Renovation Day 65. All quiet on the renovation front today as Randy worked from home again and all I did was finish readying the ensuite.
Today was team meeting day for Janet so I was out at Connect for 10am to join the conversation and Janet was waiting in the Den. I tried sneaking up on her but she’s getting smarter about that sort of thing and caught me before I got into the room.
Our discussion about and with Janet was a good one as she participated and responded appropriately throughout the hour. Brian, as Head Coach, led the meeting and provided reports from the coaches that couldn’t be there. Mary Lou is changing the focus of her therapy away from Speech to Reading and Writing. Janet’s speech is now at a point very close to “normal” so it’s time to bring in some other skills. Wendy, Cognition Coach, is beginning a training program with Janet to help her memory and to plan and be responsible for her daily activities. Delivering the envelope yesterday was part of that and this morning Janet successfully delivered a birthday happy face lollypop to Brian without prompting. One of Wendy’s tools she will provide Janet with is a daily journal type of book. I hope to meet with Wendy before her plan is implemented to see if using the iPad would be more appropriate. Given the choice, Janet would default to the book but she admits her writing is poor and that she’s getting better using the iPad. We will go with whatever has the most upside for Janet’s future. Nurse Jen wants to reinstate the Self Medication Program with Janet. We tried this a few months ago with zero success and feel Janet has progressed to the point where she should be able to gradually catch on to managing her meds herself. This ties in nicely with Wendy’s plan too. Tez would like to see Janet using a cane as much as possible so as soon as he tells me what kind she should have we will go cane shopping. He also wants Janet to continue her work in the pool. I think that means doing a little more than swimming in the deep tank so tomorrow we are going to try some walking and balancing in the kiddie pool. Curtis thinks its deep enough and we know for sure it is reasonably warm. For a few months now, myself and other family members have used Heather’s upcoming wedding as motivation for Janet to start walking. My pitch was I want to dance with her there and she has been pretty positive about trying to make that happen. Today Tez made that an official goal for Janet. Unassisted walking by June! Its very exciting to have that be a real goal instead of just wishful thinking. The team believes Janet can do it and she certainly wants to. The big challenge is her right leg and I followed up on the AFO situation today and hope to have an answer tomorrow as to when we’ll have it. Janet is kind of holding out for that to arrive before really getting going on walking practice. I can’t blame her seeing how much her right ankle rolls now.
That was a full morning mentally for Janet and she hung in there really well. I went to work at the church for a bit while she did the rest of her Wednesday activities. She was watching Ellen when I got back and said she had gone for a bike ride, had lunch and watched soccer on TV. She was in a good mood and quite chatty so I didn’t rush her off to the gym feeling it’s OK to change up the pace now and then. One of the kids presented us with a little drama via text message this afternoon and Janet and I had a good long discussion about how to respond and our plan actually got some good results. I feel blessed to be able to have discussions like that with her as she always was a great parent.
With dinner done and things settled down around the house, Curtis and I took Janet upstairs for some walking practice. She worked really hard but was using a lot of negative self talk and didn’t have Big Country there to cheer her on so had a few frustrating moments. Hopefully that type of work can take place during the day when she has more energy and hopefully we can get that AFO soon.
X Factor had already started by the time we were done walking and with Janet being tuckered out from the hard workout she barely made it through to the end of the show. Praying for a night of deep and healing sleep and lots of energy for tomorrow.