Month: August 2012

August 30, 2012 PM

I know you are all laughing at the picture so I will talk about that first. I DID NOT PUT THE BOOTY ON HER HEAD. Honest! I had put her into bed for dinner and put one booty on her tummy while I put the other on her foot. I knew she started playing with it and by the time I looked up to see what she was doing she had it on her head and was making it “just so”. I laughed so hard and scrambled to take a picture before she realized what she had done. With the picture taken I was able to laughingly tell her that is not a hat and she took it off. I laughed so much she actually smiled!

It was a very enjoyable afternoon with Janet. I really missed her yesterday and was happy she was awake when I came in. Brenda was finishing her visit and had been singing to her when Janet woke up. I coached Brenda through some basic range of motion exercises she can do with Janet then had a little chat with Christi and Arlene. Christi mentioned some redness on Janet’s coccyx and we noticed some discoloration around her peg site. I asked Dr. Price to have a look and he said her coccyx is a little red but not nearly like it has been in the past so no worries there. When he came in I asked Janet to roll onto her side so he could look and she did! Dr. Price said he had not seen a peg site go the color Janet’s is right now but feels its just a mild reaction to the silver that was put on it a couple days ago. We will watch it closely. Laurel was a little concerned about Janet’s cough today so Dr. Price had a good listen and says her chest and lungs seem fine and the cough is likely a result of her inability to swallow effectively. I asked about that and he agreed to order a swallow test as it has been over a month since the last one. I think Janet is close to being able to try some food orally but not quite yet. The test will be interesting. I also asked him about the C diff. and he was unsure of protocol at KGH. Christi later said they will send another sample to the lab and if negative we are good to lose the gloves and gowns.

Just as Dr. Price arrived so did Kiko ready to learn some range of motion stuff too. Kiko will stretch Janet out for us Saturday morning while I’m in Calgary and Laurel is in Vancouver. If anyone else has time to visit Friday afternoon or Saturday please do.

Janet and I went for a little stroll to the beach then up to the front of KGH. She drove her wheelchair a little bit but not as well as previous. When I told her it was time to go in for dinner she immediately released the brake on her wheelchair! She actually took the handle right off and had a good look at it. Back in the room it was into bed for dinner and of course the booty hat. Janet fell asleep shortly after dinner stated to I went home to load the car up for Calgary. Cam has done a good job of getting ready.

Laurel and I went back to say goodnight to Janet this evening and she was sound asleep. We got her into her PJ top and splint and left her to rest.

Praying for a safe drive to Vancouver for Laurel, a safe flight to Vancouver for Raju, a safe drive to Calgary for Cam and I, and a joyous day for Nancy and Jim Church as their daughter Gillian is married tomorrow. Praying also for Janet’s full and immediate healing.

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August 30, 2012 PM

I know you are all laughing at the picture so I will talk about that first. I DID NOT PUT THE BOOTY ON HER HEAD. Honest! I had put her into bed for dinner and put one booty on her tummy while I put the other on her foot. I knew she started playing with it and by the time I looked up to see what she was doing she had it on her head and was making it “just so”. I laughed so hard and scrambled to take a picture before she realized what she had done. With the picture taken I was able to laughingly tell her that is not a hat and she took it off. I laughed so much she actually smiled!

It was a very enjoyable afternoon with Janet. I really missed her yesterday and was happy she was awake when I came in. Brenda was finishing her visit and had been singing to her when Janet woke up. I coached Brenda through some basic range of motion exercises she can do with Janet then had a little chat with Christi and Arlene. Christi mentioned some redness on Janet’s coccyx and we noticed some discoloration around her peg site. I asked Dr. Price to have a look and he said her coccyx is a little red but not nearly like it has been in the past so no worries there. When he came in I asked Janet to roll onto her side so he could look and she did! Dr. Price said he had not seen a peg site go the color Janet’s is right now but feels its just a mild reaction to the silver that was put on it a couple days ago. We will watch it closely. Laurel was a little concerned about Janet’s cough today so Dr. Price had a good listen and says her chest and lungs seem fine and the cough is likely a result of her inability to swallow effectively. I asked about that and he agreed to order a swallow test as it has been over a month since the last one. I think Janet is close to being able to try some food orally but not quite yet. The test will be interesting. I also asked him about the C diff. and he was unsure of protocol at KGH. Christi later said they will send another sample to the lab and if negative we are good to lose the gloves and gowns.

