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Janet, A Success Story. November 19. #TSJ #homesweethome

Nine hundred eighteen days ago Janet suffered a ruptured brain aneurysm that kept her in hospital then a rehab facility until today.
IMG_0448 That was then. August 2012

This is now!

This is now!

Janet is home!

I asked Janet if she was thinking of today as a day of lasts or a day of firsts and she quickly responded lasts. She couldn’t wait to get out of Connect and reminded me throughout the day that we don’t have to do this anymore and don’t have to do that anymore. There were lots of fist pumps, whoo hoo’s and huge smiles. Goodbyes are difficult for me so I was glad that Janet handled those today. I’ll be better at it next week when we go back for a farewell lunch. Janet gave everyone a nice hug and thank you as we departed this afternoon with the only emotion being happiness although she did admit in the car that it was a little sad to say goodbye as “they are good people”. Indeed.

This was not the start of any vacation for Janet, we had an appointment with Alyssa at H2O right after a quick lunch and she put Janet through a little fitness assessment so she can start building a program for her. Janet seems impressed with the facility and likes Alyssa so for the time being it looks like working out there a few times a week will be fine and may even include some pool time. Janet has agreed to try that once.

Tuckered out after the emotion of her last day at Connect followed by the fitness assessment Janet enjoyed a good nap before dinner then we took off for the church and the last SheLife session until the new year. Janet is grateful for the love and support she gets from her table mates and took a lot of compliments about her baptism testimonial tonight. She came away from the evening feeling pretty good and was quick to remind me that we were going home not back to Connect. Deserving of a treat, Janet stayed up a little late to watch The Voice and have some ice cream. Now she is snuggled up in her own bed in her own home ready to begin a new chapter.

Praying for a restful night of sleep and an energetic Thursday.

Janet, A Success Story. November 18. #TSJ

Homeward Bound!

This morning, Janet successfully picked up Garrett’s phone from the floor thereby earning herself an early exit from Connect. Tomorrow Janet is moving home!

Needless to say she is very excited, as am I, and most of our time together today was spent getting ready for her departure. Brian stopped by right after nap time and Janet attempted to show him her picking up technique but wasn’t quite able to get it so she will make another attempt in the morning at making it official. The result won’t affect her coming home as that’s already been awarded to her so there’s no pressure.

While we were packing we had a surprise visit from our friend John. He finally got into the care facility he was hoping for just down the road from Connect and seems really happy about it. His move plays into Janet’s plan to help Debra with her Speech quite well as now we can come out and visit John at the same time. Janet asked Debra this morning if she’d like to do a little singing with her and she though that was a great idea. I don’t think Janet will want to start going back to Connect for that too soon but she is quite excited about helping Debra out.

Earlier in the day Tez had Janet do two six minute walking tests. The first one was using her cane and Janet went 95 meters. The second was freestyle and Janet made it 101 meters that time. She is very pleased to have made it over a hundred and that is a nice result to take to H2O for the next phase of her physio therapy.

Packing her stuff and removing decorations from Janet’s room was a bigger project than anticipated but she was very happy to help and excitedly told Heather on the phone that everything was off the walls. She did a great job separating things and even managed to donate a couple of items instead of throwing them out.

We studied a little of Janet’s SheLife materiel before Games Night where Janet engaged more than usual knowing this was her last one. When I mentioned that it will be hard for me to say goodbye to the staff Janet instructed me to “just go, bye bye” waving your hand as you say it. I know she appreciates them all and will say proper thank you’s soon but all Janet can see right now is getting out of there. As I said goodnight tonight she was like a little kid on Christmas Eve, super excited that it was her last sleep there, so much so, I’m not sure if she’ll actually sleep.

Tomorrow is the day we’ve long been working for and Janet deserves it to be happening now. I pray that she rests well tonight and enjoys her last visit to the Connect gym in the morning and that her homecoming is as special as she believes it will be.

Janet, A Success Story. November 16. #TSJ

Janet is home for an extra night this weekend as she has a doctor appointment tomorrow morning so this will be a short update.

The last few days have been very positive for Janet. Friday we hosted our wine club and Janet said it was a lot of fun, more so than usual but not because of the wine she drank. She said she just felt more relaxed and able to contribute. Saturday of course was baptism day and that was amazing. I’ll give more detail as soon as I can link you to some video of it, hopefully tomorrow. Janet had a large cheering section, including Cam, and her testimony and courage had a positive impact on a lot of people. Today was pretty chill watching football with Cam and walking to Urban Fare for lunch with him. Janet tolerated the minus three temperature better than Cam and this is the third time we’ve been able to walk in the cold. I think as long as its sunny and not windy we can still go out. Nice!

Not much progress has been made on the picking things up off the floor front but we’ll keep trying. Its just a fear thing. Praying for a good night of sleep and a productive Monday.

Janet, A Success Story. November 13. #TSJ Goaal! #5

I know I said I wasn’t posting on Thursdays anymore but this one is special. Janet has officially achieved her laundry goal! Brian watched the video of Janet that was recorded Wednesday and enthusiastically credited her with goal number five. Janet is very happy and realizes she is one small step from being home full time. Here is the video, not the most exciting one I’ve ever posted but I hope you can appreciate the multiple tasks Janet had to string together to accomplish what most of us consider a pretty mundane chore. Happy!

