Today was team meeting day at Connect and Janet was waiting for everyone in the Den and feeling pretty good about it all. Mary Lou had arranged for Janet to be the first Connect Resident to start their own meeting and Janet read a list of her goals, challenges and strategies right at the top of the meeting. Janet read the typed notes as Mary Lou uncovered each line one by one and prompted Janet now and then. She was very confident in addressing the group and is slowly getting better with reading.
Improved reading is one of Janet’s goals and Mary Lou is confident Janet will get to the level she wants to get to. Reading the children’s stories has been great even to the point of Janet giving voices to the different characters. That level of reading will continue as it’s fun and is building Janet’s confidence.
Janet listed walking as another of her goals and the thought there is to continue walking at every opportunity and use the wheelchair as little as possible. Janet used it twice today, once to go to the bathroom after her nap and once when the house went for an evening walk to the beach. She did ask for her chair a few times during the day but is starting to get used to hearing no for an answer.
Doing more at home was another Janet goal and it lead perfectly into a discussion of a graduated return to home. Starting after the July long weekend, Janet will be home Friday, Saturday and Sunday for the balance of the summer. The team will come up with ideas for activities Janet can do on her own while at home including domestic chores, she mentioned laundry, reading and even listening to an audio book. The focus of that extra day at home will be to try and familiarize Janet with things she can do around the house for when I’m not there. Possibly come September, Janet would be home Mondays as well, up until the last few weeks before coming home full time, then we might try something like staying at home each night and driving out for therapies each morning for a half day. Once home full time Janet may get to participate in an outpatient program at KGH to take advantage of the fact she is still making significant gains on all fronts. That idea needs the approval of Dr. McCann and Brian will get that ball rolling soon.
Team meetings have always been productive for us even though they wear on Janet a bit. She had another meeting right afterwards with a lady doing research on the cognitive therapies Janet receives. That made lunch late but we enjoyed it together outside in the sunshine. Janet of course hadn’t had any exercise other than walking all day but that and the meeting wore her out enough that she had a good long nap late this afternoon waking up in time to get a bike ride in before dinner.
The evening was nice and sunny so Curtis and Chelsea offered everyone a chance to walk to the beach. Janet was surprisingly reluctant but went and really enjoyed it, especially the pine cone fight with Wes.
Happily in bed early, Janet read a little before I read a lot of Unbreak My Heart, a book Janet says she is really enjoying a lot now. Praying for a lot of sleep tonight and a positive attitude tomorrow.