games

Janet, A Success Story. November 18. #TSJ

Homeward Bound!

This morning, Janet successfully picked up Garrett’s phone from the floor thereby earning herself an early exit from Connect. Tomorrow Janet is moving home!

Needless to say she is very excited, as am I, and most of our time together today was spent getting ready for her departure. Brian stopped by right after nap time and Janet attempted to show him her picking up technique but wasn’t quite able to get it so she will make another attempt in the morning at making it official. The result won’t affect her coming home as that’s already been awarded to her so there’s no pressure.

While we were packing we had a surprise visit from our friend John. He finally got into the care facility he was hoping for just down the road from Connect and seems really happy about it. His move plays into Janet’s plan to help Debra with her Speech quite well as now we can come out and visit John at the same time. Janet asked Debra this morning if she’d like to do a little singing with her and she though that was a great idea. I don’t think Janet will want to start going back to Connect for that too soon but she is quite excited about helping Debra out.

Earlier in the day Tez had Janet do two six minute walking tests. The first one was using her cane and Janet went 95 meters. The second was freestyle and Janet made it 101 meters that time. She is very pleased to have made it over a hundred and that is a nice result to take to H2O for the next phase of her physio therapy.

Packing her stuff and removing decorations from Janet’s room was a bigger project than anticipated but she was very happy to help and excitedly told Heather on the phone that everything was off the walls. She did a great job separating things and even managed to donate a couple of items instead of throwing them out.

We studied a little of Janet’s SheLife materiel before Games Night where Janet engaged more than usual knowing this was her last one. When I mentioned that it will be hard for me to say goodbye to the staff Janet instructed me to “just go, bye bye” waving your hand as you say it. I know she appreciates them all and will say proper thank you’s soon but all Janet can see right now is getting out of there. As I said goodnight tonight she was like a little kid on Christmas Eve, super excited that it was her last sleep there, so much so, I’m not sure if she’ll actually sleep.

Tomorrow is the day we’ve long been working for and Janet deserves it to be happening now. I pray that she rests well tonight and enjoys her last visit to the Connect gym in the morning and that her homecoming is as special as she believes it will be.

Janet, A Success Story. November 11. #TSJ

Janet admitted to being grumpy at Connect again this morning. Apparently Jess had her doing something in the gym that Janet didn’t like so she wasn’t making much of an effort. Jess ended the session and Janet went to her room. She took advantage of the free time though to call her dad. They haven’t talked for quite a while so it was nice Janet took the initiative to do that. She said the conversation went well and she’ll try and call more often.

“Napping” when I got to her room, Janet gave me the run down of her day in a somewhat muddled manner. At the end of it one thing was clear, she hadn’t ridden the bike, so off we went. It was fun to watch Janet ride again and with the music playing she set a personal best for distance at a harder level than she normally rides at. She even said, “I’m getting better aren’t I”. Yes Janet you are. Her walking was good this evening as well, I did a little pulling with her and found her able to go at a good pace with very little pulling from me. More proof of improvement and Janet acknowledged that too. Another positive on the physical side came to light later on when Janet informed me that she was successful in picking something up off the floor with Jess this morning. She wasn’t sure what she picked up or how she did it when she couldn’t yesterday but was happy with the win.

Rude Janet made a brief appearance at dinner today and may have shown whats getting her into trouble during the day. Karl and Curtis worked hard making some pretty good fish and chips from scratch and Janet, before even trying it, loudly complained that it was “terrible” and “yucky”. I could see the disappointment on Curtis’s face and was a little embarrassed myself. Janet showed no remorse until long after when we were able to talk on our own. She eventually tried a couple bites then ate my dinner and I ate hers. Later on she promised to try really hard not to get into trouble tomorrow including being careful when and how she says things to people. There is a silver lining to this in that Janet used to just sit passively and take whatever came her way. Now she’s asserting herself more which is great, she just needs to watch the timing and the wording.

Games night was alright tonight but Janet is glad she only has a couple more to go to. We spent some time figuring out who to vote for in the municipal election and Janet agreed with me all the way, as she should. Kidding.

Praying for Janet to have a good night of rest and a positive, confident and cooperative Wednesday.

Janet, A Success Story. November 9. #TSJ

Only two more Sundays of taking Janet back to Connect, thank goodness. She handled tonight’s return well as her weekend was relaxing and entertaining and there was no time for a nap today so she was too tired to complain. A couple from our Small Group joined us today to watch the Seahawks game and that made for an enjoyable Sunday. Janet enjoyed the mixture of football talk and family talk and contributed well with both.

