The Superbowl hangover has worn off and the sun is shining making Janet’s spirits higher. Of course the hangover was not alcohol induced but caused by that devastating interception thrown in the final seconds of a great game. Being a pretty serious Seahawks fan Janet was a little down after that loss. Our friends Janice and Rod watched the game with us and having them around made it easier to cope for sure. Janet wisely observed that the game is just entertainment and we were greatly entertained all season.
Is this football food? Barely.
Entertaining is not the word used to describe Janet’s visits to H2O, however her attitude and performance is improving. Yesterday the river was flowing very fast so it was a real struggle to walk in both directions. I assisted Janet the vast majority of the time as it wasn’t safe for her on her own in most places. The more she walked the better she got at it and for the last ten minutes walked on her own in a relatively calm side pool. Believing in herself seems to be a key component to her success and she seems to have to generate that belief herself or get feedback from someone she hasn’t seen in a long time. Case in point, today’s visit with Sandrine. It had been four months or so since they had seen each other and Janet was a little hesitant to stop by today. Afterwards, she was thrilled that we did, commenting on how nice Sandrine is. The two of them certainly do click and Janet’s energy level rose noticeably as soon as Sandrine appeared. Hearing how much she has progressed from Sandrine surprised Janet and I believe she accepted that feedback much better than from anyone else lately. Janet impressed us with the questions she asked and the way she conducted herself the whole time.
In the spirit of growing Janet’s independence as well as believing in herself I dropped her off at the library this morning for the Living With Stroke seminar. She was OK to give it a try on her own and had Shirley, the lady we give a ride to, for support if needed. Janet was excited to watch the little kids at story time before heading in for the seminar and told me later that someone had to come and get her as she was still watching the kids as the seminar started. When I arrived to pick her up almost two hours later she and Shirley were waiting in the foyer and Janet was all smiles feeling pretty good that she’d done that on her own.
For your information I am in the process of moving this blog to a self hosted website, brainaneurysmsurvivor.com which is up and running now although not at full speed. Check it out and stay tuned for the official launch. This site will likely be active for another week or so.
Praying for an increase in Janet believing in herself and to find some more opportunities for her to do things on her own.
It’s been a fairly busy time since our last post. We have started attending a weekly seminar called Living With Stroke put on by the Heart and Stroke Foundation and lead by a former nurse and a stroke survivor. Each week focuses on a different aspect of post stroke life and attendees share their experiences with the group. So far it’s been quite positive and Janet has been willing to share when appropriate and is enjoying the conversation. This week’s session was on Physio Therapy and I thought Janet would have been all over that topic but I had to prod her to say something a couple times. The last two years of her life have been focused on physio so maybe she’s fed up talking about it. Understandable. One of the other attendees lives right around the corner from us so we’ve been giving her a ride during which she has shared a lot of her story and that has intrigued Janet and I think made her feel a little better about herself. It’s always good to be reminded that she’s not the only one out there.
That seminar is every Tuesday morning and Janet usually manages a trip to H2O every Monday, Wednesday and Friday morning plus has SheLife Wednesday evenings so you can see how her weeks are pretty full. The outings to H2O are becoming more challenging to make happen. Partly because of the gloomy weather we’ve been having here and partly because it’s a whole lot of effort to get out the door then get changed then get wet and do it all again in reverse with Janet not really seeing the benefit and not having any fun unless there are some well behaved little kids in the pool with us. I’m seeing improvements in her walking, her left foot now comes more forward each step than previous. Janet doesn’t see that however and is complaining more and more about going. I’ve shortened the workout to just walking in the river as I think that has the biggest benefit to her followed by a stretch in the hot tub. Janet is now walking on her own both with and against the current as long as it’s not flowing too quickly.
Working out in the pool has its benefits for sure but the fun factor seems to have worn off and Janet is noticeably missing the cardio workout she got on the bike at Connect. We happened across a decent exercise bike for the house the other day and Janet has willingly ridden it a few times now. She can watch TV or listen to a podcast or music while she’s riding and best of all she doesn’t have to leave the house to do it. We plan on consulting with Alyssa at H2O next week and may shift the workout priority to the bike and reduce the visits to H2O. I don’t think its fair to keep pushing Janet to do stuff she doesn’t want to do.
Pedalling with Ellen and J Lo.
Socially Janet is doing well getting reacquainted with the ladies at SheLife and we were blessed with an invitation to dinner at our neighbour’s house tonight. Janet contributed well to the conversation and is showing more signs of an improving memory. She bettered me today when we were talking with Debra at Connect. Debra has a tough time talking and was struggling to answer my question as to when her move out date is. In frustration she drew something in the air that Janet immediately recognized as the number 15 and knew Debra meant she’s going home February 15th. The air writing didn’t register with me at all and Janet is still laughing about that tonight.
