That was quite a weekend of celebrating Janet’s homecoming! The house seemed to be buzzing non stop from Thursday night through Monday morning with Janet right in the thick of the action the whole time.
The out of towners arrived Thursday night in time for a visit with Janet at our house. Janet was excited to see Laurel, Heather and my mom, almost as much as she was for the Seahawks victory that night. Her priorities were clear though as she elected to stay home and watch the game while I went to the airport to pick everyone up. Go ‘Hawks!
Friday’s homecoming party was everything Janet had waited for and more. She said she “talked to way more people in one night than ever before”, and she was probably right. I had asked her to try and move around the house as much as possible during the party to prevent her sitting for hours on end. Janet made a great effort at doing so throughout the night but was hindered by always having a gaggle of people around her. It was funny to watch as Janet would sit in one area, a group would gather around her then she’d somehow break away to another area where a different group huddled around her. This went on all night and was exactly the treatment I wanted Janet to have as people showed their love for her. Everyone that came by is a valued member of the team and helped to reinforce how Janet’s hard work has paid off.
Here’s some photos of Janet with our guests. I know I didn’t get everyone but we do sincerely thank you all for being here.
Wendy and Tim
Barb and Gary
Betty and Allan
Bonnie and Toly
Curtis and Katherine
Dave and Nicole
Rod and Janice
Mom, aka Judy
Recovery time never really happened until Monday as “party mode” was in effect Saturday and Sunday. Janet bravely agreed to go for Indian food Saturday night, something that is typically way too spicy for her. She quite enjoyed her butter chicken which I’m thrilled about as now we can go for Indian more often. Since we didn’t get to visit much with Barb and Gary on Friday they joined us for dinner Sunday with special guest Heather. There was a booking problem with her flight home that afternoon so she got to stay for dinner which was really nice for us.
There were only a few moments all weekend where Janet was overwhelmed and she corrected her mood quickly and enjoyed everything immensely. There was a lot of walking including some laps around the house coached by Laurel and on Monday Janet never balked at going to H2O for a bike ride. She was tired after her ride and rightly so, it was a good one, especially after hiking up the long flight of stairs to the gym.
Home life has been anything but settled and routine yet and I suspect that won’t change until the new year. We are getting a little better at being in bed at a reasonable hour and getting up at a reasonable hour but there’s still room for improvement.
Praying for Janet to continue adjusting to living at home full time and thanking our Lord and Saviour for all the amazing people He’s placed in our lives.
Janet had her first official workout at H2O today. Alyssa had taken her through a routine yesterday to familiarize Janet with the equipment and see what she could do on each piece. The program’s focus is the same as Connect’s with an emphasis on building leg strength and the goal of improving Janet’s walking.
There is no Shuttle machine at H2O so that work will be done on two leg press machines that will be hard for Janet to use as they both pretty much require two legs to work them and Janet’s right leg doesn’t work that way. She’ll give it a try holding out hope that by helping the left leg a little bit the right one might kick into gear more.
The recumbent bike at H2O is way cooler than the one at Connect except for the pedals. This is a recurring problem as every other bike we’ve seen has pedals too small to strap Janet’s right foot onto. Alyssa came up with the idea of putting a band around Janet’s legs to prevent the right one from flailing outward like it wants to. This enables Janet to push harder with her right leg therefore keeping it on the pedal. So far so good and Janet likes the idea of being able to watch tv while riding. Now if there was only anything on worth watching.
Another new piece of equip for Janet surprisingly is a treadmill. H2O has one with a couple of arm supports that let Janet concentrate on taking nice long steps without worrying about balance. It’s a brilliant idea that I think will really improve the mechanics of Janet’s walking.
One other surprise from our visits to H2O so far is that Janet hasn’t uttered the words terrible or awful once. She also accepted the challenge of taking the stairs today instead of the elevator and did great both up and down.
The at home routine is improving as Janet is going to bed at Connect type hours and getting up early enough to have productive mornings. There has been only minor complaining about helping out and no thought of using her cane. On Monday we did a Superstore run and Janet pushed the buggy around the entire store with minimal help. She was exhausted afterwards, it’s a big store, but I could tell she felt good about being able to do it. During her nighttime recap of the day she listed that in a very positive way. I like being able to incorporate therapy into daily activities.
Praying that Janet continues to adjust positively to being at home.
Nine hundred eighteen days ago Janet suffered a ruptured brain aneurysm that kept her in hospital then a rehab facility until today. That was then. August 2012
This is now!
Janet is home!
