History- July 2012

July 1
9:20am
Larry Dieno

Threepeat here we go. Janet was eyes wide open and getting cleaned up when I arrived. We went right into Physio mode and she did reasonably well. Still bright eyed and exploring. Looking forward to a great day and fireworks tonight!

Thanking God for the excellent care Janet is getting and for me being able to be here with her.

July 1
10:58pm
Larry Dieno

Janet managed her time pretty well today. Awake for an hour or two then sleeping for an hour or so. Less active than yesterday but still worthy of threepeat status. Similar pattern during the afternoon shift with a few hours spent in the wheelchair and some story time with Mary Gaga. During a mouth cleaning Janet grabbed the stick sponge and took it out of her mouth to have a look at it. Janet’s mood today seemed a little worried or confused. I will take that as a positive sign of being a little more aware. I came back at 9:15 tonight and the nurses had Janet in her wheelchair ready to go to the fireworks. At 10:00 she fell asleep but “we” watched the show anyways with three other patients and about ten staff. Too bad she missed it.
Looking forward to starting a Bulls second threepeat tomorrow.

11:02pm
Kiko Sano Armstrong

You and Mary Gaga are doing an AMAZING job looking after Janet. We are cheering you all on!! Go Janet go!!

July 2
6:01am
Heather Wallace

Allan and I also fell asleep before the fireworks, so you can tell Mom it happens to the best of us smile.

July 2
9:04am
Larry Dieno

Janet is easing into this holiday Monday. Wide awake when I got here but after a wash and turn and listening to me and some music for an hour she is napping. Had a visit from a vampire and definitely reacted to the needle prick. Looking more relaxed overall today.

July 2
9:10pm
Larry Dieno

Janet is really on a roll. Today is the fourth good day in a row and she did a few laps of the ward in her wheelchair today. Her ability to hold her head up when sitting is continuing to improve and her left leg was a little looser when I stretched with her this morning. Today was more of a wake then nap then wake then nap kind of day as opposed to being awake for hours at a time. Some naps were as short as twenty minutes. There is a new Hospitalist on duty this week. Seems like a good guy and the nursing crew continues to be top notch.

Good to have “Uncle Monkey” in town today. Thanks for dinner tonight Mike and I’m sure Janet was as pleased as ever to hear her brother’s voice.

This week is the beginning of the Brain Engage and Stimulate Team (BEST) going into action. If anyone else is able and willing to come in for fifteen minutes or so to read or sing or whatever please let me know and we can set up a time. FYI noon ish weekdays is booked already.

Praying for continued great care, massive forward progress with Janet’s healing, success for the BEST and strength for Team Save Janet.

July 3
8:33am
Larry Dieno

Interesting start to the day. I’m going to say I got a smile from Janet! She had quite a stern look on her face when I arrived, almost like she was mad about something. Could have been the fact her gown and blankets were all askew as it looked like her nurses started to clean her up then had to leave. When I sat beside her and touched her left shoulder to greet her again she turned her head to me, relaxed her face and smiled. First time I’ve seen that expression. This was not the “baby has gas smiley face”, this was genuine. At least that’s my story.

Praying for a professional Physio workout today, contact with the Transition Nurse, success for BEST and the safe arrival of Laurel.

8:36am
Nancy Jean Church

I like your story!

July 3
9:46pm
Larry Dieno

Janet seems to be gaining awareness daily. She only slept for about ten minutes this morning, an hour and a half this afternoon and not at all this evening. This morning’s Physio was with Kyle and he worked her out while she was in her wheelchair. After her workout I was able to take her outside for the first time! She got a little emotional in the elevator and more so as we entered the lobby. She definitely knew we were somewhere different. We didn’t stay outside long as it was cold and windy but more adventures are definitely in order as the weather warms. Can’t wait to get some sun on her face.

BEST steppped into action today with a reading from Heidi, a visit from Janet and Sandrine. Looking forward to more. Uncle Monkey dropped by to pester his sister again. See you again in a couple weeks Mike.

Thanking God for a good day and asking for more healing and more knowledge of Physio therapy.

10:39pm
Heidi McLaughlin

A very defining and emotional visit with Janet today. I have not seen her so awake and curios. I showed her the book I was going to be reading out of, the book we all studied together, “30 Days To A No Regrets Life”‘ and her eyes became bright and she reached for the book and took it into her hands. I was amazed. Then,as I read she reached for my hands a couple of times and seemed to be trying to understand, as she turned her head from side to side trying to grasp “something”. Then the “Beatles” starting singing “I want to hold Your Hand”, and I happily sang along with the song and she seemed pleased somehow. It was a visit of hope, joy and anticipation of much more to come. What a delight, thank you God. We continue to pray! Hugs..

Sent from my iPad

July 4
8:31am
Larry Dieno

Janet is looking ready for another good day. Eyes bright and left arm moving around. She has a perplexed look on her face this morning though. Hopefully Physio can work that out of her.

Praying for big steps forward.

July 4
9:31pm
Larry Dieno

Well, Physio definitely got rid of Janet’s perplexed look this morning. Solid workout with Tom being impressed with Janet’s increasing ability to keep her head up. Still no response to any commands other than looking to her left once. Tom put my concerns about Physio to rest and fully supports getting someone in to work on Janet weekends and holidays. If any of you know a qualified Physio Therapist that would possibly do that I want to hear from you.

The rest of the morning was quiet as Janet slept in her wheelchair for a little over an hour after her workout. When she woke up we went outside to get some sun. She was not really that bright yet but she didn’t complain about being outside. Laurel’s afternoon shift was good with noticeable responses to music and Janet took her glasses off to have a look at them and put them back on again. The evening shift was good with a couple little naps and some story time with Mary Gaga.

Another good day of baby steps forward. Looking forward to more tomorrow.

July 5
8:30am
Larry Dieno

Janet is eyes open and ready for Physio. Seemed pretty excited about Steve Nash signing with the Lakers! Kidding. It’s a beautiful day here and I’m looking for good things from my beautiful wife.

8:45am
Nancy Jean Church

The sun is going to shine in Vancouver and on Janet today.

July 5
11:06pm
Larry Dieno

A good day for the team and a good day for Janet. After a reasonably bright start Janet promptly fell asleep right after her nurses washed her down and slept through most of her Physio too. Tom cut it short because she was so groggy. She has been going pretty strong for six days in a row so a day of rest seemed to be in order. A little before 10:30 she work up again and was quite bright. Sandi and Henrick were visiting at the time and at one point Janet looked in Henrick’s direction, raised her left arm way up and waved her hand up and down “at him”. A new move! Not long after that while lying on her right side she reached over her body with her left arm, touched the bottom of the bed rail and pushed from the mattress lifting her head and right shoulder up. It was if she was trying to sit up. Another new move. Since she was so bright I asked the nurses to put her in the wheelchair. We walked her outside into the sunshine and boom, she fell asleep. I’m going with the thought that it was too exciting a wheelchair ride and feeling the sun on her face that she just couldn’t handle it. She slept for a while after that and Mary Gaga did her hair. The afternoon was pretty quiet and Laurel did a little Physio this evening before the team went to Mark and Veronica Kayban’s for dinner. Thanks you guys! That was a great break from our routine and it is always fun to pester Nick and Luther. Abrielle, you are a good sport.

After dinner the three of us went to say goodnight to Janet and she was wide awake and really seemed to know we were there and wanted to communicate or get up and go home with us. It is really hard to leave her like that but we need our rest and so does she.

Praising God for His grace and healing, for good friends and family and for His promise of redemption.

11:37pm
Kiko Sano Armstrong

I had the privilege of singing to Janet today. Sang maybe 5 songs. Janet had her eyes open with her glasses on, exploring the surroundings with her hand. Numerous times she had her arm way up in the air, and at one point her hand was way up in the air moving to the beat of the worship song I was singing! Continuing to pray for you Janet. See you again soon! xoxo

July 6
9:10am
Wendy Purcer

Incredible updates. TSJ – you’re doing SO incredibly well. TOTALLY inspiring! Way to go Kiko – you’re a gem. Oh that I had the gift of a talent I could give…………….. For now, I’ll stay on the sidelines doing what I do best and cheer you all on.
Keep up the great work. Janet is OBVIOUSLY making progress – brings tears to my eyes. GO TEAM JANET!!!
Here’s to another amazing, God-ordained day! Love you guys!

9:47am
Larry Dieno

Janet was the first one up and at em this morning so of course she was sound asleep when I got here. She woke up at 8:30 to get her meds and be ready for Physio. Her workout was short but intense and included her lifting her head a few times in response to noise above her, supporting herself with her left arm and taking her glasses off. It ended with a sling ride into her wheelchair where she fell asleep three minutes later.

We are in need of a few more BEST members. Right now we have Heidi Tuesdays at 12:30, Janet A Tuesdays at 4:00 ( I think?) Kiko random times throughout the week and Sandi next Thursday ( I think). If anyone else can pop by and read for fifteen minutes that would be cool.

Still looking for some pro Physio help for the weekends.

Looking forward to a productive day.

