails down. He left the room at 2:10, Garret checked on Janet at 2:45, she was in bed but not asleep. Garret walked past ten minutes later and Janet was on the floor. Houdieno returns! She was fine, just a little scared and we had a good talk about it when I returned and Janet seems to think she can get out of bed whenever she wants to. She later demonstrated a similar feeling towards her wheelchair as she made two good efforts at getting out of it after dinner. Apparently our idea of a regular bed is a little premature. Oops.

Janet was getting up from her nap, she eventually did have one, when I returned at 4:30. She was being helped by Curtis who used a straight on pivot move to get Janet from bed to chair. I didn’t think it would work as it requires Janet to take a lot of the weight, she did it really well! She was also talking much clearer and I was able to get her to agree it was because she had a rest. One day that will really sink in. Dinner was a bowl of Clint’s chili that he made for everyone today. Clint is in his late twenties and has been a resident at Connect for seven months. He is very mobile and loves to cook so he runs the kitchen apparently. The chili was good. Suzanne stopped by for a visit and brought another care package with her. Thanks! Janet and her and a nice chat with Janet talking reasonably well considering the time of day and what she has been through. We said goodnight to Suzanne, made Janet’s bed and did all the other bedtime prep stuff before climbing in to start reading a book the Dr. Miller lent to us. Slow Dance by Bonnie Sher Klein, a stroke survivor who was just named to The Order of Canada. Interesting read so far.

Praying for more good rest and healing tonight and an active day of learning tomorrow.

Only the Beginning

Still in holiday mode Janet and I had a very relaxing afternoon. Lunch was a bowl of pasta and cheese that Janet gobbled up after helping to set the table. When she is eating food she likes I no longer need to prompt her to eat like I did before, now I have to tell her to slow down.

The only way I could convince her to have some rest time was to offer her the chance at laying on the sofa bed downstairs to watch some of the Rose Bowl. With the fire on it was nice and cozy and she at least got an hours quiet time even though she never closed her eyes and was quite chatty the whole time. We Skyped Mary/Gaga and had a brief but loud chat with her and got to see David and his family who are visiting and attempting to do some skiing. A bonus opportunity for a rest arose when Janet agreed to a little stretching action. No change in the spasticity but Janet did have another hour of quiet time and it seemed to give her a nice burst of energy for the rest of the day. It also gave her an appetite as she totally cleaned her dinner plate of chicken strips, fries and baby carrots followed by ice cream. She was heavier for sure as I carried her to the car to go back to Connect.

Once in bed we finished off Anne 2 and agreed it was a good book with an abrupt end. Clearly a set up for the next one. I said goodnight with the promise of seeing her after breakfast and plans to spend the day at Connect tomorrow. I’m hoping the coaches (therapists) are around tomorrow and we can start developing Janet’s program. Praying for a restful night and a day of learning tomorrow.