I asked Janet if she was thinking of today as a day of lasts or a day of firsts and she quickly responded lasts. She couldn’t wait to get out of Connect and reminded me throughout the day that we don’t have to do this anymore and don’t have to do that anymore. There were lots of fist pumps, whoo hoo’s and huge smiles. Goodbyes are difficult for me so I was glad that Janet handled those today. I’ll be better at it next week when we go back for a farewell lunch. Janet gave everyone a nice hug and thank you as we departed this afternoon with the only emotion being happiness although she did admit in the car that it was a little sad to say goodbye as “they are good people”. Indeed.
This was not the start of any vacation for Janet, we had an appointment with Alyssa at H2O right after a quick lunch and she put Janet through a little fitness assessment so she can start building a program for her. Janet seems impressed with the facility and likes Alyssa so for the time being it looks like working out there a few times a week will be fine and may even include some pool time. Janet has agreed to try that once.
Tuckered out after the emotion of her last day at Connect followed by the fitness assessment Janet enjoyed a good nap before dinner then we took off for the church and the last SheLife session until the new year. Janet is grateful for the love and support she gets from her table mates and took a lot of compliments about her baptism testimonial tonight. She came away from the evening feeling pretty good and was quick to remind me that we were going home not back to Connect. Deserving of a treat, Janet stayed up a little late to watch The Voice and have some ice cream. Now she is snuggled up in her own bed in her own home ready to begin a new chapter.
Praying for a restful night of sleep and an energetic Thursday.
This morning, Janet successfully picked up Garrett’s phone from the floor thereby earning herself an early exit from Connect. Tomorrow Janet is moving home!
Needless to say she is very excited, as am I, and most of our time together today was spent getting ready for her departure. Brian stopped by right after nap time and Janet attempted to show him her picking up technique but wasn’t quite able to get it so she will make another attempt in the morning at making it official. The result won’t affect her coming home as that’s already been awarded to her so there’s no pressure.
While we were packing we had a surprise visit from our friend John. He finally got into the care facility he was hoping for just down the road from Connect and seems really happy about it. His move plays into Janet’s plan to help Debra with her Speech quite well as now we can come out and visit John at the same time. Janet asked Debra this morning if she’d like to do a little singing with her and she though that was a great idea. I don’t think Janet will want to start going back to Connect for that too soon but she is quite excited about helping Debra out.
Earlier in the day Tez had Janet do two six minute walking tests. The first one was using her cane and Janet went 95 meters. The second was freestyle and Janet made it 101 meters that time. She is very pleased to have made it over a hundred and that is a nice result to take to H2O for the next phase of her physio therapy.
Packing her stuff and removing decorations from Janet’s room was a bigger project than anticipated but she was very happy to help and excitedly told Heather on the phone that everything was off the walls. She did a great job separating things and even managed to donate a couple of items instead of throwing them out.
We studied a little of Janet’s SheLife materiel before Games Night where Janet engaged more than usual knowing this was her last one. When I mentioned that it will be hard for me to say goodbye to the staff Janet instructed me to “just go, bye bye” waving your hand as you say it. I know she appreciates them all and will say proper thank you’s soon but all Janet can see right now is getting out of there. As I said goodnight tonight she was like a little kid on Christmas Eve, super excited that it was her last sleep there, so much so, I’m not sure if she’ll actually sleep.
Tomorrow is the day we’ve long been working for and Janet deserves it to be happening now. I pray that she rests well tonight and enjoys her last visit to the Connect gym in the morning and that her homecoming is as special as she believes it will be.
She believes! Janet finally has some confidence towards getting to come home for good this week. Something clicked today and she made huge improvements in her ability to pick something up off the floor. Chelsea took her into the den at Connect tonight for a half hour and practiced with her. Janet says that helped a lot because she really likes Chelsea. I did a lot of the same drills with Janet this weekend but I guess she doesn’t like me. She seems well on her way now and I’m confident that tonight is her second to last sleep at Connect!
Our day started early today which was really good practice for when she’s home full time. I had to be out by 8:15 which meant Janet needed to be up and dressed before then. She had to be out by 9:40 which meant breakfast needed to be finished as well. There was no problem getting up, Janet did her own thing after I helped with her AFO, shoes and splint. When I got back from my appointment at 9:15 she was finished breakfast and was proudly emptying the dishwasher. Love it!