10:11am
Sharon McFadden

I wish I was closer to help out Larry. Thanks for making it possible for us in Saskatchewan to follow Janet’s progress. It is amazing to watch the Lord lay his healing hands on Janet. He has also given you and your family the strength to see you through all of this. You are amazing! Keep up the good work!

July 6
7:47pm
Sandrine Raffault

Hello Larry,I can come on Wednesdays after work (between 4:00 and 6:00)

7:52pm
Sandrine Raffault

and might be able to come another random day, according the weeks.

8:57pm
Larry Dieno

Wednesday’s are good Sandrine. Thanks!

11:43pm
Larry Dieno

Finally a proper summer day in Kelowna and Janet must have sensed it as she had a good one. Late into my shift she got bright enough to take her for a few laps around the ward. That seemed to perk her up even more and she got a little teary eyed out there. I think she realized she was in a hospital and didn’t like it. Regardless, she got brighter and brighter as the day went on. Sitting in her wheelchair by the window she reached over to the bed and picked up Laurel’s cell phone. By far a first. A little later a heavy flash card fell on the floor in front of her and she made a move to lean forward and pick it up. She couldn’t of course but nice try! She stayed bright all afternoon with lots of arm movement, lots of repositioning in the wheelchair and even patting Mary Gaga’s head. Maybe she thought that was Nash? The evening shift was not quite as active but Janet seemed very content to be hanging out with her mom.

Speaking of such, we say so long to Mary Gaga, on a plane to YVR as I write this. I know Janet was helped by your presence here the last three weeks Mary and you can sure see a difference in her from when you first arrived. There is something very special about a mother and daughter relationship and the positive one that you and Janet have will go a long way towards her recovery. Thank you for travelling from the centre of the universe to be here with us and for all your help.

I had a chat with the Hospitalist again this morning and reiterated my concern over the lack of Physio on weekends. He agrees Janet would benefit from having it and will see if there is anything the system can do. I would still appreciate hearing about anyone any of you knows that could help.

Janet has lost a little more weight so the dietitian has raised her food volume and changed the delivery pattern to reflect more of a breakfast lunch dinner style than a continuous feed. Since being at KGH she has absorbed her food well leg’s hope she can handle the I increase.

While praying for Janet to continue getting better please send one out to the folks with room 4115. Things are not going well there. I have seen a lot of very sad people there today including some kids. Pray for peace and reassurence for them.

July 7
9:40am
Larry Dieno

Today is day 54, that’s one day for each of Janet’s years. So far it is a good one. Looking back, it’s amazing how far she has come. Thanks to all for the prayers and support so far. It’s been a long journey already and we are still in the early stages.

I had a good workout with Janet this morning, best I’ve had. She just finished breakfast so I hope to get her in the wheelchair soon.

I feel a good day coming on.

July 7
9:19pm
Larry Dieno

A good day it was. Janet was not her brightest but certainly was awake a lot and demonstrated a few new moves. We got out for a few laps of the ward in the wheelchair. I can’t tell if she enjoys it but she really brightens up now where before she would often fall asleep. I took her outside and put her new hat and sunglasses on and she seemed to enjoy that for about five minutes before falling asleep. She squirmed around a lot in her wheelchair today. Not sure if in pain or just uncomfortable or becoming more aware of her body. A couple times she used both arms to pull herself forward in the chair. A first. She had a lot of little power naps today, some as short as five minutes. Kinda got mad at her because thinking she was asleep I would start reading my book and, bam, she would wake up and I would have to start talking to her again. Typical. Janet had her hair washed today and untypicaly loved it! She had a very relaxed look on her face with a slight smile the whole time. Really nice to see.

Kiko stopped by to sing for Janet today and during one song Janet grabbed the score from Kiko and held it as if she wanted to read it. She also grabbed one of Laurel’s magazines and held it up to read it. Her nurse walked by just then and saw Janet lying in bed reading and just about had a heart attack. If only Janet would let us take pictures. Laurel left a paperback on Janet’s lap later on and with her left hand Janet was leafing the pages. Another first.

Despite not seeming to be as aware as previous it was a pretty good day for Janet.

Thanks to Wendy and Twyla for stepping up to join BEST. You guys are awesome and Janet will love hearing your voices.

Tim’s message this weekend at Trinity is all about Love. I am so grateful for all the love shown to me and my family throughout this ordeal.

9:42pm
Kiko Sano Armstrong

Yes twas a good day! Glad you had a great workout with Janet this morning Larry! Out of the 6 songs, Janet probably had paper in her hand for 3 songs. First paper she grabbed was the back of the page so she was looking at a blank sheet. Then she got a new one (this time facing the right way) and her reaction was different, as if she recognized there was writing/black ink on the page, as opposed to the first blank page she picked up. My take on her reaction, but cool nonetheless. Looking forward to researching and singing some songs that Janet might recognize smile

Keep up the great work Team! We want to be people that show love to everyone around us (and also puts on darn good Christmas productions hahaha). xoxoxo

July 8
10:30am
Larry Dieno

Having so much fun this morning I forgot to send a report to y’all. Janet was awake when I arrived and pretty bright and pretty pretty. She’d had her breakfast and her hair was brushed real nice and she was almost smiling. There was good and bad with her Physio this morning. As I was raising her right leg she got a really frowny face, teared up and actually cried. The bad part is I made her cry. Not sure what it was as that leg usually moves real easy and did so after that. The good part is she cried! An actual audible cry. I did cut the Physio short not wanting to cause any more pain and she was looking sleepy. After one of her ten minute power naps she was back real bright. I almost called Laurel to bring Nash down but the nurse has to do an assessment which I helped with and it was really interesting as Janet took her glasses on and off, seemed to be watching Bridgette a lot and even reached out to her once. When she touched her head, Janet quickly pulled her arm away as if she was surprised something was there. I talked to her a little bit about Tim’s message on Love and I read 1 Corinthians 13:4-7 to her. She got a little teary eyed. Going to play the whole message to her as soon as its posted.

Already been blessed with a good day. Go God. Go Janet.

July 8
11:19pm
Larry Dieno

I think Janet is getting the idea that it is summer finally. Took her outside today with Joel and Kiko and she lasted about fifteen or twenty minutes and never fell asleep. She did get a little warm though despite the hat and sunglasses. I will have to take her quilt all the way off next time and hope she is not hung up on maintaining her modesty like she was when her nurses changed her today. They took her old gown off and laid the new one on the lower half of her while they did something else. She grabbed the gown and pulled it up to cover herself! That’s Janet. The rest of my shift was relatively quiet with Janet squirming in her wheelchair a fair bit and looking a little frowny. Laurel’s shift was good. Stretched Janet out a little bit without making her cry and played a DVD on her laptop for her. Held at the right angle Janet did seem to watch the movie for a bit but hard to say if it was the pictures more or the sound. Janet had varying moments of alertness and only a one hour nap. Pretty good day overall.

Praying for a solution to the Physio concern and Janet’s discomfort with her legs and hips. Some communication with Cathryn in regards to the transfer to Long Term Care and massive steps forward in the healing process.

July 9
9:18am
Larry Dieno

Another beautiful day in Kelowna. My beautiful wife is a little agitated this morning. She just nodded off after doing a little reading (listening). Has a little frowny face on but hopefully is just anxious for Physio to start.

Looking forward to a bright and busy day.

July 9
12:37pm
Larry Dieno

I asked a few days ago that we send some prayers for the folks with room 4115. Turns out the patient is the wife of a very kind gentleman from our neighborhood. Joe has done some handywork at our house before. His wife has terminal cancer. Please send prayers for him as he leads his grand kids and others through this challenging time.

1:17pm
Kiko Sano Armstrong

Larry, one word to describe the way you look at/take care of Janet is ‘pure’. It is so beautiful. The way you care for Janet is the reflection of the love of Christ.

July 9
7:47pm
Heidi McLaughlin

Larry, we just heard yesterday that we are to “put love into action”. You are the picture for the world to see that action and “get it”.
Prayers continue….

Sent from my iPad

9:22pm
Larry Dieno

A new Physio person for Janet today, Tom is on holiday. Marie is not as personable but seems to know her stuff. She is pretty confident that the discomfort and tightness Janet experienced yesterday is muscle related. She suggested a Charlie horse like event that would not stop. Makes sense. She loosened Janet up pretty quickly this morning with a more direct approach than Tom. Not sure Janet enjoyed it but her body moved the way Marie wanted it to and that is the important thing.

I met with Cathryn (brain lady) and Monika (transition nurse) this afternoon to go over the first steps of moving. They are averaging a 100 day wait time for placement right now so it’s a safe bet Janet will be at KGH for a couple months more at least. I will be getting a package of info tomorrow so we can start investigating the various facilities. I say we because I want to hear from any of you that have had experience with these places, good and bad, Kelowna or elsewhere. I have a little knowledge from my dad’s situation but that’s it.

Janet was pretty sleepy for the majority of my shift and woke up for the last 45 minutes so I could take her on a walk. As we sat in the wait room looking at the lake there was a five minute period where I really felt she was trying to say something. She never slept during Laurel’s shift until 7:30 and they had a good time reading magazines and watching So You Think You Can Dance. Not Janet’s brightest day but a good one just the same.

