Jess and Janet were waiting outside Dr. Miller’s office when I got to KGH this morning. Janet was very bright and chatty and that continued throughout the appointment. Dr. Miller can’t seem to stop himself from telling Janet how much she has progressed overall but more importantly how her improvement increases even from the time between each visit. Janet accepted most of the feedback with only the occasional “I don’t believe it” and the odd “I’m glad you think so”. Dr. Miller is not just feeding lines to Janet and is truly amazed at where she’s gotten to especially in light of how far post injury she is. He mentioned, I think only half joking, that “we should do a case study on you”. There is a theory out there that people only recover for three to six months after a brain injury such as this and Janet has proven that theory false as most of her cognitive gains are being made 15 to 21 months later. It wouldn’t surprise me if Janet gets an opportunity to share her story to the medical community somehow soon.
Following the Dr. Miller session Janet wheeled herself over to the physio department to say hi to Moira whom we haven’t seen since Janet stopped using the Rehab Pool. Surprisingly, Moira spent half an hour catching up with Janet and even had her demonstrate her walking abilities. The visit was full of praise and encouragement for Janet but she started to fade near the end as throughout the chat with Moira, there was a pretty steady stream of people saying hi to Janet as they passed by and she found that to be a little overwhelming. After lunch at home she reluctantly went for a nap from which I had to wake her in time for her next appointment.
Janet’s AFO has been causing a small abrasion on her ankle bone so we went to ask Birgit if she would remedy that today and she did. We were back at Connect in time for a bike ride which a now tired Janet did fairly well on. We spoke to Tez prior to hitting the gym and he said not to focus too much on the one legged pedalling and let Janet do her thing to get some cardio benefit and insert the one legged method at the beginning and end of each ride. There is no strength building benefit to pedalling with one leg but it is crucial for teaching the brain to communicate with her right leg and get it working better. Tez worked a lot with Janet last week and said she can put way more weight through her right leg than she’s allowing and through repetition we need to get her using it more. Janet complained of being too tired at the start of her ride and still did 2.5 miles in thirty minutes. I was glad she powered through that so I didn’t have her try the one legged thing. Next time.
The Botox is having an amazing effect on Janet’s right arm. I can’t remember the last time I was able to get her arm in this position with no pain. Very cool.
After dinner Janet dutifully got into the Standing Frame while watching Olympic highlights then replied to a couple of emails. She, for the first time, was able to use the speech function of Gmail without assistance from me and produced a couple of authentic Janet emails. She even stayed awake for a good forty five minutes while I read to her in bed saying, “the book is getting better, I like it”. Today was a great day for Janet with a lot of reasons to feel better about herself.
Praying that Janet’s confidence in herself increases and she continues to prove the theorists wrong.