Feeling confident after having Janet’s doctor adjust her Dilantin dosage I chose to hold off on getting her blood tested today and instead went to Connect this morning to observe Tez working with her. Janet is still complaining of a sore right foot but indicated it might be a little better after not having walked at all yesterday. There were a group of students with Tez who invited Janet to be a bit of a guinea pig in demonstrating the walking sling and sharing her story and the challenges she’s faced along the way. Janet did so with great enthusiasm and humour and I think made the session a good learning experience.
Given the choice between lunch and a bike ride, Janet chose bike ride so she could get it over with. We had to wait a few minutes for another resident to finish which gave me time to ask Curtis about Janet’s positioning on the bike. She had typically been seated fairly close forward to give her the easiest pedalling position but I wondered since she is so much stronger now if it would be more beneficial to sit farther back and extend her legs more. Curtis agreed and we set Janet up that way with the bike on the same difficult settings as yesterday and she rode really well, only sacrificing less than half a mile while gaining a much better stretch and more activation from her right leg.
We enjoyed lunch in the sun then got Jess and Chelsea to help with a little video shoot in the parking lot. Janet nailed her scene in one take! As a reward for her hard work and to “celebrate” her second anniversary I brought Janet home for the weekend a day early. She was thrilled and even tried powering through without a nap until almost five o’clock when things finally caught up to her. It had been a much improved day compared to the last couple and we finally got news from the neurologist re the Dilantin levels. He said fluctuations are common and Janet’s don’t present any reason to change course other than trying a lower dosage. One contributing factor is hydration level and with Janet walking more and the warm weather she’s sweating out a lot of fluid without replacing it all. This time I believe she fully understands and drank well tonight. We will continue to watch her levels closely.
A lot of you have been with us since day one of this journey and on this two year anniversary day Janet and I want to honestly thank you all for your prayers, encouragement, support and friendship. Each day, Janet seems more and more aware of the impact you have had on her recovery and realizing that, motivates her to share her story with others and give support where she can to those facing their own challenges. Today could have been a sad reminder of a horrible day but neither Janet or I had even the briefest thought of that. Today has been a quiet celebration of the amazing recovery that Janet has made through the grace, love and mercy of our Lord and Saviour, and a look ahead to the changes yet to come. This video is a reminder of Janet’s amazing success story and the beginning of a new chapter in a life full of love.