Praying for healing and for my neighbor Joe and his family as well as our next door neighbors, Barb and Gary who are dealing with house problems, health issues and a family issue. Be strong folks and trust in Jesus.

July 10
10:10am
Laurel Wallace

Having a great morning shift with a very alert mom. She is playing with her ponytail and stretching her arm lots, exploring the right side of her bed and holding her right hand as well. She settled down as i played a “good morning” song, appearing somewhat engaged with the song. She also explored the nurses arm while the nurse was working with mom’s tube, and even grabbed the mouth brush when the nurse was attempting to clean out her mouth. The nurse let mom use the brush and she appeared to move it around in her mouth with her hand a tiny bit before settling on chewing on it. Physio is running late but I’ve been assured they are on their way. Looking forward to a continued great morning so I can hopefully kick Larry out of more future morning shifts wink

10:13am
Kiko Sano Armstrong

Sounds like a great start to the morning Laurel! Praying for another day of baby steps smile xoxo

July 10
1:40pm
Nancy Jean Church

Nice update Laurel.

Can’t wait to celebrate with you and Raj on the 22nd.

July 10
9:18pm
Larry Dieno

Not sure Laurel is going to get anymore day shifts as this afternoon shift has been a real snoozer. Physio wrapped up just before I got here so of course Janet was having her post workout nap that lasted till 4:45! I got her outside in the sun but after five minutes of that she nodded off again. She awoke around six and stayed up just long enough for me to read The Hallo-Weiner to her. Nurses put her back to bed around 6:45 and she has been sleeping since, even with Joel, Kiko and Wendy visiting. Jack dropped by earlier and Janet slept through his visit too. How rude.

Got lots of administrative type stuff done for her today and overall it was a good one for her.

Looking forward to tomorrow.

July 11
9:17am
Larry Dieno

Things got off to a good start this morning. Janet was quite awake as opposed to my shift yesterday. We listened to some music and looked at the puppy magazine. She doesn’t seem too happy this morning but I guess I shouldn’t expect her to be. She just got cleaned up by the nurses so of course is sleeping now.

Looking for more knowledge on care facilities and info on physiotherapy today. I have ruled out Nurse Next Door as their staff are not certified physiotherapists and would have to be trained up just like us. The search continues.

Praying for complete healing.

July 11
12:18pm
Nancy Jean Church

A thought on therapy – Lots of kinesiologist graduates have specialties in rehab (Gillian for one)….if you post a ‘looking for kinesiologist’ add on kijiji or craigslist you might find someone with the skills you want. Lots of kinesiologists are involved with therapy in physio clinics.

spelling grammar errors – add/ad kinesiologist/kinesiology

July 11
9:38pm
Larry Dieno

Another day another baby step, maybe even two? Baby step one came during Physio this morning. Janet was sitting in the edge of the bed after being all limbered up, Marie let go of her and Janet supported herself for close to ten seconds. A little later Marie let Janet fall to her left and she stuck out her arm to protect herself. We have seen this before but it was stronger this time. After her post workout nap we watched Tim’s message on Love on Janet’s iPad. She stayed reasonably focused the whole thirty plus minutes and a few times reached out and touched the iPad, patting along the top if it till she reached my hand which she then held for a few minutes. I can’t think of a more appropriate message for Janet right now and if you havn’t heard it yet go to http://www.trinitybaptist.net and check it out. Baby step two came with Janet in her wheelchair nearing the end of my shift. She was quite restless, maybe uncomfortable maybe just not happy but she was squirming around a lot. During this time she took her glasses off, held them, folded them up and handed them to me. A very deliberate move when she could fling them away or simply dropped them.

Janet was very active on Laurel’s shift as well. Grabbing Laurel’s cell phone from her to see a picture of Nash and then committing baby step three. Lying on her right side she managed to shift herself quite close to the bed rail and use it to pull herself up as if trying to get out of bed. Again, a very deliberate move to get up. Laurel doesn’t think it was to get comfortable because at one point she almost had her head resting on top of the bed rail.

So at least three baby steps today. Praying for more tomorrow.

10:28pm
Kiko Sano Armstrong

That’s a lot of positive baby steps!! Amazing to hear the progress in the past two months! Looking forward to visiting tomorrow – might bring a few Team BEST members wink xoxoxo

July 12
1:45am
Cam Wallace

Thought I would give an update from the late night visitor to offer an alternative perspective. I have been visiting Mom later at night (usually for a few hours between 930-130). I haven’t been with her on a daily basis as my work usually takes me out of town, but this week I have especially noticed improvement in mom. Everytime I have visited she has been awake or woken up within 10min of me being there. She often holds my hand then explores her face, head, bed and especially her hair. The biggest change I’ve seen is how much more intentional she is with her movements. She often grabs the blanket and adjusts it to sit where she likes it, or strokes her hair, wipes her mouth/nose or feels around the bed with what looks like purpose.

Tonight I was really impressed with how quickly she woke up

Sorry, pressed send to early…

Tonight I was really impressed with how quickly she woke up. When I arrived she had both eyes closed and looked to be in one of her deeper sleeps, but as soon as I held her hand and began talking she started to move around. Within a few minutes both eyes were open and the exploring began. Mom is definitely battling well and slowly but surely starting to regain strength, and I am very excited to see how much more progress she makes through this summer

July 12
8:03am
Twyla Schlenker

Continuing to rally and pray for you all! Looking forward to coming for a visit and reading to Janet!

9:04am
Laurel Wallace

Larry is doing some work at Cedar Creek this morning, so fortunately I snagged another morning shift here with Mom. Unfortunately, I arrived right in the midst of Mom’s bathing, so didn’t get in to see her until almost 8:20, when she was thoroughly konked out. However, it sounds like she was awake for most of the cleaning, and she appears to be enjoying a very peaceful nap. So, nothing much to report.

The nurses on this ward seem to be doing a great job at taking steps to differentiate between day and night for Mom, something we haven’t seen during the eariler stages. Keeping the room dark at night and bright in the morning, bathing her at the beginning of the day rather than randomly throughout, etc. And now providing regular feeding times, as well. Hopefully, this will all help to get Mom’s sleep/wake cycle and various rhythms back on track, which I would imagine can only be beneficial in making her more alert and able to make more progress throughout the day. It’s nice to see!

Alright, back to my coffee.

July 12
9:23pm
Larry Dieno

A busy day coming to a close with Janet still wide awake after a very active afternoon. During her 2pm nap Physio and OT showed up as I had asked to talk about the wheelchair with OT. Of course Janet slept the entire time they were there so did not get much of a workout. We talked about some of the recent changes we have noticed and all were pleased and could tell she is making gains. Both teams will be back in the morning to give her a good workout, test us on the excersises we do with her. OT thinks what Laurel and I have been doing is more than enough to cover the lapse on weekends and that a full workout everyday is not going to heal her faster. Only time will. Keeping her moving is important and she feels Janet is in a good spot this early in the game. As she woke she was way brighter than typical so I got her ready to go for a walk. Once outside with her hat and sunglasses on we headed for the beach, well across the street from it at least. I thought she would be embarrassed to be seen there so we stayed on the hospital side of the road. She seemed to really enjoy this walk, not squirming in her chair much and keeping her head up. The sun was pretty hot for her I think so we headed for the new building and sat in the shade watching the cars go by on Pandosy St. Again, she seemed quite content and trying to take things in. She was happy to have lots of skin showing while out in the sun but inside as we sat in the old lobby I took her pashmina off and she grabbed it from me and put it back on. We stayed out for about thirty minutes arriving back at her room just in time for dinner. She stayed really bright throughout dinner listening to music and a couple story books. She took her glasses off again and put them on her lap. Her eyes seemed much brighter today and a couple times I got the feeling she was really looking at me. The transfer nurse came to chat with me and when I confirmed the positive changes we’ve been seeing she surprised by saying we should hold off on starting to place her in a long term care home. She suggested to keep watching her for another two weeks. I get the impression that if Janet continues to make progress she can stay at KGH. That would be cool!

Thanking God for all the progress and the love and support surrounding Janet.

10:50pm
Larry Dieno

Call to action.

Next weekend is Laurel’s wedding! We will be heading to the coast Saturday afternoon returning Monday mid day ish. Courtney has agreed to live at the house during this time to take care if Nash etc. We need lots of you to stop by KGH to keep Janet company. Let’s say from 2pm to 8pm Saturday, 8am to 8pm Sunday and 8am to 2pm Monday. I don’t expect the entire time to be filled but the more the better. Please let me know if and when you can help. Thanks!

11:08pm
Heidi McLaughlin

Thank you Larry for this descriptive and uplifting update. You are so kind and generous with her; bless you for all you do so lovingly and sacrificially. We will continue to pray and do our part in whatever capacity we can, to help restore your beautiful wife so that she can once again be in her own home with the rest of the family. Hope is rising!

Blessings..

11:55pm
Kiko Sano Armstrong

Ooh pick me pick me!

July 13
7:05am
Sandrine Raffault

I can come for an hour or two on Saturday around 6 pm and on Monday morning at 10am. So great to read that Janet is continouously improving!