There’s certainly been no lack of activity for Janet lately. The weather broke a little late last week and we were able to drive Courtney down to the coast where she left for Honduras yesterday after spending a few days with Ashley. We had dinner with them and Mike, Brittney and Ethan Thursday night then met my mom at Park Royal Friday along with Courtney and Ashley for a really nice visit and lunch.
Courtney, Mom, Janet, Ashley, Me
The ladies after a fun lunch.
This was the first legitimate road trip without the wheelchair for Janet! She did very very well walking everywhere we went, climbing two large flights of stairs at Stefanos and walking for about three blocks twice at Park Royal. The hotel we stayed at was easy for Janet to get around and I never once felt like we missed the wheelchair. She traveled well again and I look forward to our next adventure.
Around the house Janet has been helping out a lot and getting more confident in her abilities. We set some goals for ourselves and that has helped Janet overcome her resistance to a few things. Her big goal for 2015 is to walk without holding onto anything and since setting the goal I only have to gently remind her to let go now. She seems very willing to try for short distances and I hope she can get there but her strength and mechanics have to improve a lot to give her a chance. Janet would also like to be able to vacuum the house, “so you don’t have to”, her words, honest. We’ve yet to try this one but I think it’s achievable as are two others, walk out the front door to the street on her own and get herself ready for bed completely unassisted. The front door one will have to wait for the snow to be gone but the ready for bed one should be reached in a couple weeks. Janet shocked me the other night by managing to undo her bra by herself. That’s always been what I considered impossible but I should know better I guess.
The pool exercises are going well but I miss the workout Janet got on the bike before. I think the cardio aspect of that was a real benefit to her so we are keeping our eye out for a bike to have at home. There just isn’t time for another or an extended trip to H2O. Janet is often reluctant to go but pleased with herself after each visit and can see that she’s improving.
The calendar keeps filling and Janet seems happy with how things are going with the exception of the weather. Hawaii anyone?
IN JANET’S WORDS:
The drive down was fine and there was lots of fog on the road near where we were driving to. It was a bit scary. I managed to climb two flights of stairs at the restaurant we went for dinner at. It was hard work. The next day we met Judy at Park Royal and walked a lot there too which was not fun but the lunch with everybody was. I’m doing better with my exercises at the place I go to. The water was moving really fast this week and that is hard to walk in. Today we went to the place I used to go to and did a little sing along with Deb. I think she had fun and that is what matters. I was glad I wasn’t staying there and it was nice to visit people.
Seems like forever since I’ve been here and I must admit the break has been nice. It was getting hard to find things to talk about on a daily basis for sure and now that Janet being at home is “normal” I have to dig deep for a weekly talking point. I think “normal” will be it for this one.
We are definitely into a routine around the house, not the most productive routine but one that has Janet responsible for some basic duties and helping out with others. She is improving with her abilities in the kitchen and has taken easily to building her own sandwich for lunch, all the steps, unassisted, with the exception of needing help to open the mustard sometimes. Janet is happy to put things away and do light duty cleaning but is reluctant to try the big things like vacuuming. Soon, I hope.
The exercise routine is ok and I hope will get better in the new year. Janet is doing really well in the pool, already graduating to walking forwards and backwards without the pool noodle. Today I took her into the River Run for the first time and she handled it better than I thought she would. The Botox has completely worn off now and I notice Janet losing some control of her right leg even out of the water. We didn’t make it all the way around the river as it got too deep for Janet at one point and she was not wanting to swim. Next time. Her attitude about going to H2O hasn’t improved much but once there she does good things and comes away telling herself she did good so hopefully with some more time and recognizable improvements for her she’ll be more willing to get out the door.
The best part of Janet’s new normal is the relaxing evenings she’s been enjoying. We’ve watched movies, The Voice and of course our beloved Seahawks. Janet looks forward to those couple of hours to be entertained and is far more engaged in what she’s watching than ever before. I will still pause and explain things to her periodically only now she actually gets what I explain and I love her reaction at the end of a good movie or game. It’s totally appropriate to what happened and often includes her patented fist pump.
The fist was pumping tonight after the Christmas Eve service at Trinity. Janet really really enjoyed it, more than any event I’ve taken her to lately minus the Seahawks game. The music was great and the drama portion easy for her to understand and see. We went tonight as we are off to San Diego for eight days tomorrow. Janet is super excited about this trip and the very un-normal Christmas this will be. Stay tuned for pics and other things.
We wish all of you a very Merry Christmas and thank you for your love and support. Peace.
