aware

The Team Save Janet Report is Out! #TSJ #Babysteps

Renovation Day 50. Wow, 50?, really? Crazy. Randy installed almost all of the kitchen drawers today as well as the shelves for the remaining two closets. That means Janet will come home tomorrow after lunch to help load stuff into those spaces. I installed some towel bars, a new smoke alarm and started installing the dining room light.

As reported earlier Janet took her first steps using a cane today and we are still very excited about that. Here’s the video I shot this afternoon with her walking in the hallway assisted by Tez and Jess.


These are baby steps for sure and more of a confidence booster than anything else. Janet fully realizes and accepts how well she did today and that is the biggest win in my mind.

By the time we had settled down from all that excitement it was after four and Janet was feeling pretty tired so she went for a little pre dinner nap. That enabled her to get in a decent bike ride after dinner starting out at level two but asking for the pedalling to be made easier ten minutes in so I dropped it back down to 1.5 respecting how much the walking had taken out of her. Curtis informed me later that Jess had Janet on the bike yesterday starting at level three then dropping to two and Janet tolerated that well. As long as she’s not too tired I’ll get her going like that as well. She can handle it.

To be productive before watching The Voice Janet wanted to do some reading so we downloaded a book to the iPad in hopes she could read off of that easier. I had her read the opening quote in the book and she read seven lines with only two prompts from me along the way so I think this will work well. We chose the book Open by Andre Agassi and are enjoying it so far.

Janet stayed very alert throughout the reading and also for The Voice. Our contestants are both safe again and Janet is starting to remember some names from the show. Our bedtime chat included some serious thinking on Janet’s part triggered by her physical success today. She asked why she got sick and repeatedly mentioned she doesn’t want to be a waste. Instead of the old very emotional statements like that these were stated quite seriously with a hint of emotion. We had a really good talk in which I was able to reaffirm the many positives that have come in the last eighteen months. I sense a real turning point in Janet’s recovery and look forward to what she will accomplish in the near future.

Janet and I send our prayers and love to Heidi and her family today as they grieve the passing of her mother. Heidi and Jack are key members of Team Save Janet and inspiring examples of how to live out a life of faith and love.

Thanking our Lord and Saviour for all He provides and praying for complete healing.

Marvelous Monday #TSJ

A very alert and smiley Janet greeted me this afternoon as she watched TV in the living room with Curtis, Clint and Humberto. She was able to accurately tell me a few things about her day so far and Curtis said they had a strong workout in the gym this morning. He did some arm work with Janet then Tez joined in for an hour long session working Janet’s legs. They were able to get her onto her tummy which allowed for some great hamstring stretches. Curtis thought Janet was much more limber than previous and seemed pleased with how things are progressing. I took Janet up to get weighed and can report another gain although this one is a little too large to be believed so I’ll check her again in a couple days.

In the first hour I was with Janet she twice asked to go to the bathroom and was successful each time and right after the second one she suggested she have a rest. I asked her if she wanted to lay down on the bed for a while and she said no. I asked her what she meant by rest then and she said “rest under your chin”. I figured she meant I was to lay down with her and when I suggested that she agreed and slept for an hour and a half! I guess she really did have a busy first half of the day.

Her nap took us right to dinner time which was a nice piece of chicken with mashed potatoes, carrots and gravy prepared by Crystal. Janet ate it so fast I thought she would want more but she was full. I tried to get her to drink more of her water but got the most defiant response yet and it took me twenty minutes of convincing including switching to my plastic water bottle to get her to drink. Then we went off to Skype Andrew. Ever since waking from her nap Janet just couldn’t get her loud voice going until we connected with Andrew. She wasn’t always making sense but she was pretty loud. Crystal was going to give Janet a shower so in trying to be efficient I asked Janet to brush her teeth while we waited. Again, huge defiance, so much so that I had to tell her she wasn’t being very nice. Not sure what brought that on especially after such a good afternoon nap. Could be just a heightened sense of awareness as she was pretty intent on doing things herself and not wanting to be “lead”. She always did like being the leader.

The shower tired Janet out nicely and she was tucked in at her normal ish time and looking ready for a good sleep. Praying for a healing night’s rest and an informative session with the eye doctor tomorrow.

Don’t Let Anything Stop You #TSJ

When I arrived at Connect this afternoon Janet was cruising around the kitchen area with a family picture in her hand. She had just finished a glass of water and had been working with Garrett on identifying the people in the picture. She did pretty good the first time around but then everyone turned into Andrew and we don’t want that do we? I helped her for a little while and eventually she got everyone back to who they really are and hopefully we can stay that way. Janet was in a good mood and Garrett reported she had a pretty good day although she balked at going to the gym with him this morning and when they finally got there she made a minimal effort and refused to work on the Shuttle. I think she may have been tired from the weekend so we’ll see how she does tomorrow.

I spent a lot of time talking with Janet trying to get her to recount her day so far and what she had done over the weekend. Laurel sent a nice email to read to her and Janet actually started crying as I read it. I also read her the post from Nick Vincent that I shared earlier today and she was moved by his story. When I asked her what she thought the similarities are between his story and hers she responded with “don’t let anything stop you”. I was blown away by that answer as it came totally from her. I didn’t summarize what I had read to her or anything. She took it all in and made a connection. Brilliant!

Taking advantage of that awareness I got Janet down to the gym with the promise of a little leg stretching then a routine on the Shuttle. She was fine until she started on the Shuttle. Four reps in, the tears started. I convinced her to keep going and she made it to thirty three. Then she totally lost it, having the most demonstrative hissy fit yet. After lots of talking she finished her routine with a respectable result but I am getting a little concerned about her attitude. Every chance I got the rest of the night I reinforced how well she is doing and how important it is she keeps working hard. There were moments where she seemed to truly buy in and there were moments where I got the shoulder shrug and a bit of an eye roll. After the second successful standing transfer to the toilet she seemed to gain a little confidence and off to dinner we went.

Spaghetti sounded really boring to her and she was a little upset that that was what she was getting but ended up eating two servings of it very happily. Fluid intake was a little lower than at home mostly because she wasn’t offered anything other than water all day. The dietician is coming in tomorrow and will see Janet and hopefully me first thing so we can discuss food, drink and peg tube. Nurse Jen confirmed that as long as Janet is hydrating well the peg tube can be removed in two weeks. The staff are logging Janet’s fluid intake daily and I’m to keep track when she is away from Connect. So far so good.

The rest of our night was spent talking and reading Slow Dance. In the book they were describing an MRI experience and Janet commented that “I didn’t have anything like that”. Right she is and she seems much more aware that something has happened to her and even a little accepting of it. When I was done reading and told her it was time to get ready for bed she listed off all the things she needed to do to get ready and told me she needed help with all of them. I expected tears to follow but she just stated them matter of factily and we got started. Janet has to get up a little early tomorrow so we can get to the eye doctor so we tried to turn out the lights a little early tonight but that didn’t really happen as she was quite chatty all the way through her bedtime routine.

Praying for a restful night an informative visit to the eye doctor tomorrow and a positive, hard working Janet tomorrow.