Suspicions Confirmed. A path to improvement. #TSJ

Janet was waiting in the Connect living room for me with a smile on her face. She knew we were going somewhere but wasn’t sure where. Jess told me they let Janet sleep in until after nine as the night staff reported Janet was awake at 2:30 and again just after five. Janet told me she ate a good breakfast and was ready to go.

Her doctor and I were both shocked at the high level of Dilantin in her system and the doctor is very confident that all the symptoms I brought to her attention are from the excess of Dilantin. Good news I guess. My suspicion is that there was a mix up in the conversion from liquid to pills and instead of the moderate increase the doctor ordered last time Janet actually got a fifty percent increase. Not sure if the error was with the pharmacy or in the doctor’s orders but something went wrong somewhere. To be safe, I agreed to have Janet go back on the liquid form until we get the right dosage then we can talk carefully about what that looks like in pill form.

Janet was quite drowsy today, even nodding off in the doctor’s office. After that appointment we had a quick lunch next door then met our realtor to look at a couple condos in the same building as the doctor’s office. Neither were to our liking but it was good to have a look.

I offered Janet the choice of a nap at Connect or home, she chose home and went down for a two hour snooze as soon as we got there. All that sleeping meant we only had time for a quick dinner then it was back to Connect for bedtime.

Everyone I’ve spoken to today is confident Janet will snap out of this pretty quick now that we know she was overdosed on the Dilantin. I expect a much improved Janet after a good nights sleep tonight and am praying for such.

Sing Along #TSJ

A rare morning start for me today as I wanted to be sure we were able to Skype Cam for his birthday. Janet was finishing her after breakfast bio break and was quite cheery about it all when I arrived. This is the first time in a while I have seen her early in the morning and was impressed with how bright she was and how well she was talking. Garrett said that was typical. I was also impressed with how straight she stood up in the Arjo type machine that Garrett was transferring her with. All she needed was skis and poles and away she’d go. We ended up Skypeing Cam from a slightly noisy gym but Janet managed to sing happy birthday to him. Even after about four perfect practice runs she still called him Andrew when it came time for the real thing but she is no longer singing Karaoke style. It’s all her.

Janet’s workout was actually pretty good including a real strong effort on the Shuttle. Janet set a personal best doing seventeen reps with one band with her right leg only. She got good extension most of the time and was visibly working hard. First time I’ve seen the effort in the face. A very welcomed sign. By the time we were done in the gym it was lunchtime and Janet ate well as expected after a good workout. I took her to the laundry room after lunch to transfer her clothes from the washer to the drier. She very confidently did that chore then we got ready for our appointments downtown.

The meeting went well but ended sooner than I thought it might so we had time to use up before our next appointment. We spent that time talking about Invue and looking at it from a block away. I used that time to check Janet’s vision a little. She for sure could see vehicles approaching us and crossing in front of us. She could see Invue and commented that there was a lot of big windows but couldn’t zero in on details like the large concrete pole running through all the west side balconies nor could she see the light pole kitty corner to us. I think this is all associated with her processing challenges and not an inability to actually see something. When we finally got into the building Janet had no recollection of having been there before but still said it’s pretty nice and she would like to live there. With the help of Courtney’s boyfriend, Mike, we are putting forward two proposed changes to the balcony door to the Strata Council. If they say no then we forget about Invue as it would not be fair to Janet to not be able to access her own balcony by herself.

Because Janet did so well in the gym this morning I allowed her to come home for dinner when usually she would be back in the gym for another workout. We had a little snack as we had been out for a while and we really had no clue what to get for a snack while out. Laurel got in on a Skype call and I had to keep coaching Janet through it as she was getting pretty tired. So much so that by the time I served dinner I thought she was going to fall asleep in it. After a few mouthfuls she seemed to gain enough energy to make it through the rest of the evening. As I was getting her ready for her after dinner bio break I could tell she was really full and when I got her onto the bed she commented, “are you OK with girls that eat too much?” The only proper answer was to laugh. I made sure we headed back to Connect in good time as I want Janet well rested for the weekend coming up. The drive back was the most fun one yet as Janet asked to listen to the XM channel that plays all these old sappy love songs. I placated her but asked her if she thought there was a channel that played songs you could sing along to easily. She immediately started singing to the song that was playing and continued for four or five more. They were all familiar songs of course but she still surprised me with her knowledge of the words and melody. I always hated the thought of family sing songs on car rides but this one made me smile.

Praying for a night of rest and healing, and an active day of recovery tomorrow.

Sleep? #TSJ

I spent the first part of today watching Janet sleep as I had done most of the night and despite the ticking clock I had no intention of waking her. I was surprised how well she slept last night. She only woke up briefly a few times, once trying to grab the bedrail but of course she was grabbing me. I was awake a ton of times as I was in “mother mode” concerned all night that she was OK. I helped her turn onto her side a couple of times and other than that she had a peaceful nights sleep.