After Janet’s appointment we made the drive to Connect during which I tried to motivate her to try her best at making this one of her last few days there. She wasn’t sure she could do it but sure worked hard once there. Almost immediately Janet went for a bike ride and set another personal record and even acknowledged that she’s getting stronger about half way through the ride. I took her out for lunch after that and we enjoyed a real nice hour doing that where Janet walked well and talked well, ordering her own lunch and making a lot of decisions in the process. Never once did the server have to ask Janet to repeat or explain. Following a well deserved nap Janet took the initiative and set the dinner table then worked with me on making a salad.
I played a few tricks on Janet to get her to pick things up off the floor and each time she new I was being “mean” but she made strong and successful efforts each time. After working with Chelsea I can say that Janet can consistently pick up her cane from the floor as well as her jacket. She’s doing so well that we may not hold her to being able to pick up her phone but she may just get it anyways. To round out her evening Janet agreed to walking the stairs and commented as she was doing so that “I’m going way faster”. Yes she is.
Janet listened intently as I read from the book we are currently reading, A House in the Sky, then excitedly said “I’m coming home!” as I said goodnight. The light is very bright at the end of the tunnel and its not an oncoming train, its Janet’s bright cheery home that she is about to actually live in.
Praying for a good night of sleep and a day filled with confidence and accomplishment tomorrow.
Janet is home for an extra night this weekend as she has a doctor appointment tomorrow morning so this will be a short update.
The last few days have been very positive for Janet. Friday we hosted our wine club and Janet said it was a lot of fun, more so than usual but not because of the wine she drank. She said she just felt more relaxed and able to contribute. Saturday of course was baptism day and that was amazing. I’ll give more detail as soon as I can link you to some video of it, hopefully tomorrow. Janet had a large cheering section, including Cam, and her testimony and courage had a positive impact on a lot of people. Today was pretty chill watching football with Cam and walking to Urban Fare for lunch with him. Janet tolerated the minus three temperature better than Cam and this is the third time we’ve been able to walk in the cold. I think as long as its sunny and not windy we can still go out. Nice!
Not much progress has been made on the picking things up off the floor front but we’ll keep trying. Its just a fear thing. Praying for a good night of sleep and a productive Monday.
I know I said I wasn’t posting on Thursdays anymore but this one is special. Janet has officially achieved her laundry goal! Brian watched the video of Janet that was recorded Wednesday and enthusiastically credited her with goal number five. Janet is very happy and realizes she is one small step from being home full time. Here is the video, not the most exciting one I’ve ever posted but I hope you can appreciate the multiple tasks Janet had to string together to accomplish what most of us consider a pretty mundane chore. Happy!
We had our last team meeting at Connect this afternoon with the theme being move out planning. Janet is clear to go on the 28th or sooner and with the exception of a few minor details to cover off, its now a waiting game. The team is in agreement that Janet is not waiting very patiently and has been somewhat uncooperative a couple of days this week. With her out of the room I asked if there was a way that without rewarding bad behaviour Janet could come home sooner. It was always our intention that Janet finish strong at Connect by achieving goals before coming home. She’s done that except for the walking one which will have to be excused as her progress is too slow. In that light it was agreed that if Janet is willing to try hard at learning to pick up things from the floor and get to where she can do that consistently and without assistance, she can come home. Janet accepted the challenge and we will practice this weekend knowing she can do it and just needs to build the confidence to do it consistently. Brian will give her one more six minute walking test Tuesday so we have an up to date result for the next phase of physio. If all goes well, Janet could be home full time after SheLife on Wednesday!
Praying for Janet to sleep well tonight and enjoy a productive and fun Friday.
PS: Janet’s baptism is Saturday at 5:30 Trinity Church. She would love it if you could be there.
No trouble for Janet today! Her morning went well, she never complained about anything and even ate some leftover fish for lunch. It was “yucky” of course but she kept that to herself. Gym time was good as was a brief session with Mary Lou.
I half expected Janet to be ready and waiting for me when I went to pick her up. Waiting she was but laying in bed no where near ready. I assured her she could nap at home and helped her get up. We stopped to vote on the way and were pleased the polling station was busy. It didn’t take too long and Janet was glad she participated. We use the type of ballot where you fill in a box beside the candidates name instead of writing an X and I helped Janet with that so she didn’t spoil her ballot. She was happy to read the names of who she was voting for from the list we made so didn’t feel left out.
Before nap time Janet agreed to try and pass the laundry test. I think she made it but we’ll let Brian rule on it tomorrow. Her nap went a little long so she wasn’t able to help too much with dinner as we had to get out the door for SheLife. Once in the church I let Janet make her own way to her table. Standing back and watching her I was really impressed by how independent she’s becoming. Her walk through the room was confident and as people said hi to her along the way I could see her genuinely smile and greet them back. It wasn’t long ago I’d have to prompt her to acknowledge someone. Janet even excused herself from the table to take a bathroom break all on her own again tonight. Nice! I waited a short distance away at the end and watched Janet not be in any hurry to leave. She chatted with people and was quite smiley. I didn’t offer any assistance in getting out of the building and Janet walked slow but steady, even choosing steps instead of the ramp to get down one part. That’s a first!