Neither day at home this weekend was too structured. Saturday night was different from the usual in that Courtney was home for dinner after church and we watched a movie together too. We are enjoying having her around and Janet is benefiting from having someone else to talk to. Friday we stopped by the church to do a walk through of the baptism tank. Janet did a great job walking up the steps, down into the tank then back out again. I’m confident she can handle it for real on Saturday and we thank Dave for taking the time to let Janet try that in advance. She was pretty pleased with herself for being able to do it. Our Small Group met Friday night and Janet participated well and even asked the group a question on her own for the first time. She wanted to hear everyone’s take on the Brittany Maynard and Lauren Hill stories and was rewarded with some good conversation. That was a good demonstration of Janet’s memory improving along with her confidence to initiate conversation.

Thursday night Janet recorded her baptism testimonial video. It was understood that she’d be able to use a teleprompter but it wasn’t ready when her time to shoot arrived so we tried feeding her two or three sentences at a time. That was a struggle for Janet but she made it through for the most part. By the time the teleprompter was ready Janet was tired of the whole thing so struggled reading from it too. Jody, the videographer, will work his magic and Janet’s story will come out loud and clear. There’s no magic needed to make Janet look good though.

Under the lights again.

Under the lights again.


Janet was a big help around the house this weekend as is becoming the norm. We didn’t take any formal time for exercise so all of Janet’s walking came associated with practical tasks. Talking with her tonight, she was happy about that but admitted she wasn’t moving around as easily. She disagreed that it was a result of a more relaxing weekend but resigned herself to the idea of using the indoor track at CNC sooner rather than later. Winter is supposed to arrive this week so the days of walking outside seem to be done and Janet needs to keep moving. I think she’ll be OK with it as long as we don’t overdo it.

Praying for a week of progress.

Janet, A Success Story. November 4. #TSJ

Janet settled into her one full day at Connect just fine, working in the gym with Curtis and Tez this morning. She did a six minute walking test and was unhappy with her result. I don’t know the official result but Janet told me 90 something, which means little or no improvement over the last time. She recognized she hasn’t been working at it and said she does want to walk faster. Maybe this will spur her on a little, I doubt it though, at least not until she’s settled in at home. Tez had Janet walk up and down the stairs and Janet was very happy he didn’t get her to put her right foot first when going down them. It is the proper technique to use the weakest first in a downhill situation but Janet truly can’t do that yet so has to go with whatever works.

Overall Janet was OK with her workout and after a nap joined me in opening some snail mail and chatting with Jess and Chelsea. Games night was cancelled tonight due to a staffing switch. Janet was pleased with that and was more than happy to work on her SheLife workbook and watch some YouTube. We had some emotional conversation about two young ladies with inoperable brain tumours and the different approaches they are taking (took) to their diagnosis. The stories of Lauren Hill and Brittany Maynard brought a lot of questions to Janet’s mind and I think it was good to watch them and allow those questions to come out. I could feel Janet forcing her thoughts away after a while but I think the time we spent on that may have helped her realize her position a little better. I made sure we ended the YouTube session with lots of laughs courtesy of the Whose Line Is It Anyway gang.

Praying for a solid night of sleep for Janet and a positive and energetic Wednesday.

Janet, A Success Story. October 29. #TSJ

After picking my mom up at the airport today we went to Connect to get Janet and found her holding court in her room with Debra and Big Country. She had gone across to Debra’s room to see if she wanted to chat and Debra immediately turned off her TV and went back over with Janet. Big Country saw and heard the two women talking and didn’t want to be left out so he wheeled into the room as well and they played a guess the animal game together. Janet was pretty wound up about leading that group, it was almost like she was teaching again. High five for taking the initiative to approach Debra. Janet agreed that this could be something she could volunteer to do somewhere, post Connect.

Today was our first chance to have a birthday lunch with Courtney and Janet’s first wheelchair free visit to Joey Kelowna. I took her hand to speed things up a little as soon as we were being seated and encouraged her to try the bathroom on her own after lunch but she chickened out on that one. She’s slow but fairly sure of herself using her cane and this seems to be the right way for her to get around for now.