7:06am
Heather Wallace

Oh my goodness gracious Kiko – I saw that and laughed all the way to work! So amazing

(And just looked at it again and started laughing all over!)

July 13
11:21am
Larry Dieno

Interesting morning so far. Janet popped her eyes open as soon as I got here but fell in and out of sleep for the next hour and a half. Laurel came in to participate in what I expected to be a little training session with OT and Physio. Didn’t happen quite that way but we are now confident that the range of motion excersises we have been doing are appropriate and sufficient for Janet. I asked again about hiring an outside physiotherapist and was told if we did that, the hospital physiotherapists would no longer be able to treat Janet at all due to liability concerns. So since Janet is making progress and responds well to the treatment she is getting we will carry on as usual. If any if you wish to learn the range of motion excersises so you can help out with that down the road, let me know.

During this mornings workout we put socks, shoes, pants and a shirt on her and I think she really liked that. There was a smile on her face as we sat her up on the side of the bed and she pulled her shirt down into place as soon as it was over her head. Just for kicks the team stood janet up for the first time in 59 days. She wasn’t really awake enough to take advantage of standing but it was fun to see. OT made some adjustments to her wheelchair and Janet is resting comfortably there now.

Grateful for all the positive signs we are seeing.

11:36am
Twyla Schlenker

Yes so grateful – more baby steps…..smile Way to go Larry and team!

11:37am
Wendy Purcer

FABULOUS! I think she’s just afraid that if she doesn’t speed up the progress, I’ll read The Magic Porridge Pot again, or worse yet, SING! ha GO JANET GO!

July 13
10:52pm
Larry Dieno

Another busy day comes to a close. Janet was quite bright all day even wide awake when Laurel and I stopped by a few minutes ago to say goodnight. Lots of exploring, trying to figure things out. She did get a little uncomfortable in the wheelchair this afternoon so Laurel had the nurses put her into bed and they looked at her tube site as Janet seemed to be bothered by it. It looks fine but maybe we’ll have GI look at it next week if she keeps showing uncomfortable. Laurel played some music for Janet today and when one song ended Janet gave Laurel a stare down face of disgust. Either she really hated the song or was mad it was over. Either way, she definitely knew it had ended.

Thanks very much for the enjoyable evening Joel and Kiko (Wendy & Tim too). Your friendship, love and support is appreciated beyond words. I could not imagine going through this without you and the rest of Team Save Janet. By the way team. We are working on getting some more t shirts so everyone supporting Janet and I and the family can have one. Would love it if we all wore them to the hospital each time we visit. The staff there are already aware of the tremendous support Janet has. This would be a great way to ramp it up.

Still looking for weekend coverage for July 21,22,23. Thanks to those who have stepped up already. Looking forward to the service at Trinity this weekend. Heidi will be co-teaching with Tim on Joy. Go God, Go Janet, Go Heidi!

July 14
9:08am
Laurel Wallace

An eventful morning. I walked in on what appeared to be The Great Escape. Mom had somehow shimmied her way all the way to the right side of the bed and was using her left arm to raise her head up over the bed rail, then lay her head on the bed rail to keep her weight up as she repositioned her hand further down the rail and tried to pull herself even further up. Resourceful. She seemed determined to keep going at this, so I padded the rail with a blanket to at least make it softer for her head. We did remind mom last night that Heather was coming into town today, so its not out of the question that she was trying to escape her visit wink The nurse informed me that Mom would be going for a real bath this morning. She said this happens once a week, and was very taken aback when I told her it would be Mom’s first. Looking forward to this becoming a more regular routine for Mom!

9:19am
Heather Wallace

I think it’s pretty clear she was trying to get to the airport to pick me up! She probably also requested the bath for my arrival. You can tell her she doesn’t need to dress up for me!

July 14
12:54pm
Kiko Sano Armstrong

Yay bath! Yay Heather! This is a happy day!! grin

July 14
8:52pm
Larry Dieno

Janet appears to have flipped her internal clock around again, kinda sleepy today cause she was awake a lot overnight. I guess trying to escape can make you kinda tired too. Laurel did get a good stretching in with her and Janet had her first bath today and came back from it clean, relaxed and refreshed. That was pretty much all the action during Laurel’s shift During my shift, she had flashes of awakeness but nothing major till the last hour or so. I did get to read a story and let play with the book and a flash card. She definitely had moments where she saw the book and the flash card. The was even a few seconds where she saw me. I managed to get a pretty good stretch out of her, got her all limbered up for the wheelchair and as I walked from her left to right she followed me. It was not the usual casual move of the head. This was a I see something moving but can’t quite keep up with it move. She was only that focused for ten seconds or so but it was very encouraging.

We welcome Heather back to the onsite team today and she took over with Janet in the wheelchair. They did a couple laps of the ward then waited for dinner time. Seems all the student nurses left early, the relief for the regular nurse never showed so Laurel went to rescue Janet and Heather from the chaos. Finally at 8:00 Janet was in bed having dinner with promises of another meal later on.

Looking forward to a productive Sunday.

July 15
8:30am
Laurel Wallace

Mom was awake when I arrived this morning, having her blood pressure taken by the nurse. The nurse seemed to think that Mom raised her arm for her to let her put the arm cuff on her, which she seemed pleased about. I asked if she had been up throughout the night, and the nurse confirmed that she had been. It seems that Mom has gotten her days and nights mixed up, which unfortunately makes for long and lonely nights. Hopefully that can be switched back soon. She is now having a wash and then I will give her a stretch and she will be put in her chair. Looking forward to a good day.

July 15
9:39pm
Heather Wallace

This is my first update, so please be gentle smile!

Mom seemed to hold the course today. I came in to see her at 11 and she was in her chair, looking more like herself with her robe on and her sweats. She was a bit zonked so she had a little rest and then we went outside before lunch. She stayed in her chair until about 1:30, when she seemed pretty tired, so we popped her in bed and she fell asleep for a good spell – pretty tired after 4.5 hours in her chair!

When she woke up she was pretty intent on exploring what was around her, and gave my arm and hair some pretty strong pats. I think she liked the silky fabric of my blazer. We listened to music and read “Twilight” (yes, I am forcing bad books on my mother while I can) until Laurel came for the afternoon shift. It was hard to leave her at 4:00 because she seemed the most alert I have seen her; she even took off her glasses and gave them to me twice, and at one point for a couple seconds it seemed like she really knew I was there and was looking at me.

Laurel said Mom was pretty awake during her time. They watched Mama Mia on Laurel’s laptop and Mom opened and closed the laptop. When Laurel left Mom was sleeping – we are hoping it’s a good long one and Mom can get more into the habit of sleeping at night and being awake during the day.

We are excited to see what tomorrow brings and looking forward to the arrival of Gaga on Monday and Andrew on Tuesday!

10:07pm
Kiko Sano Armstrong

Jack:
Thanks Heather for the update. We look for every sign of progress with prayer anticipation. Love to you & your family as you journey on through this extraordinary season.
Jack McLaughlin

11:51pm
Kiko Sano Armstrong

I was gonna leave Janet resting if she was sleeping tonight, but she was wide awake – so I stayed for a half hour. Told her about my day, sang a few songs very quietly, played with her hair, held her hand, prayed for her and chatted it up. Very peaceful visit. I also did get the feeling that she was really looking at me several times during the visit. When I left, I encouraged her to close her eyes and sleep smile Looking forward to a night of rest for all and a great day tomorrow xoxo

July 16
9:59am
Laurel Wallace

Mom had her eyes open when I entered this morning as her nurse was finishing her wash, but she immediately fell asleep upon the nurses departure. Physio woke her up with a little prodding later on, and she proceeded to have a good workout, with physio trying to teach her the “high five.” Still some work on that one to be done. He finished the workout by getting her in her chair, and she is now back to sleep.

I asked physio about the “restlessness” we have been seeing when she is in her chair. He suggested it was a sign of discomfort, likely influenced by tight muscles and fatigue. He reiterated how much effort she must put forth when sitting, and likened her yawns to how we gasp for air when running. He recommended we have her put back in bed when the “restlessness” sets in. For now, she appears comfy having a morning snooze and getting ready for a good Monday.

July 16
8:30pm
Larry Dieno

Day 63 was a good one! Day 62 was too. My first day without an actual hospital shift. Thanks Laurel and Heather for covering so expertly so I could do fun things like grocery shopping. frown

Thanks for stepping up today too, covering my intended shift and driving me around after my tooth extraction.

Janet was pretty quiet for Laurel after the Physio workout and sprang to life for Heather this afternoon. So much so that Heather took Janet outside and Laurel, Cam and I raced down to the hospital with Nash before Janet could fall asleep again. Nash was very excited but somewhat perplexed by Janet not communicating. She did pet him a fair bit and we think she knew it was him but it was not a full on reunion. That will happen farther down the road for sure. This evening has been a real joy. Janet was calm and bright eyed, responding to my voice and is in such a hugely better place than 63 days ago. It seems so long ago but it really has been just a blip in recovery terms. One nurse who hadn’t seen Janet for two weeks was very impressed with how far she has come along since then. I have great hope for the future.

