According to Janet I “got here just in time” today. She said it with such a big smile on her face I thought I was in for some big news but it was just her way of saying she was glad I was there. Jess said they’d had a busy day so far. Shower, breakfast, gym, clean room, laundry, label drawers and cupboards, lunch. I know that pace is good for Janet and she was happy to hear all those things listed off and recanted her comment that she was having “a weird day”.
Brian met us in her room and we had Janet transferring from wheelchair to bed and back a number of different ways as well as laying down then getting back up again. Tez even dropped by and offered a few pointers. Janet worked really hard and did a great job with everything. We even tried a transfer disc that she stands on then you spin her to line up with wherever she’s going and plunk her down. She’s not ready to do that routinely but Brian will procure some better discs then have that incorporated into Janet’s gym workouts. The standing transfer I’ve been using is not very good for my back and has no therapeutic value for Janet so I will use it only for toileting. Janet does really well with the sliding board and the focus is on that now as its something she’s close to doing completely on her own.
Nurse Jen stopped by as we finished with the transfers to have a look at Janet’s former peg site and without hesitation gave Janet the green light to go “swimming”! I think I’m more excited about this than Janet is but am confident she’ll enjoy it and it also means she can have a bath instead of the showers she’s complained about.
After a lot of ups and downs and rolling around it was time for a nap. Janet welcomed that opportunity and was snoring within minutes. I used that time to call Jim the KGH pool guy. He was very open to times that Janet could go there and suggested Thursdays at noon as that is a fairly quiet session which is probably good for Janet to start with. He mentioned a routine that made it clear to me he didn’t know any details about Janet’s condition so I filled him in and we agreed that the first session would be just floating and familiarizing with future sessions leading towards leg and arm exercises. Tez agreed and suggested trying to get Janet to float on her back and kick her legs. We’ll see how it goes next Thursday and Tez will try and drop by.
In a further conversation with nurse Jen I told her Janet’s Dilantin levels still seem high and her next blood test isn’t until Wednesday. She looked at the requisition for that test and noted there is no date on it so I’m taking Janet tomorrow. Hopefully her doctor will have the results Monday and we can chat about the situation. I will also ask for a referral to the neurologist as there are too many unknowns out there for me to keep going like this. Janet has lost learning opportunities because of the overdose and its time to get this straight.
Janet’s across the hall neighbor, Clint, is moving out tomorrow so I had Janet present him with a happy face lollipop. She started giving it to Karl first then clued in and said some nice words to Clint. Good to see her talking to others. Curtis took a brave Janet to the gym after dinner and had a good workout with her after I assured her it would not be a big one as she’d already worked hard today. She came back pleased with herself and seemingly realizing some benefits to all this. We sat on the couch in the living room watching TV while she munched on an apple before bed.
The afternoon nap was Janet’s last sleep in a hospital bed, he writes with confidence. Brian found a regular bed and frame for Janet and with some modifications from Ray she is sleeping tonight in a real bed which she says is very comfy. It is also the perfect height for transferring her to and from her wheelchair. Another step forward.
Today was a good one and I think Janet gained some confidence through all the activity. Praying for a good rest in her new bed and a fun day tomorrow.