Month: December 2014

Janet, A Success Story. December 22. #TSJ

Seems like forever since I’ve been here and I must admit the break has been nice. It was getting hard to find things to talk about on a daily basis for sure and now that Janet being at home is “normal” I have to dig deep for a weekly talking point. I think “normal” will be it for this one.

We are definitely into a routine around the house, not the most productive routine but one that has Janet responsible for some basic duties and helping out with others. She is improving with her abilities in the kitchen and has taken easily to building her own sandwich for lunch, all the steps, unassisted, with the exception of needing help to open the mustard sometimes. Janet is happy to put things away and do light duty cleaning but is reluctant to try the big things like vacuuming. Soon, I hope.

The exercise routine is ok and I hope will get better in the new year. Janet is doing really well in the pool, already graduating to walking forwards and backwards without the pool noodle. Today I took her into the River Run for the first time and she handled it better than I thought she would. The Botox has completely worn off now and I notice Janet losing some control of her right leg even out of the water. We didn’t make it all the way around the river as it got too deep for Janet at one point and she was not wanting to swim. Next time. Her attitude about going to H2O hasn’t improved much but once there she does good things and comes away telling herself she did good so hopefully with some more time and recognizable improvements for her she’ll be more willing to get out the door.

The best part of Janet’s new normal is the relaxing evenings she’s been enjoying. We’ve watched movies, The Voice and of course our beloved Seahawks. Janet looks forward to those couple of hours to be entertained and is far more engaged in what she’s watching than ever before. I will still pause and explain things to her periodically only now she actually gets what I explain and I love her reaction at the end of a good movie or game. It’s totally appropriate to what happened and often includes her patented fist pump.

The fist was pumping tonight after the Christmas Eve service at Trinity. Janet really really enjoyed it, more than any event I’ve taken her to lately minus the Seahawks game. The music was great and the drama portion easy for her to understand and see. We went tonight as we are off to San Diego for eight days tomorrow. Janet is super excited about this trip and the very un-normal Christmas this will be. Stay tuned for pics and other things.

We wish all of you a very Merry Christmas and thank you for your love and support. Peace.

Janet, A Success Story. December 13. #TSJ

Yesterday was the big day for Janet’s first venture into the pool at H2O and she was not looking forward to it at all. Her memories of pools are completely associated with cold and having to “work”. I promised her this time that if its not warm or fun she wouldn’t have to go again. Alyssa reinforced the fun aspect as soon as she saw Janet and thankfully there had yet to be any hint of cold.

The focus of pool work this time is to increase Janet’s ability to walk so the entire session was spent in the wave/kiddie pool, waves off of course and the water nice and warm. Janet entered without a wetsuit by walking down a ramp then out to about chest depth. Alyssa led her through a series of exercises that had Janet walking forwards, backwards and sideways, concluding with Janet stepping up and down with a pool noodle under her foot to provide some resistance. Janet was last in a pool in August and was unable to keep her right foot on the bottom even for a few seconds. Yesterday she was pushing that noodle down strong and never for a moment had any trouble getting her right foot down. Even Alyssa was impressed and happily took Janet over to the hot tub for some stretching to finish things off.

Things went so well in the pool that Alyssa recommended switching that to the primary activity for Janet now. Water therapy worked well before and she believes it can again. Janet is up for it and is happy to not have the leg presses or treadmill in her life anymore. Those weren’t fun or very effective. Janet will continue to ride the bike now and then.

The pool experience was a very pleasant surprise and set Janet up nicely for exercise being fun again. She enjoyed the water, was warm enough and really likes Alyssa. Praying for the fun to continue.

Janet, A Success Story. December 10. #TSJ #Independence

Its still too early to nail down any sort of routine for Janet living at home full time. Each week brings different appointments and responsibilities so in that regard Janet has been kept busy in various ways. Since the craziness of her homecoming weekend there hasn’t been a day without something significant going on.

I’ve backed off on taking Janet to H2O as often as I’d like as there is already some resistance developing and I want Janet to want to go. It’s not always fun working out but I hope to get her to the point where she sees the benefit and is willing to go without hesitation. The times we have been have taught us it takes a lot longer for her to go through every element than we thought. If Janet does everything on her list, it’s a good two and half hour outing, which is fine, we just have to figure out how to fit things into the rest of the day.

A friend of ours recently asked if we would meet with the mother of a young lady in KGH who is going through a similar situation that Janet did. Janet was all over the opportunity to share and encourage and has twice been to the young lady’s room to read to her or just hang out. It has been very cool to watch Janet in that hospital room knowing she was there two and a half years ago. She’s handling it very well and wants to go regularly, each time we are there also provides an encounter with someone who cared for Janet back then. She has received lots of “wow, look at you” and “you look great” and “I’m so happy to see you”. So much so that I think she’s actually starting to believe those compliments. Janet laughs each time we meet someone as it happens all over the hospital and she repeatedly comments that “we can’t go anywhere without being recognized”. Celeb.