I was all set to make her eggs for breakfast, it would be a first as Janet didn’t like eggs before so I was kind of looking forward to it, but she chose fruit and yogurt instead and very excitedly accepted an offer to have her first toast and peanut butter. She even drank a glass of orange juice, something she never liked before. We got the warm clothes on and raced off to church. A nice surprise in today’s service was a brief wedding ceremony. A young couple with a story of overcoming addictions and bouncing around foster homes were married during the service as they had no means of getting married themselves and no family support and no real friends to witness the marriage. All 1,200 congregants acted as witnesses as the church rallied to support them in their new lives. Janet loved seeing the bride walk right past her at the start and then walk by again with her husband at the end. She even had a little tear in her eye when Wayne announced them as husband and wife. It was a nice moment and a solid demonstration of our faith community coming alongside people needing love, guidance and support. No mention from Janet that things were too long today. I think she enjoyed the whole thing.

Lunch was a bit of a rush as we had a two o’clock appointment to view a condo in a very interesting building. Joel and Kiko joined us as they live nearby and have been curious to see inside the place too. We all really liked it and I will investigate further to see if we should put in an offer. Janet liked it so much that when we were chatting with the realtor in the suite, she nodded off. I asked her if she felt so much at home she could sleep and she said yes. The place is called Invue and if any of you know anyone that owns a place there I’d love to talk to them.

We had a nice Skype chat with Andrew before dinner with Janet talking fairly well but still getting her words mixed up a little. She was surprised it was dinner time already but still ate it all including ice cream and the last Christmas brownie in the house. I carried a very full Janet out to the car for the drive back to Connect and once there got her settled in to bed where I’m sure she will sleep well without me. I gave Bob the weekend food report and was able to see that Janet’s vitals have been tracking really well the last while. I miss seeing those taken everyday but her numbers are in a good range so there is no need for that anymore.

Praying for rest and healing and thanking Jesus for the community we get to be a part of.

Fresca #TSJ

Dr. Miller visited Janet first thing this morning then came into the gym to say hi when I was working with Janet there after breakfast. He said he was truly impressed with how she has improved and stated “this is the best I’ve ever seen her”. He was a little unsure of what to expect having heard about the seizures but agreed that she has bounced back really well. I asked him about the Dilatin and its’ side effects. He understands my concern and advised me to keep an eye on Janet over the next couple of weeks to see if there are any signs of excess confusion or other cognitive impairments. There are other drugs that could be used as anticonvulsants but they are not necessarily better and all drugs have side effects. He cautioned that side effects don’t appear in everyone so just watch for now and see what happens.

Our workout went quite well with Janet getting herself on her tummy this time, allowing for a decent hamstring stretch. I’m not seeing any real change in the severity of the tone in her legs but her right arm and shoulder seem to be improving. Despite her reluctance I had her use the stripper pole again and she performed her best standing yet. She got much straighter than yesterday and was able to let go of the pole and hold my shoulder so that more weight was on her legs. She still stands on her tippy toes but I’m confident that with time and more weight bearing through her legs her ankles will loosen up. The range is still there so we just need for those muscles to know when to turn off. I plan on demonstrating Janet standing to Tez as soon as possible and asking him to get her “walking” in the parallel bars soon.

With the workout done we rushed off for an appointment to view a condo downtown. I wanted to see what 1500 square feet looks and feels like to live in. It felt a little small but I think its doable with the right floor plan and the unit we saw certainly did not have the right plan at all. The realtor will keep an eye out for us.

At home it was time for a real food lunch then some NFL playoff football while we waited for two different people to stop by to look at Cam’s car he is trying to sell. I think we had success by the end of the day so come Monday there may be one less vehicle in our driveway. I used our waiting time to update Janet’s nail polish to Seahawks blue in readiness for the big game tomorrow. I figured she deserved a reward for sitting still so long while I did her nails so I offered her a pop. As soon as I mentioned we have Fresca, she smiled and rather mischievously said “that would be really nice”. Finally a cold drink she likes!. For dinner we enjoyed an unauthorized chicken dish that Suzanne had kindly dropped off for us then we rushed off to church so we can watch the Seahawks game tomorrow as it starts at the ridiculous time of 10am. Not sure if that’s the right thing to do but Janet did enjoy the service and I commented to her that unlike before her illness, she is liking the music parts of church more than the talking parts. She smiled and shrugged her shoulders.

On our return to Connect I had Janet put away her stuff, she is starting to figure out where some things go and she is very good at taking her shoes off now. Once in bed we read some of Slow Dance after I reassured her we had not finished it already. Janet took about ten minutes to ask me a really important question that she “needs to know the answer now” but never made it clear and she eventually forgot the whole thing. It started out with “how do we get to Washington to…” and evolved into “what’s the difference between Strawberry one and…” I’m open to suggestions if anyone has any. By the time I said goodnight she was closing her eyes and had a smile on her face that makes it really hard for me to leave.

Praying for rest and healing, a fun day tomorrow, and a Seahawks win.