Good to See You #TSJ

Janet was very bright and cheery this morning when I arrived before taking her to the eye doctor. The dietician had already been and gone and Garrett reported that she had a little conversation with Janet and reviewed her chart and said all looked good, carry on. I was hoping to speak with her but maybe next time. Janet said she slept well and had a good breakfast. She knew we were going somewhere this morning but couldn’t remember where. I was encouraged by her responsiveness.

We had a good appointment with the eye doctor, spending an hour examining and chatting about Janet’s condition and he will prepare a detailed report for Connect over the next couple of days. From what I saw and from what he told me, Janet’s eyes are healthy, they are aligned almost perfectly with the left one maybe very slightly deviated but not nearly what it was a few months ago. There is a large floater in the right eye. This likely occurred at the time of the rupture or soon after and there is no treatment needed for it. Janet’s vision may or may not be affected by it and she may not even know it’s there. Janet is displaying some right side neglect and just how much will be determined when we do a vision field test next week. There was not enough time to do one today and the doctor wants Janet at her best and brightest to give the highest probability of success. Janet’s prescription is fine for now and her glasses are still good for distance as prescribed and she should not wear them for reading. With her glasses on Janet tested at 20/20 or close to it and she was able to read impressively well. As we have known for some time, she often gets stuck and repeats a word or number, she did that today a number of times during the exams and it was interesting to see the visual cues the doctor gave her to erase what she was stuck on and start fresh. Covering an eye briefly, looking up at the ceiling briefly or closing both eyes then re focusing. He would like us all to start teaching Janet some of these cues and feels she can regain a strong ability to read one day. She currently can go four to five words before stalling and that is impressive considering.

Home for a wintertime lunch of grilled cheese and tomato soup was next on the agenda followed by an afternoon nap. Yes, Janet slept for over thirty minutes this afternoon and quite deeply too. I had to wake her up so we could get back to Connect in time for a workout before dinner. We managed to Skype with Mary/Gaga before leaving and enjoyed a good conversation with her. Janet was pretty loud and was able to answer some questions about what she had been doing. I’ve noticed a real improvement in that area lately. Earlier in the day I had read an email to Janet sent to me from an elementary school friend of hers who found this blog and wanted to get in touch. Her name didn’t register with Janet when I first read it to her then when I told Mary/Gaga who very clearly remembered her, Janet’s memory kicked in as well. Her and Karen were close friends in grades five through eight and we look forward to at least virtually reinstating that friendship.

In the gym today we had only a small battle about working on the Shuttle. Janet gave in a worked hard with some good results. It helped to have Phil getting his first workout at the same time as the therapists encouraging him could be heard easily by Janet. Phil was with us at KGH Rehab and is doing really well. Glad to have him at Connect. Janet’s legs are quite tight, maybe tighter than the last time I worked with her but I still managed some pretty good range and she was able to do lots of movement in both herself. She gave two strong attempts at the stripper pole but was pretty tired so was not that successful. All of the transfers I did with her today were standing, except for the car, and she did very well with most of them.

Dinner was another beautiful Rikki creation followed by a nice warm shower, some reading of Slow Dance and a Janet initiated prayer. She was very tired and only managed “thank God for Andrew and his…” The rest was Klingon but I’m sure God understood. We prayed as always for rest, healing, restoration of the ability to walk, use of her right arm and hand, complete restoration of her vision and ability to talk loud all the time. Looking forward to a fun day of recovery tomorrow and a nice sushi dinner at home with Joel and Kiko. Thanking God for them and all the other cool people in our life.

One comment

  1. I’m glad to hear Janet’s reading ability is coming back. It’s such an important skill. My daughter has ocular bobbing, but managed to defy the doctors and learnt to read. No-one has any idea how she’s able to do it. The brain is a fantastic thing that we’ve only begun to understand. Just keep on providing stimuli and who knows where Janet will be in a year.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s