9:10pm
Heidi McLaughlin

Thank you Larry, I hope you “extraction” doesn’t cause you too much pain. Ouch, even the word makes me cringe.

Yes, I have seen a miraculous change in Janet the last month and Jack and I have incredible hope for the future for a full recovery. She’s on the “one step at a time miracle program”. Believing God!

Hugs…Heidi and Jack

July 17
10:14am
Twyla Schlenker

Me too Larry – great Hope for a bright future…..good things come to those who wait patiently….praying for another great day today!

10:41am
Laurel Wallace

Mom has been asleep almost the whole morning (morning seems to be her best time for sleep, lately), but what a fun morning it has been! I arrived to her eyes open after she had been washed up, and proceeded into stretching as we needed her in her chair by 9am for a haircut from Mom’s stylist that was dropping by. Of course, the stretching put her fast to sleep, so she was unfortunately eyes closed throughout the cut. She is now sporting a very short new ‘do (due to the shaving, the hairstylist seemed to think it was the only option), but she looks absolutely gorgeous. Brenda, one of our favourite nurses, came by and raved about Mom as if she was on the red carpet. I can only hope Mom could hear and feel all of the positive energy in the room.

Physio dropped by afterwards and did a workout in her chair. Didn’t do as much with Mom as I would have liked, and Mom kept her eyes closed for the majority of it, but Mom seemed to support her neck well throughout most of it and got a good back stretch. Now she is back to sleep again.

Hoping the new ‘do is the start of a new push forward in her recovery, as well!

July 17
11:14pm
Larry Dieno

A quiet day overall for Janet. After her haircut ( which does look great btw) she slept pretty much the rest of Laurel’s shift only waking up in time for a visit from Heidi and Jack. I arrived just as they were leaving and Janet was pretty bright but soon fell asleep. An hour later I had had enough and started trying to wake her up. Took me about five minutes to roust her and she stayed awake the rest of my visit. Mary Gaga and Keith arrived during that time and were able to enjoy an hour with an awake Janet. The team joined them later for a nice dinner on the patio at Earls. Thanks you guys! Heather had a mostly sleepy shift this evening but Janet F dropped by to read to Janet. I think those purposeful visits from BEST are helping. Keep it going team!

After dinner we stopped by to say goodnight only to find Janet had not been moved or had her feed tube flushed since dinner a few hours earlier. We could not see her nurse anywhere so one of our favorites, Arlene, came to the rescue. Turns out there was a new admission on the ward right at shift change and that threw everything off schedule. We are very grateful for quality people like Arlene who care so much for Janet and do their jobs so well.

Looking forward to a big day of visitors tomorrow and praying for big steps forward for Janet.

July 18
10:28am
Heather Wallace

Mom had a pretty exciting morning. She was awake when we got here (apparently she was up all night again) and then physio stopped by and got mom to “stand” using a standing table (basically, they strap her into a bed and then rotate it until she is upright.) Though initially she looked like she was going to have a panic attack, Mom calmed down and managed to stay standing for about seven minutes. She got a bit of a break and a stretch before standing again for a shorter amount of time. Now Mom is snoring away, resting up before her full bath. Her nurse and student have Mom as their only patient today, so she should be well taken care of!

11:18am
Michael Aiton

Great news and more process…go “bid sister”.

Based on Janet snoring way (I thought it was thunder rumbling up in the mountains) when would be good for Karin and I to come visit? We were thinking around 12:30 q
1PM for 30 – 45 min (have to watch and keep the kids busy). Please let us know if you advise otherwise.

BTW – if anyone is looking to relax, pls feel free to come by the Manteo Resort for a visit / swim or whatever. We are in villa 123 and you can get a bracelet for the pool at the activity centre (south end of the resort where the waterside is) by telling them you are an Aiton in villa 123.

Come enjoy as we would love to see you all.

Cheers

Monkey

July 18
10:17pm
Larry Dieno

Big day for Janet. Tilt table this morning, Physio, sleep, listening to me talk to her. Thought she would fall asleep for sure. She did, long enough for me to cut her toe and finger nails but woke up in time to go for a bath. What a process! Her nurses were awesome and I was surprised at how much work it was to take one tiny little lady for a bath. They flew her out of her chair, realized she needed changing, landed her on a bedpan on her bed, waited for her to finish, flew her into the bath chair, wheeled her to the bath room. One nurse came back and completely changed Janet’s bed, very expertly I might add. She paid for school working in housekeeping at a hotel. It showed. Fifteen minutes later Janet is wheeled back to her room all clean and warm, they fly her onto the bed on top of extra sheets to help dry her, put two kinds of skin cream on all her sensitive areas, put her clothes on, roll her to get the extra sheets off the bed, position her just right and cover her in clean soft blankets. The whole process took an hour of solid work for two nurses. I can only imagine what it must be like doing the same for some of the larger patients I’ve seen. Janet seemed to enjoy the whole treatment and is really “rockin” the short hairdo. A quote from her second year nursing student.

Janet stated awake for the arrival of Mary Gaga who chatted with her for a bit then when the nurses had put her back in the chair got her ready for a walk. As soon as they were wheeling down the hallway, Janet fell asleep, and stayed that way the rest of the shift. Andrew took over the final shift of the day. Janet was trying to escape from her chair at first but then Kiko came in to sing for Janet and said Janet was tapping her hand in rhythm with one of the songs. Unfortunately it was the worst song ever written, It’s a Small World After All. Yuk. She also like Yesterday by the Beatles. Much better. As Andrew said goodnight, Janet reached for her head and punched Andrew’s on the way past. Nice finish to a strong day.

10:28pm
Kiko Sano Armstrong

What an awesome day! Praying for an amazing rest as Janet is continuing to heal. One of the nurses told me that Janet is so beautiful. You betcha she is! smile I told her wait til she starts talkin’! The nurses will love her even more. I’m also so thankful for all that the nurses do. xoxo

July 19
8:52am
Laurel Wallace

Mom is wide-eyed and VERY restless this morning, hardly stopping moving since I got here. She has been attempting her “escape” move again, getting higher and further down the rail than I have seen before. Her left leg is moving quite a bit as well, which seems to be somewhat more purposeful than the more spasmic bends we have seen before.Her expression looks like she is also really trying to figure something out. Hoping that a visit from moms sister and brother-in-law will be a great boost for her today.

8:55am
Gavin McDougald

We’ll be there in a bit – just shaking off the cobwebs and grabbing a bite – xo – G&L

8:57am
Larry Dieno

G & L. Text Laurel (403) 402-1938 to coordinate your visit.

9:34am
Michael Aiton

L & G – what phone number can I call you at?

9:50am
Gavin McDougald

Call les at 519 212-8723 – cheers

10:28am
Rick Aiton

Missing everyone frown

10:43am
Cam Wallace

miss u too uncle dickie!

12:52pm
Larry Dieno

Hello BEST!
There are a couple of time slots available for this weekend while the family is away for Laurel and Raju’s wedding. They are: Sun. between 3 & 8. And Mon. 8-10. If you can hang with Janet during any of those times it would be appreciated.

1:31pm
Kiko Sano Armstrong

I got ’em Larry

2:02pm
Larry Dieno

Love you!

July 20
12:05am
Larry Dieno

Busy busy day, lots of visits and lots of activity for Janet. Leslie and Gavin, Judy and Mike and Karin all stopped by during the day with Kiko tucking Janet in tonight with some lullabies. For each of her visitors Janet seemed to try really hard to either figure out who they were or what they were doing there. I’m sure she enjoyed everyone’s company and thanks everyone for spreading the visits out.

My shift from 3:30 to 8:15 was quite a nice change with Janet not sleeping a wink after the first three or four minutes. We went for a walk outside and for the first time I got a real sense she enjoyed the sunshine. We stayed out for almost thirty minutes and Janet stayed awake the entire time. We got back to her room late for an x ray of her left hip and leg. This was ordered to see if it is the cause of her discomfort in the wheelchair and or the stiffness in that leg. We’ll find out tomorrow. Countless times this evening Janet used her left arm to pull herself up past sixty degrees and I would centre her and help her the rest of the way. This is part of her escape move but when seated upright she seemed quite content to look around the room as long as I was supporting her. She even performed this move six times in the twenty minutes Kiko was with her tonight.

Seeing lots of encouraging signs lately. Praying for good info from the x ray and continued love and support.

July 20
11:23am
Larry Dieno

Wow, what a fun morning! Janet awoke from a kiss to the forehead from me and was very bright all through the shift. She practiced her escape move after I stretched her legs out a little and was not as successful as last night but was just as determined. My mom joined me this morning hoping to see Physio Tom in action and was not disappointed. He was his soothing and gentle self while giving Janet an intense workout. Stretching was first and Janet’s legs, especially the left one, remain stiff but Tom got them straightened out. No word on the x ray results from yesterday but Tom was excited it was done so I’m sure he’ll follow up. He and Leanne got Janet up on the tilt table and “stood” Janet to 70, then, 80 degrees for about fifteen minutes. Her heart rate went up nicely and her BP stayed in a good range. She at times seemed quite anxious and uncomfortable but I was happy seeing her reacting and being really aware of what was going on. A couple of times she almost either yelled or cried out in pain. You could see it in her face and eyes and she just doesn’t have the means to let it out yet. Feels closer and closer all the time now. We left with Janet still on the table and Tom and Leanne doing some range of motion work with her. I’m sure she’ll sleep well after that.

