Janet, A Success Story. April 14. #TSJ

Today started off great with Janet waking at a decent hour after a good sleep and easily taking a bath before breakfast. She was bright and alert and seemed ready for a good day. I left her and Heather for a little bit to attend to an appointment I had and when I returned they were sharing the couch watching Ellen. I asked Janet if she needed to go to the bathroom and got what I felt was a confident no. Minutes later it was like the flood in Noah and I was not in the least bit impressed. I got quite angry with Janet and I know she didn’t intentionally do this but she’s been doing so well and this is such a sudden and inconsistent change that I get really mad when it happens and take it out on her. We had a good talk with nurse Jen at Connect this afternoon and have an appointment with Janet’s doctor Wednesday and I think with an understanding of what’s happening I will be better able to handle it. There are two likely scenarios, one physiological and treatable the other neurological and not treatable. Pray it’s the former please.

In spite of my grumpiness the rest of the day was pretty good. Janet really enjoyed her time with Heather and is very grateful for her taking the time to come all this way to visit. Janet is very aware that the next time she sees her will be at her wedding and “that’s a big deal”. After we dropped Heather at the airport we went back to Connect and worked on Janet’s speech for SheLife. It’s been hard for me not to put words in her mouth and Janet has done a great job of constructing what she wants to say. We wrote it up on her iPad and found she was having a lot of trouble reading it as the page was too busy so I transferred it to a presentation app with one or two sentences on each slide that Janet can see clearly, read then tap to see the next slide. Should work.

After an early and quiet dinner Janet agreed to a bike ride. I wasn’t expecting much from her as she had no nap at all today but she put in a very solid performance with no complaining. Her next choice was more mine than hers and that was a walk. Again, I didn’t expect much but started her out at the kitchen table with the goal of making it to her bed and I was willing to let her bail at the Den. No need, as forty five minutes later she plunked herself down on her bed. She was exhausted but somewhat happy with what she’d done, I certainly was.

There wasn’t much to the rest of the evening other than some well deserved chocolate and once in bed, Janet was sleeping ten minutes later. Praying for a complete and immediate resolution to Janet’s incontinence issue, a deep and healing sleep tonight and a great Tuesday.

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