Continuing in the spirit of sharing and encouraging, Janet went back to Connect today to sing with Debra. She dreaded the drive out there even though she was only visiting. Too many bad memories still. When she arrived though, it was all smiles. We spent a half hour with Debra singing Christmas songs and Debra would like to do it again next week and Janet is happy about that. Singing was an amazing tool for Janet and I can see the benefits to Debra already as she smiled and laughed a lot.

Christmas Sing Along with Janet

Christmas Sing Along with Janet


A major goal for Janet being at home is to be as independent as possible and she took a huge step in that direction today. I’ve left her home alone a few times so far for various lengths of time and with different projects to attempt. Tonight, at her request, she was to make chocolate haystacks while I worked at the church for a few hours. Never before have I even considered leaving Janet to cook anything unattended but she was really wanting to try this, so after dinner, a reading of the recipe and a walkthrough of the procedures, I left. To fill out the time I would be away Janet chose to watch a movie then do her baking. I fully expected a phone call anytime the whole time I was away and was tempted to call her myself but didn’t. When I got home three hours later Janet was standing at the sink with a huge grin on her face washing the pot she’d used for the haystacks. The house smelled like chocolate and a nice collection of tasty treats were cooling on the island.
MMMMM

MMMMM


She did it! She followed the recipe, except for the coconut, operated the cooktop and cleaned up after herself, all by herself! Amazing! So happy!
Success!

Success!


With all that said, things are going well at home so far. Our Christmas vacation to San Diego is approaching and that will become the focus next week I’m sure. Alyssa and I hope to get Janet in the pool Friday as well as find a way to make exercise more fun for her. Praying for Janet’s confidence to keep growing.

Janet, A Success Story. December 2. #TSJ #homecomingpics

That was quite a weekend of celebrating Janet’s homecoming! The house seemed to be buzzing non stop from Thursday night through Monday morning with Janet right in the thick of the action the whole time.

The out of towners arrived Thursday night in time for a visit with Janet at our house. Janet was excited to see Laurel, Heather and my mom, almost as much as she was for the Seahawks victory that night. Her priorities were clear though as she elected to stay home and watch the game while I went to the airport to pick everyone up. Go ‘Hawks!

Friday’s homecoming party was everything Janet had waited for and more. She said she “talked to way more people in one night than ever before”, and she was probably right. I had asked her to try and move around the house as much as possible during the party to prevent her sitting for hours on end. Janet made a great effort at doing so throughout the night but was hindered by always having a gaggle of people around her. It was funny to watch as Janet would sit in one area, a group would gather around her then she’d somehow break away to another area where a different group huddled around her. This went on all night and was exactly the treatment I wanted Janet to have as people showed their love for her. Everyone that came by is a valued member of the team and helped to reinforce how Janet’s hard work has paid off.

Here’s some photos of Janet with our guests. I know I didn’t get everyone but we do sincerely thank you all for being here.

Dr. Miller

Dr. Miller


Wendy and Tim

Wendy and Tim


Barb and Gary

Barb and Gary


Janet F.

Janet F.


Suzanne

Suzanne


Kalsie, Catherine

Kalsie, Catherine


Twyla

Twyla


Heidi

Heidi


Mary Lou

Mary Lou


Kiko

Kiko


Betty and Allan

Betty and Allan


Bonnie and Toly

Bonnie and Toly


Joel

Joel


Brian

Brian


Curtis and Katherine

Curtis and Katherine


Dave and Nicole

Dave and Nicole


Rod and Janice

Rod and Janice


Mom, aka Judy

Mom, aka Judy


Laurel, Heather

Laurel, Heather


Recovery time never really happened until Monday as “party mode” was in effect Saturday and Sunday. Janet bravely agreed to go for Indian food Saturday night, something that is typically way too spicy for her. She quite enjoyed her butter chicken which I’m thrilled about as now we can go for Indian more often. Since we didn’t get to visit much with Barb and Gary on Friday they joined us for dinner Sunday with special guest Heather. There was a booking problem with her flight home that afternoon so she got to stay for dinner which was really nice for us.

There were only a few moments all weekend where Janet was overwhelmed and she corrected her mood quickly and enjoyed everything immensely. There was a lot of walking including some laps around the house coached by Laurel and on Monday Janet never balked at going to H2O for a bike ride. She was tired after her ride and rightly so, it was a good one, especially after hiking up the long flight of stairs to the gym.

Home life has been anything but settled and routine yet and I suspect that won’t change until the new year. We are getting a little better at being in bed at a reasonable hour and getting up at a reasonable hour but there’s still room for improvement.

Praying for Janet to continue adjusting to living at home full time and thanking our Lord and Saviour for all the amazing people He’s placed in our lives.