We had our last team meeting at Connect this afternoon with the theme being move out planning. Janet is clear to go on the 28th or sooner and with the exception of a few minor details to cover off, its now a waiting game. The team is in agreement that Janet is not waiting very patiently and has been somewhat uncooperative a couple of days this week. With her out of the room I asked if there was a way that without rewarding bad behaviour Janet could come home sooner. It was always our intention that Janet finish strong at Connect by achieving goals before coming home. She’s done that except for the walking one which will have to be excused as her progress is too slow. In that light it was agreed that if Janet is willing to try hard at learning to pick up things from the floor and get to where she can do that consistently and without assistance, she can come home. Janet accepted the challenge and we will practice this weekend knowing she can do it and just needs to build the confidence to do it consistently. Brian will give her one more six minute walking test Tuesday so we have an up to date result for the next phase of physio. If all goes well, Janet could be home full time after SheLife on Wednesday!

Praying for Janet to sleep well tonight and enjoy a productive and fun Friday.

PS: Janet’s baptism is Saturday at 5:30 Trinity Church. She would love it if you could be there.

Janet, A Success Story. October 26. #TSJ

I’ve always tried to focus on the positives when writing this blog and most days there are many to report. There are today too but the negatives outweigh them unfortunately so I’m going to be honest about that rather than sugar coating things.

Janet is not happy and neither am I. She seems to be at her wits end as far as Connect is concerned and maybe about rehab in general. Her attitude is wearing on me and as a result this was the least fun weekend we’ve had in a long time. There were a few fun times, church was good, we watched a couple of good movies and we enjoyed visiting with Cam. Janet also did a great 200 meter walk on Saturday but despite the congrats from Cam and I, didn’t really accept the fact she’d done well and was very resistant to doing it today. When she did, she kept saying “I can’t”, “I’m exhausted”, “my legs are tired”, “I hate this”, the whole way through so of course her time was way off.

We didn’t really do much this weekend and that may be part of the issue. There was a lot of down time where I had no idea what to suggest and neither did Janet and the things I did suggest were dismissed abruptly. These are the times I dread for when she comes home full time as she can’t think of anything to do and I’m tired of being the booking agent for her. I don’t want her to be over scheduled but maybe spontaneity isn’t realistic either.

To cap it off, Janet scared the heck out of Cam and I at dinner tonight by choking on a piece of sweet and sour pork. She’d put a monstrous sized piece in her mouth, unbeknownst to us, then I heard her gurgling. Janet has “choked” on things before and has always been able to cough it out reasonably quickly. Tonight as I asked her to do the same she motioned repeatedly that she couldn’t. I did some mini Heimlich manoeuvres on her and she soon brought the chunk up. Cam was on the phone with 911 as Janet cleared herself and she was fine instantly. A very scary moment that I don’t wish to repeat and Janet has already blocked from her memory. During her bedtime recap of the day she correctly identified every activity of the day except that one and I didn’t bother to remind her of it.

Where this leaves or takes us I’m not sure. It may be that Janet comes home before the end of November if she’s not going to make an effort at Connect. Maybe spending this next week at home while my mom visits and we go to the Skate Canada International competition would be enough of a respite to get her through that last month. Maybe there’s not enough to be gained by keeping her at Connect another five weeks even with a good effort. Maybe my role needs to change. I don’t know but it does seem that something has to change real soon.

Praying that tomorrow brings lots of positive energy to Janet and me.

Janet, A Success Story. October 23. #TSJ

Today was pretty quiet but productive for Janet. She completed her workout by just after eleven this morning then called me in hopes I was on my way to get her. Not quite, but soon after that I found her lying on her bed “not sleeping” waiting for me. She didn’t know what to pack to take home with her and I was a little upset that she hadn’t made an effort. Then I realized there was nothing but her meds to take since we have duplicates of most things at home now. She’s smarter than I think sometimes.

Brian stopped by to hitch a ride home with us and he watched some video of Janet doing some laundry. She was hopeful he would approve her for that goal but her familiarity with the controls isn’t quite there yet. Something to work on this weekend.

Janet was happy to have a nap when we got home then after doing some planning for her homecoming she did another stellar job helping make dinner. One goal this weekend is to not have late nights followed by late mornings so Janet will be lights out at her Connect bedtime so we can have a productive Friday.

Praying for restorative sleep, an increase in confidence and no fear about walking fast.

Janet, A Success Story. October 21. #TSJ

Let’s start with the big news. Janet is coming home for good November 28th! It is becoming more and more obvious each day that Janet is losing her willingness to participate at Connect. She simply doesn’t want to be there anymore and is putting in the bare minimum of effort. After an earlier than usual phone call from Janet this morning, during which she sounded kinda down, I texted Brian and asked him if he thought that was a good date to bring her home. He concurred and Janet and I met with him and Tez this afternoon to make it official. They both had received reports from the staff that Janet was less cooperative lately and Tez says that her physical progress has slowed to the point where coming home a month “early” isn’t going to make much difference. He is confident that Janet will continue to improve, at a slow pace, and as long as we stay on top of the tone in her right hamstring she has a good chance of doing some decent walking. Janet is relieved to know there is now a firm date in place and will be counting down each day I’m sure. 37 as of Wednesday.

Nothing could overshadow that news of course but today was good for Janet in other ways too. She participated well at Games Night this evening and walked up and down the stairs in the process. I was able to convince her to do that knowing she’ll have to do similar at the preschool tomorrow. Chelsea invited Janet to read The Hallo-Wiener to her for practice and she started off great then had a really difficult time for the last half of the book. Hopefully that’s the bad read before the great one tomorrow. Janet’s dressing and undressing skills continue to improve and tonight I only had to help with her bra and lining up her PJ shorts so that she got her legs in the correct sides. The rest she did unassisted and quite quickly.

A lot is going to change over the next five weeks and I’m excited to get on with it. Janet is too and I pray she uses her remaining time at Connect to her fullest advantage.