11:59am
Ashley Dieno

It’s extremely comforting to know she is in good hands and is well taken care of by staff. – Tortoise the hare always did win the race. Sending my love and prayers from the rainy city xoxox

July 20
11:25pm
Larry Dieno

Janet did indeed sleep well after the tilt table experience. All the way through Laurel and Raju’s shift in fact, save for a few minutes. Mary Gaga and Keith’s shift was not much more active but the speech therapist came by in response to a request from me in Janet’s chart. Nice to know people are looking in there. She gave Mary Gaga some speech exercises to do with Janet and promised to track me down on Tuesday for further discussion. Heather and Alan had a decent visit with Janet as did Andrew and Cam.

All the family gathered at our house for what would have been Laurel and Raju’s Christian Wedding. Instead it turned into a family party/birthday party for Raju. Good times. Thanks everyone.

Everyday I see more and more glimpses of Janet. I pray for continued healing and to hear her voice and see her smile.

12:31am
Nancy Jean Church

What lovely prayer requests….we can all support you in them Larry.

July 21
9:49am
Larry Dieno

Good start to Saturday for Janet. Awake and trying to escape. Mom and I told her about the crazy people at the house yesterday and all the visitors she can expect today. I showed her pictures of the backyard from yesterday but she didn’t seem to interested. Hard for her to see on the iPhone so I’ll try after the wedding on the iPad. Her nurse told us that as they were settling Janet in for bed last night she tried to say something. It was not clear what she tried to say but ” she definitely made a sound”. We’ve straightened Janet out ready for a workout with Laurel and she is having a little nap now in preparation.

9:58am
Kiko Sano Armstrong

Looking forward to a great day of visits, workout and multiple escape attempts! smile Looking forward to spending some quality time with you tomorrow and Monday, Janet! xoxo

10:24am
Nancy Jean Church

Hey Larry….I think you’ll be taking a step backward techno wise and making Janet an actual photo album for sharing this wonderful weekend.

10:29am
Larry Dieno

Digital all the way baby.

11:12am
Heidi McLaughlin

Go Janet! I’m not going to read “Love you Forever” again during my time with you tomorrow. I don’t think you need to see a grown woman again. This time I’ll read something funny so that we can both laugh.

Sent from my iPad

July 21
10:26pm
Larry Dieno

Very difficult to say see you later to Janet this afternoon but we managed and the family made it to Surrey in preparation for Laurel and Raju’s wedding tomorrow.

Janet had a lot of visitors today and she continued to attempt her escape move and Heather confirmed an attempt to say something. The family said their so longs around two this afternoon and Janet F. came on duty. She reports a quiet shift with lots of reading and Janet trying to escape.

Praying for a happy day tomorrow for Janet, Laurel and Raju.

10:50pm
Kiko Sano Armstrong

We hope you’ll all enjoy a very special day tomorrow celebrating Laurel and Raju! smile I’ve been watching Bhangra dance and music and I LOVE it!! Laurel, I’ll be dancing in Kelowna tomorrow cheering you on! wink

Rest assured, Janet is under the competent care of really cute nurses. See you Monday love you all xoxo

12:04am
Laurel Wallace

Thank you Kiko – you are wonderful!

Many thanks to everyone who has stepped up to help out this weekend. So fortunate to have you guys.

July 22
8:50am
Sandrine Raffault

Janet was very active yesterday evening, practicing again and again her escape move as Larry calls it. She was a bit sweaty so I cleaned her face with a tissue paper; she took it, hold it and was gently applying it on her face at different times. She was really cute.

I wish you all a great and happy day!

July 22
2:42pm
Larry Dieno

Laurel and Raju are married! Beautiful ceremony and a beautiful bride. Lots of pics taken for Janet. Hope she is having a good day.

4:35pm
Kiko Sano Armstrong

Congrats Laurel and Raju!!! Looking forward to seeing pics! smile

We were singing, reading a magazine as I tickled her back for the first hour. Janet has now been moved to her bed from the wheelchair, nicely tucked in, having a little nap smile

July 22
9:57pm
Kiko Sano Armstrong

Well, Janet the Houdini put us all to shame by doing countless sit-up/escape moves to work on her six pack and strengthen her neck. A nurse that hadn’t seen her in a while was amazed at how strong she had become!

She recognized the ABC song again, and seemed to enjoy listening to some tunes on my phone and kids songs on her iPod. We read for a while and she kept grabbing for my hand to get help with her escape moves. Joel came by and hung out for a while and read to her. She also took her glasses on and off, and a couple of times she handed them to me. A few short naps but awake most of my shift. I wiped her face and neck with a soft warm damp cloth and she seemed to enjoy that. A nurse informed me they are going to put her on an anti-sweat medication to help her with her sweating. That should help her be more comfortable smile Looking forward to spending a few hours with her in the morning.

10:33pm
Larry Dieno

Can’t you all enough for stepping up to care for Janet. Missing her a lot.

July 23
8:15am
Kiko Sano Armstrong

Sandrine: Nurses tell me they’re gonna take her for a bone scan around 10:30 FYI

9:00am
Kiko Sano Armstrong

Janet is awake, following me move with her eyes this morning and we’ve been having a grand ol’ time holding hands, singing, tickling her back and playing with her hair. Gentle Tom is stretching her now so I’m in the waiting room. I felt like she tried to say something a couple of times this morning. Janet eagerly awaits her family’s return xoxo

July 23
2:12pm
Kiko Sano Armstrong

More info:
New nurse Sky. Seems nice and experienced. New hospitalist (?) doctor, Dr. Main listened to Janet’s heart and lungs and said she sounds good. Examined her arm and legs. He’ll be back tomorrow to see her again. Dave H and Sheryl T came by for a quick visit. Janet is now with the other Janet. Nice to meet more Team Save Janet members smile

July 23
10:33pm
Larry Dieno

A huge thank you to all who helped look after Janet while we were away at Laurel’s wedding. Janet looks great today because of the terrific job you guys did in keeping her company. Clearly you kept her too busy though as both times Heather and I dropped by today she was in a very deep sleep. She did have her bone scan today and hopefully we’ll have some results tomorrow. Should be a busy day. Great to be back. Great to be on such a fabulous team of loving people. Praying for lots of positive news tomorrow.

July 24
11:00am
Larry Dieno

Busy day for Janet already. She had a good wash down and her meds as I arrived this morning. A little nap then a major workout with Tom. Got her “standing” on the tilt table again. Really gets the heart going. Tom noticed she did not yawn once during the whole workout. Either he’s not as boring as he used to be or Janet is getting stronger. I’ll go with stronger. Nothing personal Tom. Janet is having a little nap now then hopefully I can start telling her a little about the wonderful wedding we got to experience.

I met with the Hospitalist, Dr. Main, to discuss the bone scan from yesterday. The cyst that showed on the X-ray is nothing to be concerned with. There is some bursitis in the left hip that she likely got in the early stages when she was not able to move at all. Dr. Main expects that to heal on its own over the next little while. Janet’s right hand and left leg are getting more difficult to straighten out and both Dr. Main and Tom are uncertain as to how to remedy that right now. They are aware of it and for now we carry on as we have been with as much range of motion as Janet can tolerate.

Planning on a walk in the sun as soon as Janet wakes up.

1:30pm
Nancy Jean Church

Sun????? oh that’s right you have returned to Kelowna while I remain in Vancouver

1:31pm
Kiko Sano Armstrong

Nancy I think it’s time you moved out to Kelowna wink

1:31pm
Heather Wallace

I agree!

July 24
11:31pm
Larry Dieno

What a difference ten weeks makes! Ten Tuesdays ago Janet was in a coma. Today she is helping to dress herself. Then she could not move. Today she can use her left hand to grab the rail in the elevator and pull her wheelchair forward. Then she could not open her eyes. Today she can take off and put on her glasses. Then she had five tubes plugged into her plus one spare port plus two monitoring systems. Today she only has the one feed tube. Ten Tuesdays ago Janet looked pretty scary. Today Janet looks PRETTY!

It’s encouraging to look back and see how far Janet has progressed. Today she continued to build on that progress with one on command lifting of a finger for the Speech Therapist. No, not that finger. The pulling forward of her wheelchair and opening a book on command once for Heidi and I. She enjoyed a walk in the sun with Heather and story time with Janet F. A very tanned Wayne dropped by as well and I’m sure that will make Janet want to get outside even more. She normally is quite tanned by now. I met with Connie, the Speech Therapist who gave me some simple tasks to teach Janet with an towards bigger things down the road.

A solid ten week anniversary. Praying for double the progress over the next ten.

11:32pm
Brent Ronning

smile

July 25
7:32am
Twyla Schlenker

Larry this is a great recap and so encouraging! Looking forward to a visit with Janet on Friday smile

9:02am
Nancy Jean Church

Happy 10th Anniversary Janet!