Just as Dr. Price arrived so did Kiko ready to learn some range of motion stuff too. Kiko will stretch Janet out for us Saturday morning while I’m in Calgary and Laurel is in Vancouver. If anyone else has time to visit Friday afternoon or Saturday please do.

Janet and I went for a little stroll to the beach then up to the front of KGH. She drove her wheelchair a little bit but not as well as previous. When I told her it was time to go in for dinner she immediately released the brake on her wheelchair! She actually took the handle right off and had a good look at it. Back in the room it was into bed for dinner and of course the booty hat. Janet fell asleep shortly after dinner stated to I went home to load the car up for Calgary. Cam has done a good job of getting ready.

Laurel and I went back to say goodnight to Janet this evening and she was sound asleep. We got her into her PJ top and splint and left her to rest.

Praying for a safe drive to Vancouver for Laurel, a safe flight to Vancouver for Raju, a safe drive to Calgary for Cam and I, and a joyous day for Nancy and Jim Church as their daughter Gillian is married tomorrow. Praying also for Janet’s full and immediate healing.

20120830-205813.jpg

August 30, 2012 AM

From Laurel

A very sleepy morning for Mom. The nurse said she was following commands extremely well as she was getting her cleaned up this morning, but since then she has seemed pretty tired. The report over the night was that she was “moving a lot throughout the night,” so I wouldn’t be surprised if she is catching up on missed sleep today. I also think she may just not be feeling the greatest.

Tom did a physio workout that I felt was pretty lack lustre, so I planned to do an extra workout of my own with her afterward. Unfortunately, her sleep got a little in the way of that, but we did do some extra stretching eventually. A little reading and then she was back to sleep again, with a visit from Brenda on the agenda shortly after I left. Larry is headed down now, so hopefully she is caught up on sleep and ready for a good afternoon with him.

August 29, 2012 Kiko

From Kiko

Yes I did have a better luck the second time! 😊 After Laurel left, Janet (wearing a super cute pink PJ) wanted to practice her get up move. I helped her with that a few times. Then I brought out my fruit props. A banana (dying one) and an apple. She held each one in her hand and looked at them intently as I told her what they were. Then the cutest moment came when she noticed a sticker on the apple. She successfully took it off and gave the sticker to me when I asked, and then gave me the apple, cuz now it was ready to be eaten 😃 Then I gave her the hairbrush, she also looked at it intently but seemed a bit confused as to where she should be holding this pokey thing…? I asked her if she could brush her hair and she didn’t, so I guided her to brush my hair and she did! I wiped her face as usual, then it was time to jet as my ride arrived. She seemed quite alert tonight, and I’m glad I came back to have a short but quality time with beautiful Janet. Thank you for the opportunity. xoxoxo

August 29, 2012 PM

From Laurel

Mom was a little more subdued this afternoon than this morning. Kiko stopped by for a couple of hours after I left this afternoon, but it sounds like Mom slept through most of it. Her only major nap today though, which was good. Kiko kindly came back as I was leaving at 8 this evening to try to catch Mom more awake, so I’m hoping she had better luck with her second try. Mom was quickly put in her wheelchair for an earlier dinner when I arrived, and I am guessing her knee pain was at least in part to do with her less bright, more worried expression. I propped her left foot up on some pillows while she was in her chair, which seemed to relax her somewhat. I had brought a pinwheel to try to help Mom with relearning some mouth movements (e.g., blowing on it to make it move), but she didn’t seem interested, nor did she really want to look much at books. Not her greatest few hours. Interestingly however, at one point I got up to throw my banana out and left my glove on my chair, and as I walked back to my chair Mom picked the glove up as if to make sure I didn’t sit on it and then put it back on my lap when I sat down. So cute. After dinner we went for a walk outside to try to perk her up, but she seemed a little overwhelmed going through the halls. A little better once outside, but better yet when finally back in bed. Best part of my week came as I leaned in to thank her for the day together and to say goodnight, and she began rubbing my back. So amazing.