There was no hesitation in going for a nap once we got home then chef Janet was at it again helping with dinner. Janet said SheLife was fine tonight and included a solo trip to the bathroom. I had assured Heidi ahead of time that Janet was cleared to go on her own and she told me after that when Janet went, the whole table was watching to make sure she got out of the room ok. I understand their concern and remember how I would never let Janet out of my sight. It feels really good to be able to do that more and more.

Praying for a good night of sleep for Janet and a fun day tomorrow.

Janet, A Success Story. October 21. #TSJ

Let’s start with the big news. Janet is coming home for good November 28th! It is becoming more and more obvious each day that Janet is losing her willingness to participate at Connect. She simply doesn’t want to be there anymore and is putting in the bare minimum of effort. After an earlier than usual phone call from Janet this morning, during which she sounded kinda down, I texted Brian and asked him if he thought that was a good date to bring her home. He concurred and Janet and I met with him and Tez this afternoon to make it official. They both had received reports from the staff that Janet was less cooperative lately and Tez says that her physical progress has slowed to the point where coming home a month “early” isn’t going to make much difference. He is confident that Janet will continue to improve, at a slow pace, and as long as we stay on top of the tone in her right hamstring she has a good chance of doing some decent walking. Janet is relieved to know there is now a firm date in place and will be counting down each day I’m sure. 37 as of Wednesday.

Nothing could overshadow that news of course but today was good for Janet in other ways too. She participated well at Games Night this evening and walked up and down the stairs in the process. I was able to convince her to do that knowing she’ll have to do similar at the preschool tomorrow. Chelsea invited Janet to read The Hallo-Wiener to her for practice and she started off great then had a really difficult time for the last half of the book. Hopefully that’s the bad read before the great one tomorrow. Janet’s dressing and undressing skills continue to improve and tonight I only had to help with her bra and lining up her PJ shorts so that she got her legs in the correct sides. The rest she did unassisted and quite quickly.

A lot is going to change over the next five weeks and I’m excited to get on with it. Janet is too and I pray she uses her remaining time at Connect to her fullest advantage.

Janet, A Success Story. October 7. #TSJ

Seemingly a bit grumpy, I took Janet out for a nice long walk in the sunshine this afternoon. She didn’t believe me it was warm outside so she refused one last chance at wearing shorts. The sun did her a lot of good though and set her up well for the rest of the evening.

The morning consisted of an intense workout with Curtis that lasted into the usual lunch hour so by the time Janet called me it was after two and she was just heading for a nap. That may have been part of the reason for the grumpiness. Full of sunshine nearing dinner time Janet actually suggested she do her laundry and willingly walked to the laundry room where I coached her through most of the steps. Chelsea was working on her own tonight so while she was busy after dinner I asked Janet to help me clean up the kitchen. After some initial resistance she jumped in and did a good job. There was no Games Night tonight as no one was there to run it. Janet, of course didn’t mind. That time was filled nicely with the kitchen clean up and putting away laundry, things that Janet will do and not realize she’s doing therapy. Her walking tonight was less confident than usual but having to carry things to put them away and turn in tight spaces was really good practice for her and she did well.

Tired after all those chores Janet and I sat with Wes and Chelsea and watched a little of a baseball playoff game. That just made Janet more tired so she got herself ready for bed early. She used to complain when asked to undress and put her pjs on and it is difficult for her but she hasn’t argued with me for a while and is getting better and better at it. Its fun to watch her figure out ways to put things on. The wheels are turning and she’s getting good results.

Praying for a restful sleep and a fun Wednesday.

Janet, A Success Story. September 23. #TSJ

The dreaded day of Tez was upon Janet this morning but much to her relief Tez assigned his student to her and that lessened her complaining and she put in a reasonable effort. Janet’s attitude is becoming an issue however so Brian is sending an email to Dr. Miller ahead of Janet’s appointment with him next week to outline the four outstanding goals she is to achieve before coming home and asking for some strategies to help Janet through this final push at Connect.

Once again Janet didn’t nap today and therefore wasn’t that energetic this evening. Games Night was fun and Janet participated well for the most part. The best part of that was her agreeing to walk up the stairs on the way there and surprisingly back down them afterwards. I would have no problem allowing her to navigate the stairwell unsupervised now in either direction and I think Janet would do so going up but she’s still too nervous about the downhill trip. Today wasn’t filled with her best walking ever as she really seemed to be lacking confidence except that by the end of the night she willingly went cane free to get her meds.