Jul 25You added Esther Isaac.
10:03am
Larry Dieno

Great start to the day! Janet was very bright and trying to escape from the right side of her bed when I arrived. She certainly knew someone had come into the room as she looked right at me. As I was talking to her she rubbed my shoulder and arm a little bit. I’m taking that as a I know that’s you moment. Since she was so bright I decided to stretch out her legs prior to Physio arriving. Much better result than yesterday as I got them pretty straight in about fifteen minutes. Tom was happy with that and worked her pretty hard with a lot of sit balancing work. Janet was able to do most of the movement with very little assistance. We both got good responses to the command “look up” and Tom observed that Janet is very aware of her surroundings and knows what she wants. She has a few pieces of the puzzle put together for getting out of bed and sitting up. We will be helping put the rest together over the next few weeks. Dr. Main stopped by for his morning visit. All seems well medically and he is impressed by how active Janet is. We discussed her vision and the fact there has been no noted tracking by Janet yet she does see things as evidenced by her grabbing my phone yesterday.

Waiting for her turn in the bathtub now then hopefully a walk in the sun. God is good.

11:41am
Sharon McFadden

Janet has come a great distance with the Lords healing hands upon her and your unconditional love Larry,not to mention the love and support from your combined families. Keep up the good work with all your support for Janet and each other. My love to you all.

July 26
11:25am
Larry Dieno

Another busy day for Janet so far. Awake as I arrived we started stretching. I found her right hand clenched up pretty tight so I worked on it for a good ten minutes. Her legs stretched out pretty good after another ten minutes then Tom arrived to get her ready for the tilt table. Janet stood at 70 degrees for a solid twenty minutes before taking a break. Her BP stayed in a good zone and her HR got going into the 120’s. Great workout. She seemed anxious and was reaching around a lot. Grabbed the BP monitor and pulled it toward her, placed the hose for the BP cuff over her head, and when Tom raised her up the second time we heard Janet make a sound. I asked Tom if he thought it was a hiccup, he said no, for sure a deliberate sound from her. Likely a response to pain but still good to hear her voice.

After all that it was tine to get ready for a trip down to Occupational Therapy. Since Janet has no spontaneous movement in her right arm or hand her muscles are shortening there. Jane is going to fit Janet’s right hand with a splint to help keep it open. It will be custom built for Janet and she will wear it when sleeping. I just got back from delivering Janet to OT. Good thing I went along as the porter took her to the wrong place. Jane will text me when she’s done and I will go get Janet. Good thing I’m not in a union anymore.

Thanking God for the small positives we are seeing each day and praying for full healing.

11:47am
Kiko Sano Armstrong

That’s a great workout Janet, good job!! So, the last couple of times I’ve visited Janet, I heard these little sounds come out of her and I thought they were hiccups too…perhaps not…I’ll keep paying more attention to that wink

PS…can the OT ppl also make a splint to make me taller I wonder?? (I could use a little boost, literally)

July 27
10:45am
Heather Wallace

I type this to you in spurts in between assisting Mom with sit ups. Mom was awake and in her chair this am when I got in. She hadn’ been stretched or dressed so I asked the nurses to put her to bed so I could stretch her, but Tom rolled in before the nurses got around to moving Mom. Tom gave her a stretch the got Mom to do some sitting and balance exercises on the bed. Hospitalist Blair stopped by to check in during Tom’s workout. They had to coax Mom awake a couple times during the work out, but now she s pretty awake and prepped for a strong day.

Today is spa day so I gave her a hand massage and a manicure is next on the docket.

10:47am
Twyla Schlenker

Sounds like a productive day already – spa day! Way to go Heather!!!

11:27am
Heather Wallace

Eek, manicure skills are sub par. Maybe the bruised nails looked better…

12:56pm
Heidi McLaughlin

Bless you Heather for being here today with your mom, I know she is enjoying your company. I am praying for a strong and productive day for you and Janet.

Hugs…Heidi

July 27
10:08pm
Kiko Sano Armstrong

When Joel and I arrived tonight, Janet was calmly tucked in bed. Soon after, she started her sit-up moves. Joel read to her and then I sang a bit – Joel said for a few moments he sensed she was really looking and listening. I played James Taylor’s You’ve Got A Friend and she became calmer listening to the song. A shorter visit today but a good one nonetheless. Always love seeing her and holding her hand. We patiently wait on God as He continues to heal Janet in His perfect timing. Hang in there Team Save Janet!! xoxo

July 28
11:43am
Larry Dieno

A busy start to a weekend of change for Janet. Mr. & Mrs. Korotana put her through her morning paces with some stretching and chatting and reading. As they said goodbye at 10:00 it truly seemed as though Janet got teary eyed, she even rubbed her right eye. I feel she knew what was happening and knowing what a deep connection Laurel and Janet have I am not at all surprised to see some emotion. Have a safe trip back to Calgary Raju and Laurel! Thank you for serving so well! See you in three weeks.

Chatted with Dr. Main this morning. Asked him about a mysterious blood stain on Janet’s bed sheet and a small gauze taped just above her left ankle. There is no mention of it in Janet’s chart so we will have to wait for the night shift to come back to find out more. Strange. I also asked him about Janet wearing clothes and PJ’s instead of hospital gowns. The gowns are often bunched up or completely off her back and cause her some discomfort. He and the nurses are fine with loose fitting clothes during the day but would prefer a nighty for bedtime as PJ bottoms would be a hassle for the night shift. Dr. Main said he sees a difference between Monday and today. Janet is more purposeful with her movement, she is making more complicated moves with her head and left arm and seems more deliberate about everything she does. Nice to hear and he agreed that it’s easier to see the differences when you only see Janet occasionally. I can see change but unless I look back a few weeks at these posts it’s hard to appreciate how significant they are. We are still working with baby steps but they add up pretty quick into significant progress.

I got Janet dressed into exercise pants and a t shirt and she seems quite comfy in her wheelchair. Waiting for her to finish napping then out into the sun we go!

Thanking the Team for the amazing support. Praising God for all I have been blessed with and praying for healing, specifically for Janet’s right arm and her vision.

1:09pm
Heidi McLaughlin

Thank you for these great updates Larry, Jack and I look forward to them each morning and evening. Blessing on yours and Janet’s day.

Sent from my iPad

July 28
11:00pm
Larry Dieno

A great beach day in Kelowna and that’s where Janet got to go this afternoon. I don’t think she knew we were at the beach but she stayed awake the whole thirty minutes we were away from her room and I’m sure enjoyed the sunshine on her arms and face. She was pretty alert for most of my shift and I think the splint on her right hand is helping. Her hand was not nearly as swollen or as difficult to open.

Heather took the afternoon shift and had a good visit with her mom before heading back to Ottawa tomorrow. She had a few moments where Janet really seemed to be looking at her and aware that she was there with her. Janet even reached out and rubbed Heather’s shoulder as she said goodbye. Thanks for all your help Heather. You have been a big help to me and I know your presence has helped your mom’s progress.

Janet continues to improve. Thanks all for your continued prayers.

July 29
10:21am
Larry Dieno

An early start to Sunday as I dropped Heather at the airport for 6am, home for breakfast, then inspired from watching the women’s Olympic road cycling race, I pedaled into the hospital.

Janet awoke almost as I entered the room, she got a cleaning from her nurses and with her exercise clothes on we got started on her workout. Her right hand remains less swollen and more flexible thanks to the splint. It took me twenty minutes at least but I got both legs stretched out really straight. The straightest for the left leg I’ve ever had it and there is far less spasmodic shuddering the last couple of days. Progress.

Dr. Main came in during the workout and looked at Janet’s peg site and checked the rash on her lower back. Both seem to be well under control and no further action is needed. This is his last day of duty and I thank him for his diligence, caring and approachability.

With Janet all stretched out and awake I decided to try sitting her on the side of the bed Tom style. Janet popped right up into position and seemed to really enjoy being up like that. So much so that she fell asleep after about five minutes. She did have a good workout so a nap is ok I guess. When she wakes I’ll see if we can get her in the wheelchair and go for a walk before lunch.

Great day so far. Safe flight Heather!

10:33am
Heather Wallace

Thanks for the update Larry, and thanks for all the hard work you put in every day. I am so, so sad to leave Mom, but am so confident she is in the best care possible with you. I know I speak for my siblings too when I say we feel so fortunate and blessed to have you as a part of our family. We could not ask for a better husband, or caretaker, for our Mom.

July 29
8:57pm
Larry Dieno

Strong strong day for Janet! My strongest with her in a long time.

