Lack of Movement. Tough day for Janet. #TSJ

Garrett was helping Janet off the toilet when I arrived at Connect this morning and toilet talk would dominate our day from that point on. On my way to Janet’s room Lorne informed me that they had noticed a little blood in Janet’s pad when they got her up this morning and then a little in the toilet when they put her on there first thing. They did a quick check and asked Jen to look as well and it was determined that it was something to keep watch of but not a huge concern right now. Janet was in good spirits and not complaining of any pain at all. Off to the pool we went with a plan to return to Connect as soon as possible so Tez could work with Janet at the parallel bars.

We always get changed in the only washroom in the KGH Rehab Pool area and I sit Janet on the toilet while I change her partly to give her a chance to pee before swimming. We got all changed and I waited for her to try and pee but it was a no go so I stood her up to pull up her shorts and noticed blood in the toilet along with a very small stool. Janet was feeling fine and had no idea what was happening, there was a drip of blood every ten seconds or so and nothing else. I cancelled swimming got her dressed and called her GP. She of course was booked solid all day and suggested a walk in clinic or the ER and since we were already at the hospital we went over to the ER. That turned out to be a good decision and five hours later we were out with a prescription for a stool softener, one that works apparently, and a jug of Peg-Lyte, a colon cleanser. The doctor that saw Janet had an abdominal X-ray done and that showed everything as it should be except for a lot of stool build up, hence the two parting gifts. He also ordered a colonoscopy as soon as possible as the blood is coming from inside somewhere. He gave no indication as to what may be wrong but at the same time didn’t seem overly concerned and said Janet can carry on with normal activities unless the bleeding increases. Then he would want to see her back in the ER.

Janet was a phenomenal patient today. Staying awake the whole time and not complaining at all. I kept giving her sips of water even though there are signs all over the ER saying no food or drink until you’ve seen the physician. We didn’t get any food at all though but I think I felt that one more than Janet did. Janet was asked her birthdate by a lady taking a blood sample from her and she said it loudly and correctly right off the bat. I was impressed by that and by a few comments she made along the way like, “you must be getting tired of waiting here” and “Isn’t the doctor supposed to come and talk to us now?” She is a real trooper.

At 5:15 we were in the car (no parking ticket surprisingly) and calling Connect to let them know we were on our way back. Bob had held off cooking Janet’s salmon so ten minutes after arriving she was eating a nice meal. A few minutes into it she asked to go to the bathroom and had her first of two small bowel movements of the evening. There was blood associated with both but not any that was constantly dripping and Janet is not in any pain at all. She finished her dinner and an orange then half ways agreed to go for a bike ride. I really insisted on trying that as she had been sitting all day and we missed the pool and the workout with Tez. I didn’t push her at all once on the bike as it was late and it had been a long day. She still managed sixteen minutes of pedalling at mostly thirteen rpm. High five!

Surprisingly she wanted to read before bed so out came Slow Dance and into lounging mode went Janet. I read while she sipped water and wound down. By the time I turned out the lights it was 9:45 and Janet was finally ready for sleep. That was a tough day but I’m confident we will now get some good answers as to what’s going on or not going on with Janet’s bowels and hopefully start on a path to improving that situation. Once again the staff at KGH could not have been better (a little quicker perhaps) and we continue to get good support from the team at Connect. Praying for a restful night for Janet giving her the awareness to drink her two cups of Peg-Lyte tomorrow morning and to have a much better day than today.

Coming Back #TSJ

Janet woke up just after six tonight and slowly started to brighten up. I got a few verbal responses from her but her voice was very quiet and the words she was saying were mostly Klingon. I did get a whispered “yes” and some facial expressions to a few questions. After ten minutes of her eyes being open I sat her up on the side of the bed to see if she could tolerate that and she did well considering how groggy she was still. Janet didn’t outright say so but I got a strong indication she wanted to go back to Connect so I asked the nurses to change her and we got her dressed. Janet put up with the tossing and turning required for all that to happen and before you knew it her I V was unhooked and I lifted her into a wheelchair. The nurses kept an eye on her while I retrieved the car then wheeled Janet out to it. She helped me get into and out of the wheelchair by putting her left arm over my shoulder. That’s a good sign to me.

The car ride back to Connect was slow and steady as the roads were a little slippery but not as bad as yesterday. Janet was visibly happy to be back and gave the gang a little smile when we walked in on their poker night. I wheeled her straight to her room and Dani got a tube feed going for her. Hopefully that’s just for tonight. With Janet tucked in, I laid beside her for an hour till she fell asleep and I expect a good nights rest and a strong day of recovery tomorrow.

I’m very appreciative of the staff at KGH and Connect as their response and action today could not have been better. Janet’s nurse most of the day was a young guy named Chris who was working his first day in the hospital. After a bit of a nervous start he did a great job. Thanks again to Kiko! So nice to come home to a fed dog and a shoveled driveway. You are amazing!

Praying for rest and healing tonight and strong recovery tomorrow. Thanking Jesus for continuing to place the right people into our lives at the right time.


As I write this I’m sitting beside a sleeping Janet at KGH ER. She suffered two mild seizures this morning. The first was just after eight at Connect as she was getting dressed. It lasted about three minutes and was described as mild. The second one occurred at KGH an hour and half later and lasted just over a minute and was milder. Dr Eppler was the ER doctor who saw her and he played it all down and was quite positive the whole day. Dr. Adams, the neurologist said the CT scan showed only the old damage from last May and said Janet should bounce back from this quite quickly. He put her on Dilatin and she may be on that for life now. He said there will not be long term complications from this and it is quite common for ABI patients to have seizures.

Garret from Connect followed the ambulance to KGH and stayed with us until Dr. Adams said Janet could leave. The staff at KGH have been good as usual. Thanks Kiko for all your help!

Praying for rest and healing.