In preparation for riding the Handydart one day I had Janet start to fill out the application form. After practicing on some scrap paper a little bit, Janet filled in her name, address and a few other basics in reasonably legible printing. There are some questions we weren’t sure how to answer so will talk to Brian before filling out the rest. I’m glad Janet is willing to try and do some printing now, it wasn’t long ago when her response was, “no, I can’t”.

Praying for an uninterrupted night of sleep and a Wednesday full of confidence.

Janet, A Success Story. September 21. #TSJ

For a weekend with nothing much scheduled, it sure was busy, or at least seemed so.

Janet’s weekend was cane free. She is doing well enough without it that we even left it at home when we went to church Saturday night. There is still a fair amount of grabbing onto furniture and walls when possible, especially when Janet is tired. At her best she will go quite a distance completely free. Speaking of distance, I decided to push Janet this weekend with her 400 meter walk. I haven’t noticed much improvement in her speed and there is still a lot of complaining about being exhausted 200 meters in, so to try and increase her conditioning and to keep her walk interesting, I challenged Janet to do a complete lap of the complex. That worked out to 560 meters on Saturday which was completed in 32 minutes. Janet held my hand the whole way but I did not pull her along at all. Today the lap measured out at 510 meters and lasted 27 minutes. A nice little improvement. I’m not sure this is the right plan of attack and will hopefully consult Tez this week. At least it was something different to do on a nice sunny day and Janet knows now she can walk around the whole neighbourhood. High Five!

The one scheduled event was a visit Saturday morning from Janet’s former pre school boss, Carolyn. One of Janet’s “get out of Connect” goals is to read The Hallo-Wiener to a pre school class and we wanted to meet with Carolyn so she could get an idea of how Janet is doing and make sure its appropriate for Janet to pursue this goal. Carolyn was impressed with Janet’s reading skills and how well Janet is doing overall despite the read not being anywhere near Janet’s best. She was nervous all morning before the visit even to the point that her mom sensed something was wrong during their Skype chat. Janet passed the test though and is scheduled to appear at Carolyn’s pre school October 24th.

One goal may have been achieved this weekend and is awaiting Brian’s approval. To test Janet on the operation of the cooktop I asked Janet to make me a grilled cheese sandwich Saturday afternoon. I recorded it so we can show Brian and he can assess Janet on it. Janet still needs some prompting as to which buttons to press so I’m thinking she may need one more weekend of practice. Same goes with the laundry. We are still developing a good system for Janet to be able to load and unload the washer and drier but she’s learning the controls quite quickly. It could be a double gold medal weekend coming up.

We spent as much time out in the sun as possible this weekend as the forecast shows this to be the last of the sun tanning weather for the year. That included watching the first half of the Seahawks game outside today but I wasn’t able to convince Janet to go for a swim. It was more than warm enough and would have been fun to do on the first day of Fall but she was only interested in the game. Not that that’s a bad thing.

This was a weekend that saw Janet moving around the house and helping out more than ever before and I’m happy she is willing to do so. Her confidence is growing in household activities, we need to foster that same growth in her walking and she’ll be all set.

Praying for a deep and restful sleep and a productive and happy week.

Janet, A Success Story. September 16. #TSJ

Rumour has it that Janet cooperated with Tez and Jess this morning and when she actually did what they asked she did it well. The exercise Tez is working Janet on is a step routine up and down on a four inch block. That’s less than any steps at home and Janet is easily capable of doing it, she still lacks the confidence to really attack it. I did manage to get her to walk down both flights of stairs this afternoon and she did really well with them even saying at the end that it felt good to have done it.

There was lots of walking the balance of the day for Janet and she probably put on more than a kilometre by the time she was done. All the trips were purposeful as opposed to exercise oriented and she walked beside me holding my hand most of the time. I can’t tell if she’s improved her pace much yet but she certainly hasn’t slowed down.

Janet went into Games Night convinced she wasn’t going to say much then ended up participating nicely. Same old story. Each week the group is charged with remembering “the word of the week”. Last week’s word was supercalifragilisticexpialidocious. Of course that was easy to remember and the whole group sang the song repeatedly to prove it. This week the word is a favourite of Janet’s, sunshine. Naturally everyone started singing You Are My Sunshine. Yikes.

Once again Janet didn’t really nap and paid for that as the evening wore on and come reading time she was asleep. Praying for a solid night of sleep and a happy Janet on Wednesday.