Yesterday was the big day for Janet’s first venture into the pool at H2O and she was not looking forward to it at all. Her memories of pools are completely associated with cold and having to “work”. I promised her this time that if its not warm or fun she wouldn’t have to go again. Alyssa reinforced the fun aspect as soon as she saw Janet and thankfully there had yet to be any hint of cold.
The focus of pool work this time is to increase Janet’s ability to walk so the entire session was spent in the wave/kiddie pool, waves off of course and the water nice and warm. Janet entered without a wetsuit by walking down a ramp then out to about chest depth. Alyssa led her through a series of exercises that had Janet walking forwards, backwards and sideways, concluding with Janet stepping up and down with a pool noodle under her foot to provide some resistance. Janet was last in a pool in August and was unable to keep her right foot on the bottom even for a few seconds. Yesterday she was pushing that noodle down strong and never for a moment had any trouble getting her right foot down. Even Alyssa was impressed and happily took Janet over to the hot tub for some stretching to finish things off.
Things went so well in the pool that Alyssa recommended switching that to the primary activity for Janet now. Water therapy worked well before and she believes it can again. Janet is up for it and is happy to not have the leg presses or treadmill in her life anymore. Those weren’t fun or very effective. Janet will continue to ride the bike now and then.
The pool experience was a very pleasant surprise and set Janet up nicely for exercise being fun again. She enjoyed the water, was warm enough and really likes Alyssa. Praying for the fun to continue.
We are now another weekend closer to Janet coming home full time. There were not a lot of direct attempts at reaching the three goals she has left to achieve but Janet participated in many activities that helped her. Each day there was lots of walking, both freestyle and with me pulling her along. The cane was not used once all weekend and the wheelchair was used only for some long outside walks we took. Each day saw Janet do a 200 meter walk with today’s effort clocking her best time by thirty seconds. I’ve been pulling her along on these to try and get as close to the speed she needs to go but we’re still taking just over eight minutes to complete the route. Janet is still too scared to go any faster. Inside, Janet is showing signs of being less scared. She loves to cling onto whatever she can reach but hesitates much less now when approaching an open area and she has to let go of something. The confidence and stamina are building in the kitchen as Janet stood and helped there a lot this weekend. She’s also learning to get herself into better position before attempting a task. Previously she would start doing something the second she could reach it instead of getting herself strong and stable. Janet practiced her reading every day and continues to read faster and with more expression.
Friday night was the re start of our Small Group and we had a really interesting discussion with our three guests and Janet participated well and is looking forward to keeping this going on a regular basis. During our walk on Saturday we ran into a few of our neighbours along the way and had some interesting chats with them. Janet is getting to know more people around here and is liking them too. One of her KGH Rehab Pool partners was at Trinity Saturday night and spent some time reminiscing with Janet but she doesn’t remember much from those days. Tonight we enjoyed a yummy dinner and good conversation with Randy and Claudette, and Henrik and Sandi whom we haven’t connected with for a long time. Janet agreed it was a fun and interesting evening. All in all it was a fairly social weekend.
There were many positives for Janet this weekend, encouragement from others, recognizing improvement in herself and socially functioning at her highest level since this all started. Janet will still have long moments of silence where I wonder if she’s tuned in or not then she’ll contribute in a way that shows very clearly she’s been paying close attention and processing well too. Fun and encouraging to see.
Praying for a good night of sleep and an energetic and confident Monday.
It’s been a fun and active start to Janet’s mid summer break from Connect. Laurel and Raj were here Friday night till Monday morning and provided Janet with some meaningful and exciting family time. We all walked around the Farmer’s Market Saturday morning then stopped by to say hi to John. Janet is always quite proud to introduce her family to others and John was very pleased to have a larger audience to regale with his stories. It took a little convincing but we got Janet into the pool and you can see from this video, she hasn’t lost any strokes at all.
We arrived early to church on Saturday as I wanted Janet to walk all the way in on her own. Wouldn’t you figure, she walked so fast the whole way we had tons of time to spare. Ya just never know. Sunday was a day at the beach, literally. Janet was happy to sit in the sun and watch Laurel, Raj and I make our first attempts at Stand Up Paddle Boarding. We all did impressively well I must say. After a nap at home we walked back to the beach area for a nice dinner at Smack Dab followed by the now requisite stop at Menchies for dessert.
The good-byes this morning were not as teary as in the past and Janet and I had a productive day preparing for our trip to Nanaimo tomorrow. I even got Janet in the pool again and we are getting steadily better at entering and exiting.
These first few days have been quite vacation like for Janet with today being an exception as I put her to work with me around the house. Since she is using her wheelchair less and less we rearranged the kitchen so that the things she needs for breakfast are reachable for her when standing. She did some walk throughs of the new set up today with the first real attempt coming in the morning. I’m confidant she can do this.
Praying for a great night of sleep and a safe drive and ferry trip to Nanaimo.