Praying that Janet sleeps well tonight and is willing to fully participate in whatever she’s asked to do tomorrow.
Janet admitted to being grumpy at Connect again this morning. Apparently Jess had her doing something in the gym that Janet didn’t like so she wasn’t making much of an effort. Jess ended the session and Janet went to her room. She took advantage of the free time though to call her dad. They haven’t talked for quite a while so it was nice Janet took the initiative to do that. She said the conversation went well and she’ll try and call more often.
“Napping” when I got to her room, Janet gave me the run down of her day in a somewhat muddled manner. At the end of it one thing was clear, she hadn’t ridden the bike, so off we went. It was fun to watch Janet ride again and with the music playing she set a personal best for distance at a harder level than she normally rides at. She even said, “I’m getting better aren’t I”. Yes Janet you are. Her walking was good this evening as well, I did a little pulling with her and found her able to go at a good pace with very little pulling from me. More proof of improvement and Janet acknowledged that too. Another positive on the physical side came to light later on when Janet informed me that she was successful in picking something up off the floor with Jess this morning. She wasn’t sure what she picked up or how she did it when she couldn’t yesterday but was happy with the win.
Rude Janet made a brief appearance at dinner today and may have shown whats getting her into trouble during the day. Karl and Curtis worked hard making some pretty good fish and chips from scratch and Janet, before even trying it, loudly complained that it was “terrible” and “yucky”. I could see the disappointment on Curtis’s face and was a little embarrassed myself. Janet showed no remorse until long after when we were able to talk on our own. She eventually tried a couple bites then ate my dinner and I ate hers. Later on she promised to try really hard not to get into trouble tomorrow including being careful when and how she says things to people. There is a silver lining to this in that Janet used to just sit passively and take whatever came her way. Now she’s asserting herself more which is great, she just needs to watch the timing and the wording.
Games night was alright tonight but Janet is glad she only has a couple more to go to. We spent some time figuring out who to vote for in the municipal election and Janet agreed with me all the way, as she should. Kidding.
Praying for Janet to have a good night of rest and a positive, confident and cooperative Wednesday.
Only two more Sundays of taking Janet back to Connect, thank goodness. She handled tonight’s return well as her weekend was relaxing and entertaining and there was no time for a nap today so she was too tired to complain. A couple from our Small Group joined us today to watch the Seahawks game and that made for an enjoyable Sunday. Janet enjoyed the mixture of football talk and family talk and contributed well with both.
Neither day at home this weekend was too structured. Saturday night was different from the usual in that Courtney was home for dinner after church and we watched a movie together too. We are enjoying having her around and Janet is benefiting from having someone else to talk to. Friday we stopped by the church to do a walk through of the baptism tank. Janet did a great job walking up the steps, down into the tank then back out again. I’m confident she can handle it for real on Saturday and we thank Dave for taking the time to let Janet try that in advance. She was pretty pleased with herself for being able to do it. Our Small Group met Friday night and Janet participated well and even asked the group a question on her own for the first time. She wanted to hear everyone’s take on the Brittany Maynard and Lauren Hill stories and was rewarded with some good conversation. That was a good demonstration of Janet’s memory improving along with her confidence to initiate conversation.
Thursday night Janet recorded her baptism testimonial video. It was understood that she’d be able to use a teleprompter but it wasn’t ready when her time to shoot arrived so we tried feeding her two or three sentences at a time. That was a struggle for Janet but she made it through for the most part. By the time the teleprompter was ready Janet was tired of the whole thing so struggled reading from it too. Jody, the videographer, will work his magic and Janet’s story will come out loud and clear. There’s no magic needed to make Janet look good though.
Under the lights again.
Janet was a big help around the house this weekend as is becoming the norm. We didn’t take any formal time for exercise so all of Janet’s walking came associated with practical tasks. Talking with her tonight, she was happy about that but admitted she wasn’t moving around as easily. She disagreed that it was a result of a more relaxing weekend but resigned herself to the idea of using the indoor track at CNC sooner rather than later. Winter is supposed to arrive this week so the days of walking outside seem to be done and Janet needs to keep moving. I think she’ll be OK with it as long as we don’t overdo it.