Her morning nap was short and she was in the chair and out the door before she had time to think about sleeping again. We walked to the beach, right down to the water this time as there was hardly anyone there yet. She seemed to really enjoy being there as it wasn’t too warm yet. She took her sunglasses off and lifted her face to the sun. First outing in the chair where she wasn’t leaning forward ” in pain ” all the time. We were out for about half an hour and Janet stayed awake the whole time. Back in the room it was time for some music then lunch. She fell asleep at noon during lunch so I took that as my cue to head home for a break. She must have had a good rest cause when I got back at three she was wide awake and trying to escape from bed. As I sat with her I noticed some strange movement under the blanket. When Janet had the calf compressors on you could see them inflate and deflate under the blanket but she hasn’t had those for weeks now. I lifted the blanket to see what she was doing and not only was her left leg moving, she was deliberately moving it in an effort to get it over the edge of the bed. She could only move it a couple inches but she was very determined to get it over the edge. I grabbed Dr. Main so he could see and luckily she did it just as he walked in the room. His words to me were, “you should be smiling…”. He reiterated his take on the progress he has seen this week and left the room with a big grin on his face.

I stretched Jabet out some more and sat her on the edge of the bed again. She seems to really like that. Back in the wheelchair we walked all around the outside of the property stopping in the shade on Pandisy St. to watch the clean up of a car accident. Janet reacted to the traffic and people walking by and stayed awake the whole hour we were out there. Janet actually stayed awake the entire shift, even through Tim and Heidi’s talk on Joy, and was going strong when I left just after seven. Before going back to bed she manage to undo the strap for the tray on her wheelchair. She was very alert, hearing stuff and seeing as well. She twice reached out for the arm of a chair in front of her. It was too far away for her but she for some reason wanted to touch it.

I am really encouraged by what I saw today and can’t wait for tomorrow. Keep praying y’all.

9:02pm
Kiko Sano Armstrong

Huge steps forward today!! It is so incredible to see how far Janet has progressed. Keep it going Girl!! We’re all cheering you on!!! xoxo

11:17pm
Nancy Jean Church

Heather..I agree.. Larry is awesome.. God is supporting him as are all of us.

Pretty typical for Janet to keep her goals to herself and work away at them diligently.

40 degrees in Athens….beat that Kelowna!

July 30
10:30am
Larry Dieno

Janet was very popular when I arrived this morning. She had just returned from a bath and her new nurses had her in her wheelchair ready for the day. A vampire was just finishing taking blood and the nurses were trying to figure out which kid was the one in the magazine photo in Janet’s drawer. I explained that it was just a hairstyle Janet was considering. A funny start to the day but since then pretty boring. Janet has been sleeping the entire time. I’m heading home to be productive for a while and I’ll come back this afternoon.

July 30
10:40pm
Larry Dieno

The afternoon shift was much more fun. Janet woke up as soon as I entered her room. Probably because I knocked over the tray for her wheelchair. Anyways, wide awake and in bed for about an hour beforehand. Nurses said she woke up a half hour after I left in the morning and was bright until they put her to bed just before two. I did some range of motion work with her as the nurses were not sure if Physio had been by or not. I found both legs to be quite tight today. I’m hoping it’s because of poor positioning overnight and I asked tonight’s nurses to try and keep her legs as straight as possible tonight.

After the stretching it was back in the chair for a walk to the beach before dinner. I handed Janet her hat and she promptly put it on her head and seemed quite proud of herself. She also seems to know about pushing the button for the elevator. I’ve tried getting her to do it a few times and today she really stared at it and I hardly had to move her arm to it. On the walk to the beach she was really looking around a lot and when we got to a shady spot she took off her sunglasses. Once back in the sun, she put them on again. We sat in the shade on Pandosy St. again and every time someone walked by us Janet turned her head watching them. I have never seen her so aware since this started. We were outside for forty five minutes and Janet was very awake the entire time.

Back in the room for dinner I tried reading a letter from Nancy to her. It’s a nice recap of Laurel and Raju’s wedding but I found it too emotional to read out loud to her so it’s on the window sill if anyone wants to give it a go. I think it would be good for Janet to hear and thanks for sending it Nancy.

We put Janet to bed with her legs reasonably straight at 7:30 with her showing signs of tiring but still bright enough to watch me move about the room preparing to leave.

Praying for this progress to continue.

July 31
8:22am
Twyla Schlenker

Oh Larry this is soooo encouraging – love the steps Janet is taking! Go GOD GO Janet!!!!

10:55am
Larry Dieno

What a day so far! I arrived just before 8 to Janet snoozing away and her nurse coming in to tell me that Janet had “fallen” out of bed last night. I use quotation marks because we all know Janet has been trying to escape for a while now and last night she did. The story so far is her nurses had just repositioned her and left the room then heard a thump. All the rails were up on the bed but Janet had pulled herself up using the high rail then worked her way to the lower one and fell over it. There is good and bad in this of course. The good being she is way more mobile than ever and is taking deliberate action. The bad is she could hurt herself in the process. In light of that there is a note in her chart to make sure all bed rails are up, that Janet is positioned more to the right side of the bed as those rails are harder for her to reach. If she continues to get out or close to it they will get a bed that goes really low to the ground so there is less risk of injury.

Physio Tom is away on vacation and Sean is filling in for him. What a workout he gave Janet! A much more aggressive approach than Tom and he really had Janet moving. On the Tilt Table he had her twisting and turning like crazy then raised her to 35 degrees and Janet, using her left arm and core got herself to a sitting up straight position! After seeing that I can totally understand how she got out of bed last night. Sean had her doing sit ups (3 of them) and then put her in the wheelchair where she is now snoozing.

Monica, the Transfer Nurse just came in to tell me she has had to start the process of placing Janet in a long term care facility. I’m not happy about this as I thought with the progress being made she could stay here. Apparently Tom doesn’t feel the progress is enough to justify keeping Janet here. I will argue that point with the rehab dr. whose call I believe this really is. Monica says no doors are closing but we need to open others.

Waiting for Janet to wake from her nap, hopefully before lunch. Praying for rapid progress.

12:07pm
Gavin McDougald

Cool news – one morning you’re going to arrive and Janet will already have sneaked out for some rays. Encouraging stuff.

1:13pm
Nancy Jean Church

To the team in Kelowna, please feel free to read and even reread my letter to Janet. She knows how much sharing life with friends and family means to me and that letter is meant for sharing. The wedding was a great day for Janet, Laurel, Raj and the family.

Jim, and I and Gillian were lucky to share it with the Wallace/Dieno clan.

July 31
4:59pm
Heidi McLaughlin

What a delightful time I had with Janet at noon. She was sitting up when I arrived and when I said, “Hi Janet, it’s Heidi” I felt like she looked right at me and recognized me. I got out 3 books to see which one would captivate her attention. She held the first book and as I read her the stories she seemed quite engrossed. Then I believe she felt she was done. She took the book and sat it down on the chair beside her. Then with the second book (which was a colorful children’s book), I asked her to help me turn the pages. She used her thumb and I helped her turn the pages. After a while I would ask HER to do it, and with a little nudging and help (very little), she was able to turn the pages. Book No. 3 is the children’s Bible Story Book. It is heavy and I laid it on her lap, and as soon as I did, she took the pages and let them rifle through her fingers. She did this over and over again as though she knew exactly what she was doing. I also called out her name several times, and I believe she knows her name because she responded each time. It was a rich time with her today, and I didn’t even want to leave. I am amazed at her continued progress and alertness. It is a joy!

July 31
9:15pm
Larry Dieno

Well I was starting to feel a little like Janet was avoiding me today. She woke up soon after I left this morning and went back to sleep just before I returned in the afternoon. She slept for almost two hours which did allow me to do some online work while waiting. Kathy from OT came by to check Janet’s arm brace and I got her to adjust the back of the wheelchair and the leg rests to allow Janet to sit straighter. Sean from Physio this morning placed a rolled up towel for lumbar support and it eas amazing how it improved Janet’s posture. I could move her right arm into perfect alignment where before it was always kind of crooked. Kathy will install a lumbar support in the seat back soon.Cam dropped by and Janet woke up soon after that. After her dinner I took her for an almost sunset walk to the beach. Once again when I put her hat on her lap she picked it up, look at it then put it on her head. Once outside she really seemed to enjoy being outside and seemed to be watching three little kids playing in the water. We walked back up to Pandosy St. and watched the cars and people go by. Another really enjoyable trip outside. Back in her room I sat in front of her talking to her and she leaned forward, reached out and grabbed my necklace. She held the medallion and spun it around to the back of my neck a few times. While holding it she let herself rest back in the chair then using only her core muscles came all the way forward again. She did this a few times. Pretty impressive.

Talked to the night nurses about Janet’s escape last night. As expected they played it down. Carolyn did say she had just repositioned Janet and gone to check another patient. When she came back, walking by Janet’s door, saw she wasn’t there. She was on the floor on the left side of the bed. They kept a really close eye on her the rest of the night and will do so again tonight. The bed is down as low as it will go and all the rails are up and pillows are lining the rails to limit what she can grab onto.

Praying hard for rapid healing and for guidance with the long term care issue.

10:26pm
Kiko Sano Armstrong

Tonight Janet and I hung out looking at scenery and flower photos, singing a bit (still liking the ABC song), but mostly exercising her leg! Yes she can move it now, and her toes wiggle when she does her shin flexing action! So cool. She seemed quite happy about this smile Continuing to pray for the best solution to long term care as she makes toddler strides (they don’t seem like baby steps any more…?).
smile xoxo

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s