August 28, 2012

From Heidi

Jack joined me (Heidi)Yesterday during our reading time with Janet and it turned into an exciting event for us. I have never see her so beautiful and alert. From all those outdoor beach strolls with Larry, she has acquired a gorgeous tan.
Between our bouts of reading we pulled out the large mirror, handed Janet the hair brush and asked her to brush her hair. It took a moment but then she did exactly that. Today she also turned the book in the books each time we asked her to…without hesitation. High fiveing, brushing her hair, putting up one finger, putting her glasses on and off and flipping through books and lovingly holding my hand was one of our most precious times with her. Tangible and evident progress. Before we left we again prayed over her that God would completely heal her and restore all that has been broken. We are grateful for Larry, Laurel and all the wonderful people God has placed in her life. Love and Hugs…Heidi

Sent from my iPad

August 29, 2012 AM

From Laurel

We began the day with some chatting and some sign language. Mom didn’t seem very cooperative with signing, so I ditched that and began her morning stretch. She was somewhat tight but loosened up relatively well. This also put her to sleep, and she had a solid 30-45 minute morning nap. After that, I got out the mirror and played around a little with that. Mom really stared intently at her reflection, and moved her hair around a little while looking at herself. I tried to get her to copy my mouth movements (e.g., “open your mouth on 1, 2, 3…”), but didn’t have any luck. However, she did slightly open her mouth once or twice when I touched it on the third count. We did some reading to allow her to relax, and then I tried signing again. A great surprise: all I said was “Mom, show me yes with your hand” without doing any hand motions myself, and she lifted her hand, did a small wave but then actually did the yes sign!! Either she has learnt that doing that is the only way to shut me up, or she actually put together yes and the hand motion! Pretty excited that it may be the latter! She didn’t repeat it when I asked again later, but you really have to catch Mom at the right time for these new things.

Physio was a fill-in for Tom today so she didn’t make it by until 1130 or so. It was Jane, who Mom had for physio several times when in the surgical ward. Jane was tight for time so didn’t do much other than the basic range of motion, but she really did push Mom past her usual stretches with Tom. A few painful/worried expressions from Mom, but it generally seemed like a good sign that she was being pushed further than usual. Jane noted that it really is not Mom’s left hip that is limited in range, but her knee, which was clear when she dropped Mom’s leg over the bed. Mom relaxed after Jane left, and I read her some Anne until she fell asleep. A well-deserved nap. She will soon be treated to a visit from Kiko, and then I’ll return later in the afternoon.

August 28, 2012 PM

From Laurel

A solid afternoon shift with Mom. I arrived and we spent some time chatting and doing some signing. She still never used “yes” or “no” signs in response to a question, but she did quite methodically figure out how to do the “no” sign and imitate it back for me. She was soon put in her wheelchair and we headed down to the beach. Larry was riding by on his bike and joined us for a bit. We all gave Gaga a call together and it was nice to see Mom focusing on the phone as her mom chatted to her. Larry even caught Mom looking over to me a few times when Gaga directed questions to me.

Once back inside, Mom quickly appeared uncomfortable in her chair, lifting up her left leg and moving forward lots. I asked her if she wanted to go back into her bed, and prompted “yes” or “no” signs, but no luck. However, she did start motioning to the bed and leaning over to try to touch it, increasing this action over time as we waited for the nurses to come to move her back to bed. It was very clear she was trying to communicate she wanted back in bed. She also leant over to put her magazine and glasses on the bed, and threw them at the bed when she realized couldn’t quite reach that far. Both objects hit the bed – who knew Mom was the one we all got our basketball strokes from???

Once in bed, she still appeared uncomfortable or distressed about something, and nurse Arlene decided to give her some Tylenol. She settled down enough for a little snooze while I was reading to her, but then woke quickly and began Houdieno. I attempted to play a game of Tic Tac Toe with her. Although I wouldn’t say she actually made a move, she did attempt to make a scribble (which happened to be on the board). She also successfully took 2 pillowcases off of her pillows. It seems clear her bed cleaning skills have been spared!

I moved her onto her back and stretched her out and this seemed to relax her, enough to put her to sleep. I then left her for the night looking quite peaceful tucked in bed.