As expected, Janet was partying the afternoon away as I arrived at Connect today. A large crowd turned out to wish Fred well on his move to Connect Langley. Janet had helped Jess make a cake for the event and it was being devoured when I walked in. I surprised Janet a little as she was quite focused on her cake but also enjoying the festivities. Her and Fred got along really well right from day one at Connect and we will miss him.
After the party I gave Janet the choice of going to the gym or having a nap. She chose nap and actually had one for over an hour. It was pizza night at Connect which seemed like it would be a lot of fun. Unfortunately, someone tried making the pizza dough from scratch and that caused a little stress during prep time which prevented anyone from helping which to me is half the fun of at home pizza. By the time it was ready everyone thought it was delicious and Janet even asked for seconds. A first.
Having had a little time to digest Janet reluctantly agreed to go to the gym. It was more like she knew I wasn’t backing down this time. A new staff member, Tiffany, joined us to try and get to know Janet a little better. She got to see pretty much every mood Janet can have. I promised Janet this session would not be long or particularly difficult but I don’t think she was convinced. After an excellent sliding board transfer onto the table mat we started some leg stretches. I haven’t done this with Janet for a long time which made it good for Tiffany as we reviewed the instructional videos on the computer before starting anything. I was disappointed with how stiff Janet was but don’t think that’s her norm as no one has commented on her tightening up anymore recently. Janet had a little breakdown on the Shuttle but actually performed quite well on it. If we could get those hamstrings to relax she’d be on her way.
That was not the greatest workout ever but at least we got her in there before the weekend and I was able to use that experience to help her with standing transfers tonight. She managed one at home tonight where I really could feel her using her legs most of the time. They still are mostly lifts as opposed to transfers but its something for her to work on.
We got home just in time for dessert after saying goodby to Fred. Janet gave him two happy face lollypops as he played bingo with a bunch of people in the neighboring house. That happens every Friday night and combined with the pizza makes for a compelling reason to have Janet stay Fridays. We’ll see. Janet’s nighttime routine went really well and she settled into her own bed quite willingly. There was one funny moment of confusion just before dessert. Janet was playing ball with Nash and as I was about to feed him I asked her to tell him to sit. I spelled out the word sit so the command could come from her instead of me. She spoke loudly and firmly to him but said “come on Cameron, S I T now, come on, S I T”. She even laughed out loud when she realized what she’d said. I’d be worried about it but she often got Cam and Nash mixed up before getting sick. All is well.
Praying for lots of rest tonight and a productive day tomorrow.
I got a really nice surprise when I arrived at Connect this morning. Bridgette from Janet’s 4B days was working in Janet’s house for the day and she and Garrett had Janet up early, fed her breakfast and had her to the gym. All by 9:30. Janet was all smiles as she was heading to the bathroom with Bridgette when I got there and it was apparent that they were getting along despite Janet telling me later she didn’t remember her. Janet was able to present Bridgette with a happy face lollypop on our way out and that may have contributed to Janet’s laundry being done and put away when we got back tonight. Or maybe it was just Bridgette being the good nurse she is.
By the time we got home the Seahawks were down 10-0 so we quickly got our jerseys and as many other blue things we could find on to try and start a comeback. They did indeed come back but couldn’t close it out. I’m excited for next year as this young team learned a lot in those two playoff games. Janet watched quite a bit of the game but she needs a lot of coaching to understand whats going on. She ate a football game sized lunch of soup, grilled cheese, dill pickle, chips and a bowl of fresh fruit. I managed to give her a little leg stretch before we Skyped Leslie. Her legs seemed rather tight today but she still has good movement in both and made a decent attempt at standing from the edge of our bed. During the call with Leslie, Janet was having a little trouble being loud and expressing her own thoughts but it was a decent conversation with Janet calling it off as she was getting tired. Nice to see her recognizing that and doing something about it. Now if she would only agree to an afternoon rest time.
We played match the Sesame Street characters a couple of times with Janet struggling with anything on her right and really struggling with the game in general the second time around. I need to give her a break in between. Spelling Bee Bingo was next and although we tied both games Janet really doesn’t understand this game yet and her vision is an issue as well. Dinner was in the football theme again for Janet. Two bowls of a casserole Suzanne gave us along with a bunch of fresh veggies then banana bread followed closely by hot cinnamon bread freshly baked by our awesome neighbor Barb.
A pretty good day despite the Seahawks loss. Janet seemed content to be home and judging by the amount she ate today must be feeling pretty good. I am noticing a little more difficulty in stringing together proper words to form sentences. She seems to be using a little more Klingon these days or words that have nothing to do with what she’s talking about. When Kiko and Joel dropped by this evening Janet’s response to a question from Kiko was to repeat what Kiko had asked her. She has been like that when she is tired but I think I’m seeing it more often now. Could still be recovering from the seizures or it could be the drugs or it could be me looking for the effects of both those. Time will tell.
Praying for rest and healing and a productive day of recovery tomorrow.
After shoveling my way out of our driveway and avoiding all the stupid people on the highway I arrived at Connect just as Janet was returning from the gym with Marlisa. She complained that her arm hurt and that she cried during their stretching session but she was telling me all this with a smile on her face so I played it down and Marlisa didn’t seem too concerned. I then got Janet ready for the trip to the doctor with plans to go home after that as there was nothing planned for her at Connect and I didn’t want to be on the road if I didn’t have to be.
We made it to the doctor’s office right on time and waited just long enough for the snow to melt off of Janet’s wheelchair onto the office floor. That’s what they get for doing a crappy shoveling job. Our chat with Dr. Wiese was pleasant and she complimented Janet a lot on how good she looks and how well she’s done so far in her recovery. The doctor did seem to be up to speed on Janet’s situation and did not hesitate to order the swallowing X-ray and wants to see Janet once a month now to keep tabs on her. Janet said to me afterwards that she had no idea that was the doctor she just talked to but she was nice. That’s all that matters I guess.
At home it was lunchtime and Janet had a nice big bowl of tomato soup. Seemed to suit the day well. I also let her have some crackers and cheese just to keep the rebelliousness going. I went out and shoveled more snow after lunch and Janet spent that time exploring the house and getting herself stuck in our bedroom doorway. She thought it was pretty funny and couldn’t tell me why she had even gone down there as she said she was cold but it’s way colder in our room than the family room where I left her. She played with Nash for the rest of the time I was shoveling then we played the Sesame Street Memory game. Actually we played our own version of it as there was some setting up to do so I had Janet match all the character cards as we detached them from their holders. She did really well with everything on her left and struggled a lot with anything to the right.
A little later on we played a game of Spelling Bee Bingo and Janet beat me easily even yelling out BINGO when she got her last letter. I cued her but it was still cute. Joel and Kiko stopped by for a visit complete with a very yummy casserole and massive dessert. It was nice to sit and chat with them in our home as opposed to a hospital room. I just wish we could get Janet talking louder and more.
Janet ate another rather huge dinner and I carried her out to the car for the ride back to Connect. Praying for a restful and healing night and an active day of learning tomorrow.